http://www.mdjunction.com/forums/behcet-syndrome-discussions/feed http://www.mdjunction.com/forums/behcet-syndrome-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Tue, 21 May 2013 15:22:10 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/2762162-im-in-nirelandanyone-else-here-with-behcets#10330488 I understand your pain, I went through it in1974, thank God now I'm completely well, I pray the same for you. In 1974 it really was soooo rare only one doctor in Baton Rouge could diagnose it. Back then I was treated with a new drug called cortisone, I was blessed and cured/healed I pray the same for you.... Sat, 15 Dec 2012 21:02:14 -0800 http://www.mdjunction.com/forums/behcet-syndrome-discussions/introductions-personal-stories/10252370-hello-everyone#10281681 Hello Krissa, There isn't too much activity in this Behcet's group... but I just wanted to let you know that I would love to be able to offer help, whether its info or support. My name is Jenna and I'm 25 yrs old-- I have been very sick for a long time, and for years doctors had no idea that it was Behcet's disease. I was diagnosed (and then undiagnosed) several times with what seemed like every other autoimmune disease out there. I was finally sent to an amazing rheumatologist a year ago, an... Sun, 25 Nov 2012 13:08:10 -0800 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/10214550-new#10239616 Hi there! I am not on this site a whole lot but would like to let you know that if you need right now kind of advice or support there are several Behcet's groups on Facebook that are very helpful and make me not feel as alone as I am.... Wed, 07 Nov 2012 10:54:09 -0800 http://www.mdjunction.com/forums/behcet-syndrome-discussions/introductions-personal-stories/654763-remy-introduction-story#10239602 Thank you for the reply. As you can tell I don't spend alot of time on this site I found groups on Facebook that are awesome for right now support. My PCP has stepped up and is now on board with the Behcet's diagnosis and is my main go to doctor. My symptoms still crop up but arent as bad as they once were and don't last nearly as long as they used too which I am glad. I totally get the treatment issues from the insureance and the body mine seems to not like narcotics or most pain relievers an... Wed, 07 Nov 2012 10:47:19 -0800 http://www.mdjunction.com/forums/behcet-syndrome-discussions/introductions-personal-stories/3178748-what-do-you-believe-triggered-your-becets#10227957 WOW! Hearing your story makes mine seem so tame. I am so very sorry you have had to endure so much and so many varying issues with this horrible disease. You sound like you have been to Hell and back and are still fighting. Bravo to you! I have Behcets also and have no idea why I have it or what may have caused it. It just showed up about 4 years ago. Very severe mouth sores that reoccurred regularly and then the list of symptoms continued to just add up over time. I'm not the proper race for th... Fri, 02 Nov 2012 23:26:04 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/3693564-new-here-#3693564 Hey yall! My name's Kenzie. I'm 16 yrs old. I've had Behcet's for nearly four years, but was recently diagnosed December 2011. I'm always looking for others to talk to, so i look forward to getting to know you :)... Mon, 30 Apr 2012 18:22:14 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/3567906-anyone-have-neurobehcets#3567906 Hi! It has been interesting reading some of the discussions here about people's diagnostic processes. I too was diagnosed with so many different things, MS, Lupus, crohns, before they realized in September after I had a seizure and my MRI showed a progression that I had Neuro-behcets. Besides mouth ulcers and one episode of vaginal ulcers, I don't really have systemic issues. I have all brain issues. Does anyone else have Neuro?? Somebody was asking what they thought triggered their b... Fri, 16 Mar 2012 21:39:50 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/3512522-great-site-where-docs-go-to-learn-about-behcets#3512522 Free resource for researching your diagnosis. http://emedicine.medscape.com/article/329099-overview... Fri, 24 Feb 2012 18:21:11 -0800 http://www.mdjunction.com/forums/behcet-syndrome-discussions/introductions-personal-stories/3212763-hi-everyone#3512489 Biopsy can show vasculitis but really is to rule out othe causes. Great free resource and what your doctors use.... http://emedicine.medscape.com/article/329099-workup#showall... Fri, 24 Feb 2012 18:01:27 -0800 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/2259650-hey-guys-im-new-here#3008006 I cant help with the female bit but I too have had Behcets for some considerable time - 30 years. Would like to correspond please private message me or email: daveharb2004@yahoo.com.au I live in Grimsby uk... Fri, 26 Aug 2011 13:38:05 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/introductions-personal-stories/412074-anyone-around-nashvilletn#3007989 Donna read one of your posts and realise you are a few miles away across the pond. Will be nice to communicate with someone from another part of the world. Look forward to hearing from you. Dave:)... Fri, 26 Aug 2011 13:30:57 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/2981277-dave-from-grimsby#2981277 I am not sure this is for me. I have had Behcets for about 30 years - I am 53 - and have not wanted to know how it affects other people not sure I still do. I have been ill, very ill at first but for last 20 years life has been good. I suppose i can offer hope for some people and maybe some might find my story interesting but it scares me to find out about others and would prefe not to know. Regards, Dave... Tue, 16 Aug 2011 15:38:28 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/2887286-recently-diagnosed-with-behcet-disease#2890545 Hi RedHairAngel, Thanks for the reply. Sorry to hear about your flare; I know how hard it can be. In my case, the attacks are mostly affecting my left eye. However, the retina and the optic nerve are not affected at all. But what is killing me is the corticosteroids medicine. It gave me body acne, made me gain weight, severe stomach bloating, depression, and mood-swings. I used to workout for 2 hours daily, but now I can barely go around my daily tasks! What kind of medicine did your doctors pu... Mon, 11 Jul 2011 09:43:10 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/2843900-help#2844022 Sorry to hear you were dx'd with Behcet's. I was confirmed dx'd in Jan when I got anterior uveitis in my right eye. Up until then it was suspected and was being treated for Behcet's. I am on Imuran, Methotrexate, Propanolol, Norvasc, Folic acide, Vit D, and Potassium. I get extreme Migraines, mouth sores, vag sores, boils/skin ulcers all over my trunk and upper legs, I have stomach and intestinal issues and have ulcers there and now eye issues. I was misdiagnosed with Crohn's th... Thu, 23 Jun 2011 10:36:04 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/2505394-behcet-syndrome-videos-on-mdjunction#2517698 Hi - it's me again... I got many PMs from members asking to upload their own videos. At this point we can't add to the library . but hope we will be able to soon, we understand the importance of that! and another (not related) topic...Two weeks ago we added to the (now available on chrome too) the Groupon application that shows you the hottest daily deals in your town, every day. We received great feedback from the people using the toolbar so I suggest trying it out!!! CU roy... Wed, 09 Mar 2011 03:21:42 -0800 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/2283990-hi#2283990 hello, i just wanted to say hi :)... Fri, 07 Jan 2011 12:50:11 -0800 http://www.mdjunction.com/forums/behcet-syndrome-discussions/introductions-personal-stories/1945008-in-need-of-a-doctor-for-behcets-in-my-area#1945008 Hi everybody, I have finally made it here. I have been searching for a long time to find a group in my Country at least. My name is Maria Pia Kidd. But everyone calles me Pia . My close friends do and I am sure I will find alot of close friends here. I am also a member of the Behcet site, the main one. I am 46 years old and I am married to a wonderful understanding man named Don. We have twin daughters, they are 19 years old now. They both go to college and are doing very well. They are... Sun, 26 Sep 2010 04:13:58 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/general-support/804506-enbrel#804506 HI GUYS... MY RHUEMY WANTS TO PUT ME ON ENBREL. IT SOUNDS GOOD. HAS ANYONE OUT THERE THERE TAKEN IT FOR BD, I ALSO HAVE A BAD BACK, AND MYASTHENIA GRAVIS . I AM HOPING ENBREL WILL HELP SOMETHING......ALSO HE WANTS TO START ME ON PLASMAPHERIS OR IVIG..I WOULD PREFER PLASMAPHERESIS....CAN ANY ONE TELL ME YOUR EXPERIENCES OR WHAT YA KNOW ABOUT THESE THINGS?? THANKS SOOO MUCH AKA ROBIN... Wed, 02 Sep 2009 19:25:37 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/introductions-personal-stories/753039-hi-there-i-am-new-and-from-the-uk#753039 I was diagnosed with behcets syndrome in 1999 after a long search to find out what was wrong with me. I also have another rare condition called myasthenia gravis which makes my muscles very weak. Managing the 2 conditions is pretty difficult and it has been very difficult to find a specialist doctor to treat me. I would love to hear from other people who have behcets and it would be really amazing if I could hear from another person with myasthenia as well. Love to hear from you A... Sat, 15 Aug 2009 08:49:39 -0700 http://www.mdjunction.com/forums/behcet-syndrome-discussions/introductions-personal-stories/499669-rediagnosed-for-4-years#595298 I'm glad to hear you're feeling a little better. I have fibromyalgia and myofascial pain syndrome so I completely understand. Are you open to supplements? I take one in particular that really helps with the inflammation, moodiness, and energy. I also haven't gotten sick since I've been on it. If you are interested, let me know. I don't get paid, nor make money off of it. I don't want to push anything on anyone but I know it works and would love to see it help others.... Thu, 18 Jun 2009 10:27:49 -0700