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05/20/2008 07:38
llmorrow75
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Hi,

My eight year old son was recently diagnosed with Autism. I hear all of these stories about vaccines, and I don't discount them at all. I feel that this may be the case for some people. However, I do not feel that this applies to our situation. I saw on the news that they are looking into misdiagnosis of Autism in kids that have seizures but don't show signs of it. I still don't think this is us. I do know that Trae was only four pounds when he was born. When he couldn't sit up in a shopping cart at almost six months old, I took him to see a neurologist. The neurologist was grim. He told me that most likely Trae had cerebral palsey. He couldn't tell me if my little guy would ever sit up or walk at all, he just couldn't diagnose for sure at this age.... thank God, Trae did walk, run, and rides bikes like a maniac. As he finally hit milestones, they chalked it up to him just being a preemie. Then, especially once he started school, his frustration started, he never made eye contact, spoke, but inappropriately. He was finally diagnosed a few months ago. I still feel like this is really neurologically connected with my son. Sorry to make it so drawn out, but was wondering if anyone else has had similar experiences....

Thanks so much!

Lindsey

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05/20/2008 08:48
spectrummum
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Autism in all its forms is neurological regardless of suspected causes.
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05/20/2008 13:34
llmorrow75
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Thank you. My son's doctors have not been very good at telling me these things, and I have researched myself, but had never heard of neurological treatments, I guess that is what I should have said. Even after he was diagnosed with Autism, the doctors never felt obligated to tell me that running away was a symptom (for lack of a better word) of Autism. They continued to let me believe that his running away was isolated and my fault.

thanks

Lindsey

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05/20/2008 13:42
spectrummum
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They were very wrong to blame you.

It is not running away it is simply a need to be by self.

i used to "run away" or rather in my eyes get away from everyone.It is not anybodys fault the need for isolation is somtimes so overwhelming it hurts.

we need a safe haven where we can go just to be.

to let our senses explode and just wallow in the sensory playground of our minds.

nothing is diliberate nothing is meant to cause pain.

shell

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05/20/2008 14:06
hbudnik
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How well do you like your son's doctors? Shell is right - it's not your fault, and the doctors shouldn't let you feel that it is. If you love your doctors, then by all means, stay with them. But recognize that with autism, the parents need to be supported along with the child. It will not be your son who is responsible for his treatment - it will be you! And a good doctor will acknowledge this. (Or at the very least, not make you feel bad!) Don't be afraid to speak up if you're not getting the support that you need from any of your son's physicians, and if you need to switch doctors to get it, don't feel bad about it.

Heather


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05/20/2008 14:23
llmorrow75
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Thanks Heather,

I don't like the doctor very much... well, we don't really know him. My son goes to an office 45 minutes away from our suburbian town. It probably has thirty therapists and only one doctor that can prescribe meds. He is on overload, and doesn't believe in any type of "unconventional" treatments like diet and other things like that. He did get behind the Autism service dog we are getting once the place found out they would be on the news about the dog. We really don't have a lot of options. I am a single mother of three, and have never left Iowa or my family. I am seriously considering it for my son, even though the thought is terrifying for me.

Thanks for your kind words,

Lindsey

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05/20/2008 14:29
spectrummum
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As a person with autism I also do not agree with unconventional treatments diet,chelation,shock therapy or any other invasive method of which a normal thinking person has though up.All these newer therapies have not been introduced by an autisic but a normal thinking person and that cannot be good.with some we may has well try voodoo as to the effect they have.I have hd many many unconventional therapies in my life and not one of them worked .

shell

Post edited by: spectrummum, at: 05/20/2008 16:30

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05/20/2008 14:53
llmorrow75
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Hi Shell,

I really was talking more like diet and the service dog. I wouldn't even consider something like shock therapy! I am just saying I am open to trying a change in diet and the service dog as opposed to the Risperdahl that is causing him to gain so much weight, which certainly can't be healthy. Just wanted to clarify that I don't believe in invasive therapies, but rather would be open to do non invasive methods like diet and the service dog, as I don't really see what those could hurt.

Lindsey

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05/20/2008 15:00
spectrummum
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shock therapy is not nice believe me,and yes it still goes on today.My treatments were in the late 70s early eighties and I have never recovered from them.

I was not implying anything bad from you i was just saying what neuro therapy actually is about.

I did not wish to cause offence and if I did I do apologise

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05/20/2008 15:15
llmorrow75
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You didn't, but that is why I am asking. I don't know what it is. You're right I know nothing about what has this grip on my son, and there is nothing in my area, or no one to help me. The only other family I know that have children with Autism live twenty miles away and they homeschool their six kids that are on the spectrum. They swear by diet. I don't know.... I don't know what to do for him Shell, and this is the problem. Of course I am a Criminology student as well as a sociology minor. I know all about shock therapy and the effects and after effects not personally, but what I have read. I would never consider shock therapy... but I guess like everyone else, this is my baby and I just want to "fix" him. I know this is not possible, but I am still getting used to this whole idea. I thought ADHD or something... Autism had never occured to me. Like a lot of people here, I am frustrated, tired, and sick of fighting all of the time, yet this is MY CHILD. I will not give up on him, no matter how many here already have. Sorry about the emotion in this post, but I am just trying to let this all sink in. Then to top it all off. My son is eight years old. Not much of an early intervention. That is what I needed to know. Neurological therapy would mean shock therapy, and you are absolutely right, I don't want anything to do with it....

I guess that means it's back to the drawing board and the next idea, oh well.

Thanks, I appreciate you letting me know what it is all about so that now I know.

Lindsey

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