Hi everyone,
This has been a hard holiday. Angi's
hubby Mike and his sister were over.
Angi's and Mikes anniversary was 12-22-02
my brother's birthday was 12-22-31 or 32
and Dad's death was 12-26-04. So much not
to mention that I went out of it was hospitalied
and dont rememeber a thing for 12 days.
My Hepatic Encephalopathy hit hard due to build
up of ammonia levels. They almost put me on
hospice which would have definately killed me
but for the liver Dr. not going for it. Agressively
fighting for me telling Sharon this is just an
episode and she will wake up. The thing is I was
at first walking and talking but I dont remember.
It takes more of my memory each time. I dont want
to go like that but if i cant get a transpant I
will. I love my transplant team they are solely
for me and fight aggressively for my right to
live. Sharon feels like there is not choice
in it for her as my spokesperson and they told
her yes there is. We will tell you when there
is nothing more we can do for her.
I was so out of it that I didnt know my grand
kids were over and aparently I sat up and started
to fall forward and the youngest three 6,7,and 8
kept me from falling head first into the coffee
table which is metal and glass.
I am so grateful for them. Sharon came home
because she couldnt get ahold of me and found
them holding on to me and pushing me at the shoulders
to keep me from falling forward till their mom got
there. She had ran to the store and left them there
thinking i was asleep told them if i wanted something
to get it for me.
We are still trying to work things out with the
schedules so that someone is here all day every day
that Sharon is at work. Thats 3 occasionally 4 days
a week. Im afraid my memories of Angi and my brother
Lloyd and Mom and Dad and my son Ronnie will be taken
from me. Sorry didnt mean to dump on everyone like
this it just came pouring out. I have lost so much
and face losing more.
Ann
