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05/10/2008 19:31
Heidi08
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[i]My name is Heidi and my daughter has been recently diagnosed with Autism. She is 4 1/2 years old. She was seen at the Kennedy Krieger Center for Autism and has another appointment scheduled soon. They said in addition to the autism she is borderline on mental retardation. I have to say all of this is so confusing to me . I've found myself going through this so called "grieving process" since her diagnosis in January. My husband is of no help as usual. He's like talking to a brick wall . Anyway, how do I get over the loss of the child I dreamed about having. That little girl that was going to grow up and go prom dress shopping and the little girl who would be talking to mommy about boys at 16 years old. All the things that most mom's take for granted; I'll never get to experience and it pains me terribly. I do not know how to pull myself out of this circle of anger and depression and grief. I'm scheduling an appointment with a psychologist very soon. I guess I'm just taking this really hard and, well I don't know. Can you please help?

~Blessings~
Heidi

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05/10/2008 19:52
hopie
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Hi,this is a very hard time for you.I went through this with my son.He is 6 now and I dont think you ever get over the pain but with time things do get better.My son is severely autistic and also was born with an abnormal chromosome.He is dependant on us for everything.He was my first born and I had such big dreams for him.I will never give up hope for him but I do take life one day at a time and take whatever comes our way.I did go on to have a second child,another boy,2 ,who is fine .Anyways,I know its hard right now,I have so been there myself but over time things will get better.I used to cry everyday for a long time and as time went on it has gotten much better.I still have many moments but I just focus on my sweet boy and make life as easy and good for him as possible.Email me anytime.I've been through this and maybe I can help.TTYL,Hope
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05/10/2008 20:00
Heidi08
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Hopie,

Nice to meet you. Thank you for replying. It's nice to know that I'm not alone with all of this. I truly hope you're right. I want it to get better very soon. I don't think I'll ever do anything as hard as this for the rest of my life.

~Blessings~
Heidi



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05/10/2008 21:37
MotherofBoys
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Welcome Heidi!!!!!

I think all parents go through the grieving process when they find that their child is diagnosed with something they never considered for their child.

The other difficult thing that we parents seem to go through is what I will call episodic mourning when our child(ren) slow or almost stop in their progression. We want so much for our children and yet, we do not know what their potential is.

There is nothing that says that your daughter won't be going prom dress shopping. Maybe you and she will talk about boys.

None of us know the future, for our children, with or without ASD, MR or anything else.

I hope that I have made sense tonight. It has been a long hard day with my boys. They were "out-of-sorts" all day long and I have had a Migraine for the past 2 days.

If I don't make any sense to you, wait until Shell logs on and welcomes you. She will do a great job of making sense, especially because she is an Aspie and so, can understand things from the Spectrum perspective.

"I like nonsense, it wakes up the brain cells. Fantasy is a necessary
ingredient in living, it's a way of looking at life through the wrong
end of a telescope and that enables you to laugh at life's realities."

--Dr Seuss



Group Leader: ASD, Autism, Hearing Loss, Parenting Multiples, Post Partum Depression and Tinnitus Support Groups.

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05/10/2008 22:47
spectrummum
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you will experience them all hun,but differantly,please do not sign her off just yet.

I mamaged to get through life ,yes it was hard but we do it because we have to we do find our place in the world eventually,she will go to the prom maybe not in the way you did but she will go (and it will not be the end of he world if she doesn't)you wll go shopping and you can choose clothes you an get your hair done ,nails and toes etc it will just be unique rther than normal.

I am married for 16 years 6 chldren and am writing a book,what I am trying to say is she will cope and get through life even if it seems hard at the moment oppetunaties are boundless because she has you to show her the way and that can not be all bad.

You have far more than ANY normal parent,they will never have what you havein your daughter her qualaties will come and she will find self

take one day a time

shell

Post edited by: spectrummum, at: 05/11/2008 02:25

http://groups.msn.com/AutismAndAspergersInTheFamily
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05/11/2008 11:06
Heidi08
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You made complete sense. I understand the not knowing and for me I guess that's probably one of the most difficult things I struggle with. My main problem is that I fee very alone with all of this since My husband doens't know how to be a soft place to land for me.

Thank you for all your support!

~Blessings~
Heidi

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05/11/2008 11:10
Heidi08
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I appreciate all your words; they are very calming for me. I'm just really hoping right now that I'll be able to pull myself out of this. I have so much fear of what's to come with her.

I would love for her to blossom well and somehow have a life that is normal for her not the society normal I just can't seem to see the light at the end of that tunnel yet.

~Blessings~
Heidi



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05/11/2008 11:54
MotherofBoys
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Heidi08 wrote:

I appreciate all your words; they are very calming for me. I'm just really hoping right now that I'll be able to pull myself out of this. I have so much fear of what's to come with her.

It is a very difficult process to go through. Try not to look too far into the future. There is no way of knowing who or what your child is going to be. Hang in there, we are here for you!

I would love for her to blossom well and somehow have a life that is normal for her not the society normal I just can't seem to see the light at the end of that tunnel yet.

She just may. You never know. She knows nothing different than what she is/feels and to her, that i normal.

Here's wishing you a lovely Mother's Day!

"I like nonsense, it wakes up the brain cells. Fantasy is a necessary
ingredient in living, it's a way of looking at life through the wrong
end of a telescope and that enables you to laugh at life's realities."

--Dr Seuss



Group Leader: ASD, Autism, Hearing Loss, Parenting Multiples, Post Partum Depression and Tinnitus Support Groups.

Visit my Jewelry Store at:
http://careenscreations.com/
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05/11/2008 13:49
spectrummum
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It will not happen over night hun.

And basically we are alone dispite having online groups,family,friends ulltamatley it is us in the end and it is hard.

we help each other,we gather strength and knowledge from each other and we learn from each other eventually we can over come anything,why,because we are the only ones who can.

welcome to the autistic spectrum ,sit back and enjoy the ride lol

shellxxx

http://groups.msn.com/AutismAndAspergersInTheFamily
MY OWN PERSONEL SUPPORT GROUP FOR PARENTS AND CARERS OF CHILDREN WITH ASD OR RELATED DISORDER ALL WELCOME
My personel support group
My support forum for adults on the autistic spectrum
http://groups.msn.com/AspergersAdults

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05/11/2008 18:08
KerriBear
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Heidi, I can totally relate to you! Before I even had my son I have struggled with depression! Then when I realized that there was something not right about my son my depression got worse. I look at parents who have normal kids all the time and just think that they do not know how lucky they are. I love my son with all of my heart and I want nothing more in the entire world for him to be able to grow up and lead a normal life! I still have hope that he might! I will never let go of that hope! Just love your daughter, maybe someday doctors will learn more about autism. If anything it is harder for me to watch my husband live in denial. Sometimes I feel like we are looking at our son through different eyes! Hang with there, and don't ever give up hope!
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