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Autism ForumsIntroductions & Personal Storiesautism not 2 hard 2 deal with
10/16/2009 06:21 AM
afshan
 
Posts: 7
New Member

hi u all im afshan hav an autistic child who is 6 he is adored n luvd by all v liv in pakistan n a lot is happening here my son is going 2 a mianstream school n is doing v well he is interested in computers n loves 2 b amongst company i hav a wonderfull support system here n autism is not that hard 2 deal with ............
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10/16/2009 10:09 AM  Top
spectrummum

afshan I really dont not like your critasisms in some of your posts in 2 of your post you have critised these parents and carers,many people do find it difficult to deal with autism ,hell I am autistic and I find it difficult we can not all be strong all the time and we certainly do not need reminding.

I would appreciate it if you kept your comments to your self you have siad

autism is not that hard 2 deal with ............

and

u might need 2 get more involvd with the child n c how he is in his day 2 day life u might get a clearer picture 2 your query.

please be carful how you word things,I understand you dont speak good english however your words can come across of being critical of our parents and that is a no no.


10/29/2009 08:02 PM  Top
missymoo918
missymoo918
 
Posts: 1299
Senior Member

I love my son with all my heart but I do not think his autism is easy to deal with. Sometimes is just plain sucks! It breaks my heart when I see the fear in his eyes, I wish I could take the anxiety away. I would do anything to make this world less scary or intrusive to him. All I can do is love him and help him the best I can.. it's not easy but I do it because I love him.

06/05/2010 02:14 PM  Top
3AJSMom
3AJSMom
 
Posts: 13
Member

Autism isn't easy to deal with. It makes me angry to even think of any child suffering through fear and anxiety without the ability to communicate exactly what is going on with them. My daughter gets very anxious and I don't even know what to do to help.

06/05/2010 05:44 PM  Top
libbyl
 
Posts: 12
New Member

Autism is a broad-spectrum disability. There are 5 children in my daughter's school diagnosed with ASD, and each one of them is completely different. Some children are more severe than others. However, I cannot imagine anyone with ASD having an easy time handling the disability. My daughter panics whenever strangers come near her space. Wal-Mart is a nightmare. It is very difficult to watch her panic, and have others judge her without knowing anything about her. Complete strangers have not only openly stared at us, but have even told me what I should be doing to or with her during one of her meltdowns. Autism is NOT easy to deal with.

Previous discussions I participated in:
Medication
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Risperidone?

06/05/2010 08:05 PM  Top
2kids2luv
2kids2luv
 
Posts: 55
Member

I agree with the ladies who answered your post. It is NOT easy to deal with. I Love My son and sometimes it is very hard but that doesn't mean that I am complaining or anything. I am new to this and because of my love for my son I am asking for advice on how to help him better. That is great if your child's autism is easy but don't judge anyone else.

06/06/2010 10:37 AM  Top
angieandsara
 
Posts: 177
Member

I have a son with severe autism and a daughter with asperger's. They are my life but my husband and I had a tough time all through the years. It doesn't make it any easier when both sides of the family are not supportive. It has always broken my heart seeing them struggle with everything in life. It has torn me apart seeing how other people stare at them and stay far away from them like they're aliens. I love my kids and wouldn't trade them for the world but dealing with autism day in and day out is hard.

06/06/2010 11:45 AM  Top
RitaCeleste
RitaCeleste
 
Posts: 293
Member

Some kids are easier to deal with than others. Her kids may just be so into themselves they aren't doing a lot. Its sad but true for some kids. Or they are so high-functioning they will not have problems going to college and working a regular job. If her kids are mainstreamed, she's never even met the ones in special schools with autism that are more sever. She's not a doctor, she's just sharing that hers are different. Maybe she foolishly thinks the difference between how sever autism symptoms are is the love and care? Maybe not. Maybe she truly is unaware of the range of it, or maybe she thinks we are unaware of kids that are less sever and able to do more. I've even been told Asperger's was a kind of popular Dx since may of the parents of autistic kids are smarter and Asperger's kids can be above normal in IQ. It was like it was cool go get your kid DXed Asperger's. My daughter is in a special school, psycho ed center. She is sometimes called Asperger's because she is very verbal. But really, I can see she's just high functioning autism. But what I experienced with her maybe totally different from a parent of a nonverbal child is dealing with! Our kids may have the same disorder but they are all UNIQUE!

06/08/2010 07:45 AM  Top
JAN2009
JAN2009
 
Posts: 366
Member

I totally agree...every child with Autism is unique. Some children are harder to deal with and need extra help. My son is high functioning and at times very easy going and easy to take care of but, their are times when everything sets him off and it's meltdown city. Parenting is hard no matter what...it's not easy. What is easy is loving our kids... flapping and all.Smile

06/08/2010 08:18 PM  Top
OwensMom
OwensMom
 
Posts: 48
Member

Hi Jan2009,

Yes, I totatlly agree. We have our good days and bad days. When they're bad, they're really bad. My son has one meltdown and it's downhill for the next couple of hours. And when things are good, they're really good. Other than wishing that my son could have a full conversation with me, I wouldn't change anything else about him. I think the spectrum has made me open my eyes. We attend therapy weekly and when I think that this spectrum is the biggest hiccup in our lives, there are other children out there that have it much worse than mine. At that point, I can only count my blessings.

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