heartfeltcompassion
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Hello! I'm still very new at this group...... I joined because I have had nobody in my life who I could talk to about my Son. It is truly rare to find anyone with perfectly "normal" kids who feel the pain that you feel. I have to say that my son brings tears to my eyes almost every night. Nobody can imagine the spectrum of emotions a parent feels over the course of a day. Accepting the hugs,kisses & love from your little baby, but then the next minute dealing with a child who is hitting you, banging his head on the floor, screaming, tantruming...etc. It's like this all of the time. I don't know how to deal with my emotions....sometimes I flip out, and sometimes I just don't want to feel anythng...I just space out. Not only the day to day living & the treatments, but thinking about the future. What does the future hold for him? I will take care of him 'til the day I die, but what happens after that? Who will make sure he's all right?Who will stick up for him? I keep reading posts saying that it's a lifelong disability....and I just can't deal with that!!!! I need to believe that there will be something that brings him out of this! Maybe that's why I'm having such emotional anguish.....I want to believe that I will wake up one day & my son will be cured, and free of this dreaded life sentence. I hope there's someone out there who understands .....I could go on and on. I just needed to get this off my chest. Does anyone out there pray? Can we start a prayer chain? I feel like God is the best medicine.....the only hope. Please let me know if you would like to set up some kind of hour of prayer, either nightly, or weekly or something..... Thanks so much! God Bless! -from CT |
