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"My husband is Type One diabetic, has stage 3 Chronic Kidney Disease, Gastropares..." (plaidoe)

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mabri"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

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Batten Disease Support Group
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10/21/2009 02:30 PM
Beckie29
Posts: 1
New Member

Not really sure wot I'm doin.I didnt even know there was such as thing as a Batten's support group but thought I'd google it so here I am.I decided to join because my brother Mark died in 2006 of Juvenile Batten's and I havent really spoken about it to anyone.
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