|
fluffyluggage Posts: 4723
VIP Member
|
Hi KDH, Welcome to the forum. I'm sorry you're suffering so terribly. It's horrible to be in pain and know you have to basically suck it up and deal! I'm glad you like your surgeon. It's worse to be in pain and not have a good relationship with your doctor(s). I hope your next surgery goes well. Lupus is very difficult to deal with in and of itself. I have several friends with the condition, and I know it's not an easy road! A PM group is a Pain Management group--a group of doctors or a doctor who handles your pain, gets your your pain medications. Sometimes this is handled through the doctor who takes care of your lupus, in your case, or it may be your surgeon. It depends, with each of us, who will manage our pain. For me, it's my neurologist, as I have Fibromyalgia, CFS, migraines, and several other conditions, and my neurologist is a pain management specialist, so he handles my pain. For you, it might be different, tho. Many of us coming here have other issues, and we each may have different doctors who are our PM teams. I hope you'll find this a welcoming and helpful group of people! If you need anything, feel free to post here, or let me know if there's anything I can do for you! Hugs, jen  Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.
Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version) |
"I have suffered from depression most of my life, but had some long, non-depressed times. The last 16 years have been an on-going, constantly worsening nightmare for me medically, socially and with my family. 11/2008 to the present has been the worst time in my life, and new things just keep piling up. During that time I’ve gone from being mostly homebound to being totally homebound due to the errors of about 2 dozen doctors who overmedicated me so badly that I came home w/ 4 conditions I didn’t go in with. I spent months wanting to die, and finding MDJ may well have saved my life. It’s one of the worst feelings to know that nobody on earth needs you for anything; but now that I’ve been a group leader for awhile, there are people here who need me. Thanks MDJ." (Sylvia4648)
