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Gluten Free Diet



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08/30/2007 08:57
Marica
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I have found the gluten free diet really works for my 4 year old with autism. it makes the difference from severe autism to mild/moderate. he really regresses in everything, withdraws himself, gets agitated, stops saying the few words he says... whenever i try to give him gluten as a try. his therapists all notice the change without me saying anything.

Have any of you found this helpful?

hope you try it out as many as 8 out of ten children with autism seem to benefit from this.

good luck x

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09/24/2007 08:25
Lsmom
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We have done the gluten free, we did not get the desired results as we got from the dairy free diet, Although we did see minor changes with the gluten free.

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09/24/2007 10:43
Nicksmom
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I was wondering if you both would tell me about the gluted free diet and also the dairy free one. We have never had our doctors bring them up and I am always looking for new things that will help my little boy.


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09/24/2007 10:54
Lsmom
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I purchased( you may want to check it out of your local library before purchasing) Special Diets for Special Kids. By Lisa Lewis It has 150 recipes for

Gluten

Casein (dairy)

Detoxifications systems

Autism

ADHD

and many others...

It worked for us and some parents have said it did not work for them, we did a gradual transition.

Good luck,

Jessica


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09/24/2007 11:18
Lsmom
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gluten free means u are removing wheat based snacks, breads, muffins pretzels, crackers, noodles. casein free is removing the milk protein from processing . Please don't quote me on this i was just looking over Lisa Lewis's book looking for the exact definition and could not find it.

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09/25/2007 05:17
spectrummum
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Food Allergy Anaphylaxis Network www.foodallergy.org

Celiac Disease and glulten-free diet support center www.celiac.com

Gluten-free casein-free diet, dietary intervention for autistic spectrum disorders www.gfcfdiet.com

Gluten-free info web contains information about gluten-free status of brand name food products www.glutenfreeinfo.com

Celiac disease foundaion www.celiac.org

Gluten intolerance group www.gluten.net

living without magazine www.livingwithout.com

Gluten freedom, wwwlglutenfreedom.net

Casein is one of the major proteins in the milk of all mammals including cows, goats, and humans. Casomorphin (or caseomorphin) is a peptide derived from casein, a milk protein. When Casein is digested properly, it breaks down into large peptides like casomorphin, and should then be broken down further into smaller amino acids. However, Dr. Reichelt in Norway, Dr. Cade at the University of Florida, and others found that urine samples from people with autism, PDD, coeliac disease, and schizophrenia contained high amounts of the casomorphin peptide in the urine. In its peptide form, casein has opiate properties similar to morphine, and may plug into the same opiate receptor sites in the brain. Researchers have found that these peptides may also be elevated in other disorders such as chronic fatigue, fibromyalgia, and depression based on anecdotal reports of symptom remission after exclusion of wheat and dairy.

Gluten is protein found in wheat , rye, barley and oats and spelt. Additionally it is present in derivatives of these grains; e.g. malt grain-starches, malt wash, hydrolysed vegetable/plant proteins, grain vinegar, soy sauce, flavourings, liquid glucose, wild rice. MSG (E621) Monosodium Glutamate, MPG (E622) monopotassium glutamate.

Many manufactured foods contain gluten which is not always shown on the label. Some medicines and vitamins also contain wheat flour as a filler even some herb and spice mixes contain gluten.

The international food guideline codex alimentarius allows food to be labelled gluten free whilst still containing a trace of gluten. The super-sensitive nature of the subset of autistic children who respond to dietary intervention are unable to tolerate even the tiniest trace.

Gliadorphin (also called alpha-gliadin or gluteomorphin) is a substance that resembles morphine. Ordinarily, this is a short-lived by-product from the digestion of gluten molecules (found in wheat, barley, rye, oats, spelt and several other grains).

Gliadorphin is very similar to casomorphin. Gliadorphin has been verified by mass spectrometry techniques to be present in unusual quantities in urine samples of children with autism, and are believed by many to be a central part of the system of causes and effects that cause autistic development. The most probable reasons for the presence of these molecules are:

One or more errors in the breakdown (digestion) process caused by enzyme deficiency and/or abnormal permeability of the gut wall, (allowing these relatively large molecules to enter the bloodstream from the intestine in abnormal quantities).

Monosodium Glutamate and Glutamate

Glutamic acid or glutamate is one of the 20 most common natural amino acids. As its name indicates, it is acidic, with a carboxylic acid component to its side chain.

Glutamic acid is critical for proper cell function, but it is not considered an essential nutrient in humans because the body can manufacture it from simpler compounds.

In addition to being one of the building blocks in protein synthesis, it is the most widespread neurotransmitter in brain function, as an excitatory neurotransmitter and as a precursor for the synthesis of GABA in GABAergic neurons. Glutamate activates both ionotropic and metabotropic glutamate receptors. The ionotropic ones being non-NMDA (AMPA and kainate) and NMDA receptors. Free glutamic acid cannot normally cross the blood-brain barrier in appreciable quantities; instead it is converted into L-glutamine, which the brain uses for fuel and protein synthesis. Due to the inefficient sulphation system, however, the blood brain barrier as well as the gut in many ASD sufferers is considerably more permeable than normal.

It is conjectured that glutamate is involved in cognitive functions like learning and memory in the brain, though excessive amounts may cause associated neuronal damage in diseases like Alzheimer’s disease.

The sodium salt of glutamic acid, monosodium glutamate (MSG) is responsible for one of the five basic tastes of the human sense of taste (umami), and MSG is extensively used as a food additive.

The EU E number (additive code) is E621.

Aspartame is the name for the artificial, non-carbohydrate sweetener, Aspartyl-phenylalanine-1-methyl ester; i.e. the methyl ester of the dipeptide of the amino acids aspartic acid and phenylalanine.

It is 160 times sweeter than sugar (sucrose or saccharose), and is marketed under a number of trademarked names. The EU E number (additive code) is E951. It is a common sweetener in prepared foods, particularly soft drinks. Aspartame is one of the sugar substitutes used by diabetics. Products containing aspartame usually have a warning label that they contain phenylalanine, a natural amino acid found in many foods, which is deleterious to sufferers of the genetic disorder phenylketonuria. Aspartame is a peptide which breaks down into its constituent amino acids when heated in the presence of water and acids. It is commonly used in diet soft drinks.

Post edited by: spectrummum, at: 09/25/2007 07:18

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09/25/2007 05:18
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The Gluten-Free Diet

A gluten-free diet is essential for people who have coeliac disease or dermatitis herpetiformis (a gluten induced skin sensitivity). Some people may choose to follow a gluten-free diet for other reasons, although these two diseases are the only ones where a gluten-free diet is considered medically imperative.

Gluten is a mixture of proteins found in some cereals, particularly wheat. It is the gliadin component of gluten which is responsible for coeliac disease. A gluten-free diet is not the same as a wheat-free diet, and some gluten-free foods are not wheat free. Despite a good deal of research, it is unknown how or exactly why gluten harms the gut. It is now considered likely that coeliac disease involves an abnormal immunologic response, rather than an enzyme deficiency as was suggested in the past.

The Vegetarian Society believes that a gluten-free diet is compatible with vegetarianism. Some doctors and The Coeliac Society advise against a vegetarian or vegan diet for coeliacs because they believe it may make your diet too complicated and this could mean it is difficult to comply with. There are no known medical or nutritional reasons why you should not be a vegetarian or vegan coeliac, although the gluten-free aspects of your diet must be the priority for your own health and well-being.

It is possible to follow a gluten-free vegan diet, although you must be extra careful to ensure that your diet is nutritionally adequate. It is essential that you seek the advice of a sympathetic dietitian if you want to follow a vegan gluten-free diet.

Vegetarians may initially find it difficult to establish what foods they can and cannot have. This Information Sheet is designed to help.

A gluten-free diet involves the complete avoidance of all foods made from or containing wheat, rye, barley and usually, oats. Some doctors say oats may be permitted, although The Coeliac Society advise against the inclusion of oats in a gluten-free diet. (see the Cereals Information Sheet for more details of cereals.)

The Coeliac Society publishes a list of gluten-free manufactured products in a booklet which is updated every year. You can check with The Vegetarian Society if you are unsure whether any particular foods on this list are suitable for vegetarians or vegans. Some manufacturers use the gluten-free symbol on their label.

A wide range of specially manufactured gluten-free foods such as, bread, bread mix, pasta, biscuits, cakes, crispbread and flour are prescribable under the NHS. Some groups of people are exempt from prescription charges, children, pregnant women and pensioners in particular. If you are not exempt, it works out economical to buy a "season ticket" type prescription. Some gluten-free products, such as chocolate biscuits, are considered luxuries and are not prescribable, although they can be bought from the chemist.

Nutritional Advice

Coeliac disease leads to severe damage of the gut surface, which can be completely reversed by following a gluten-free diet. Shortly after the diagnosis of coeliac disease, you need to be extra careful to ensure you have a nutritionally adequate diet, as you may have been suffering from malabsorption of nutrients.

Protein

Some gluten-free flours are low in protein, because they have had the gluten removed, which is itself a protein. Specially manufactured, prescribed gluten-free flours usually have milk protein added. Vegetarians can get protein from nuts & seeds, pulses, the non-gluten containing cereals, soya products, milk, cheese and free range eggs. Make sure some protein is included in each meal, and practice protein complementation with the vegetable proteins, for example, combine a nut or pulse dish with a suitable cereal.

Protein is especially important to a growing child, it is essential to seek the advice of your dietitian if you are bringing up a child on a gluten-free vegetarian or vegan diet.

Anaemia

Following diagnosis, many coeliacs sufferers are anaemic. This is usually due to iron deficiency, although it could also be due to folic acid or vitamin B12 deficiency. Your doctor may prescribe an iron supplement for you until your digestive system is back to normal and can absorb iron again.

To ensure a good intake of iron include pulses, lentils, nuts and green vegetables daily in your diet. Avoid drinking tea with meals and instead have fruit juice, which helps the absorption of iron because it contains vitamin C. You could try a natural iron supplement such as Floridix, which is available at most health food shops.

Going vegetarian

If you are already a vegetarian or vegan and are advised to follow a gluten-free diet, you do not need to abandon your vegetarianism. If you are recently diagnosed and would like to become vegetarian or vegan, do give your digestive system time to recover before making major changes to your diet, after all, you have a lot to think about in getting used to a gluten-free diet. When you have stabilised, you can gradually change to a vegetarian diet.

Do contact The Vegetarian Society if you have any problems, when making the change to a vegetarian way of living. Also, do contact us if you have any difficulties with health professionals, who are sceptical about your following a vegetarian diet.

Once coeliac disease has been diagnosed, it is recommended that you follow a gluten-free diet for life.

Vegetarian Gluten-Free and Gluten Containing Foods

Food Gluten Free Gluten Containing

Cereals, flours, cakes & biscuits Arrowroot, buckwheat, corn/maize, potato flour, rice, rice bran, rice flour, sago, tapioca, soya, soya bran, soya flour. Wheat, wholemeal, wholewheat & wheatmeal flour, wheat bran, barley, rye, rye flour, pasta, noodles, semolina, All baked foods made from wheat, rye, semolina, barley & pearl barley.

Dairy products & eggs Eggs, milk, cream, butter, cheese, curd cheese, coffee whiteners, soya products Some yoghurts (eg muesli yoghurt), some cheese spreads

Puddings Tapioca, sago, rice, custard. Semolina, sponge pudding, pastry, pies, wafers.

Beverages Tea, coffee, herb tea, fizzy drinks, fruit squash, cocoa, marmite, most alcoholic drinks. Barley based drinks, barley fruit drinks, malted drinks, beer.

Fruit & vegetables All fruits & vegetables, unless with certain sauces or cooked with gluten containing foods .

Nuts, seeds & pulses All, except certain brands of baked beans and beans with a gluten containing sauce .

Preserves & confectionary Jam, marmalade, sugar, honey, treacle, molasses, golden syrup, some brands of chocolate & sweets. Confectionary containing flour, some brands of lemon curd

Soups & sauces Gluten-free if thickened with a suitable flour. Many manufactured sauces, stock cubes, and soups contain gluten .

Miscellaneous Salt, pepper, vinegar, herbs & spices, tamari, yeast, most food colourings and essences. Some pepper compounds, shoyu, ready-mix spices, some seasoning powders, certain brands of mustard. Certain medicines may contain gluten.

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09/25/2007 11:59
Marica
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Just wanted to add with all this info that when you start the diet if its going to work probably you see a regression first in the first month. these are described as withdrawal symptoms, then like magic he starts to calm down. i found the leaflet with latest studies and practical things to do issued by the University of Sunderland. i bought it via e-mail as they do send overseas! costs 4 sterling. Good luck!
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10/04/2007 16:55
Proudmomof3
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We are just now looking into the gluten free diet.We are hoping it will help my son.But he is such a picky eater.If it does not look good to him he wont even try it.But we are trying.

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10/05/2007 21:53
Marica
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Wishing you good luck! and don't give up immediately it might work and it may not, however time will tell if there's any changes so at least try it for 2 months
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