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05/20/2008 07:40
llmorrow75
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Hi,

My eight year old son was recently diagnosed with Autism. I hear all of these stories about vaccines, and I don't discount them at all. I feel that this may be the case for some people. However, I do not feel that this applies to our situation. I saw on the news that they are looking into misdiagnosis of Autism in kids that have seizures but don't show signs of it. I still don't think this is us. I do know that Trae was only four pounds when he was born. When he couldn't sit up in a shopping cart at almost six months old, I took him to see a neurologist. The neurologist was grim. He told me that most likely Trae had cerebral palsey. He couldn't tell me if my little guy would ever sit up or walk at all, he just couldn't diagnose for sure at this age.... thank God, Trae did walk, run, and rides bikes like a maniac. As he finally hit milestones, they chalked it up to him just being a preemie. Then, especially once he started school, his frustration started, he never made eye contact, spoke, but inappropriately. He was finally diagnosed a few months ago. I still feel like this is really neurologically connected with my son. Sorry to make it so drawn out, but was wondering if anyone else has had similar experiences....

Thanks so much!

Lindsey

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05/20/2008 08:15
lamb

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hello llmorrow75:

Sorry to hear about your diagnosis but how comfortable do you feel with it or the doc? In the 10 years I have beeen dealing with this I have never heard of an older child having these types of regressive behaviors;however my son is now starting to show some of these again at his age. I thought I was imaging this but maybe I am not. Getting back to you---if you are at the beginning of all this-get yourself to the nearest large metropolitian hospital that specializes in children and have a full neuroligical workup,pysch evaluation and autism screening. It has beeen my experience that you should start with the big city hospitals first,even if it means exstensive travel then work backwards(if you can) to those who can help locally.I wish we had done this at the beginning, but of course, as everyone feels, we are all wondering in the dark. I don't know where you are from ,but on the east coast of the usa Kennedy Kreegier Institute in Baltimore Maryland has beeen great for us. It is one of the premiere autism and

neurological centers. It think there is one in Houston Texas,also.

Anything else I can help you with?

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05/20/2008 13:31
llmorrow75
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Thanks for your response... We do live in a small, not quite suburb outside of Des Moines, IA. My son has to see therapists 45 minutes away. They are also very scarce around here, and the waiting lists are awful. It is very difficult, and I don't know the doctor, but when I see the symptoms, running away, hand flapping, lack of eye contact, inappropriate conversing... He definately fits into Autism. However, instead of being detached, he is very attached. He will talk to strangers, hug strangers, get into other people's face in an intimidating way. He can talk and even carry on conversations... when he wants to... it may not be the same thing you are talking about, but he talks. He also has breakdowns that last for hours at a time. When he gets this frustrated, he truly cannot speak, which makes him even madder. I am looking into where I can take him. I see so much potential, but yet, this is definately holding him back seriously. I will look into hospitals. I suppose ours would be Iowa City.. Anyhow, that was great advice, I appreciate it.

Lindsey

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