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05/03/2008 11:14
Mick2g0
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My son is autistic. He is nearly 8. He talks mostly only in echoalia, mimicking TV. The words are really just "close sounding" not prounounced correctly mostly. He says some things like "What do you want?" (When he wants something) or he says "I want juice." Stuff like that. He still wears diapers without any real hope on the horizon it seems. He occasionally gets extermely violent. Today I had to lock my two older children in their rooms, while I did my best to restrain him.

I consider him "severe". That is my question. Would you consider my 8 year old to be severely impared according to this information? I am very worried about the safety of others in my home.

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05/03/2008 11:46
spectrummum
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My five year old is non verbal he is very aggresive towrads us and himself,.

many autistic children get You and I mixed up,i find it best to say to my boy "Iwant juice" "I want crisp" the he knows he has to point to I want text,they then understand the differance between you and I

Because we normaly ask "do YOU want drink"they echo just that.

he sounds about right for a child on the lower functioning end ,but you must not lock the others away for his behaviour he then knows he has you by himself and that meltdowns means the others go away.

divertion often works fr my children or total ignorance(take away or move him to somewhere safe sit with him (singing,humming etc) untill it passes.I know how hard it is to get the you know what kicked out of you but it is sheer frustration and a way og gaining control,the need to be in control for all children and adults myself included is paramount in daily life.and it seems to me he uses this behaviour to gain control of you so you will have to intervene,and restaint will often feel nice.

I loved being restrained when I was young the sqeezing pressure felt good,so perhaps he is doing for the squeeze sensation and meltdowns are the way to get it

shell

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05/03/2008 19:35
MotherofBoys
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Although my lower functioning son is a bit more social and has a bit more understanding, I know what you are talking about.

The echoing is enough to drive one insane sometimes (simply because you do not know if they are copying or trying to communicate with you).

We went to asking our son "Show me". If he doesn't get up and go somewhere, we know he is echoing. If he gets up, he takes us to whatever it is that he is trying to communicate.

He also has an aggressive issue.

I agree with Shell, do not lock your other children in their room. Not only does it teach your 8 year old that he has power over you and his siblings, but his siblings are going to wonder why they are being punished for his behavior.

Allow the other children to go on about their business and take your 8 year old to the bedroom where it is quiet and just the two of you.

In the case of our son, not only does he love the pressure of big "bear hugs" but he likes the darkness and the quiet. It helps him to put all of his emotions back "into sorts".

You have to find out what works for your 8 year old without negatively impacting your other children (not that you intend to do that, just that they are going to be feeling that way).

I hope that this helps.

MoB


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05/04/2008 15:49
hbudnik
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Have you tried using pictures? My son used to get very aggressive, and we finally figured out that some of it was his frustration at trying to communicate with us. We started using a modified PECS system. (Sorry, I don't remember what PECS stands for.) We got a magnetic board and took pictures of objects (foods, favorite toys, videos, his bed, etc.) and then mounted them on magnets. When he needed something and couldn't find the words to express himself, he would go to the board and get the right picture. His behavior changed dramatically after giving him this tool; things weren't perfect, but there was some improvement.

Like your son, he also likes the squeezing and pressure from hugs, or even from being tightly wrapped in a blanket. He also loved swimming and being in the water. It doesn't provide as much pressure as a hug or a blanket, but all that water does provide a bit of resistance over his whole body and it seems to calm him down.

Good luck - hope you find something that works!


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05/04/2008 15:55
spectrummum
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The Picture Exchange Communication System (PECS) is an augmentative communication system developed to help individuals quickly acquire a functional means of communication (Bondy and Frost, 1994). PECS is appropriate for individuals who do not use speech or who may speak with limited effectiveness: those who have articulation or motor planning difficulties, limited communicative partners, lack of initiative in communication, etc.

In my experience, PECS has a number of advantages over other methods of addressing communication:

Each exchange is clearly intentional and readily understood. When a child hands you a picture or sentence strip, the request or comment is quickly determined. The child is given an effective avenue for swiftly and easily meeting his needs.

From the start, communication is initiated by the child. Children are not drilled in rote responses to specific phrases or instructions, rather they are encouraged to independently seek out communication partners in naturally occurring settings.

Communication is meaningful and highly motivating. Reinforcement for communication is natural and strongly rewarding.

Materials are cheap, easy to prepare, and portable. A PECS symbol can be as simple as a hand-drawn picture, or a snapshot.

With PECS, the child has an essentially unlimited pool of potential communicative partners. Anyone willing to accept a picture is available, not just those who understand sign language or who are familiar enough with the child to understand him despite his articulation or motor planning difficulties. Children are able to generalize communication to a wide circle of people very quickly.

I know that the decision between PECS and sign language as an augmentative means of communication is often a source of concern for people dealing with non-verbal individuals or those with very limited verbal ability. Personally, I love the concrete and consistent visual nature of PECS and the fact that it doesn't require the more difficult motor planning that many signs do. I like, too, that PECS symbols are often very quickly acquired, and that they can be rapidly generalized across many aspects of the child's life, without having to teach staff, family, and peers a number of signs along with the child. However, while there is little to support the idea that PECS (when done correctly) will impede development of speech, and in fact there is some evidence that the use of such systems enhances the development of speech (Silverman, 1996), the theory among some is that sign may be more effective in developing speech. The thought is that sign, like speech, is a topographic form of communication (a form wherein each word requires a different behavior, specifically a difference in muscle use, be it the muscles of the hands and arms, or of the lips, mouth, and tongue), whereas picture exchange is a selection-based communication system (where a single set of behaviors, selecting and exchanging, is necessary). The more complex, topographical nature of sign may lead more naturally to speech than the use of PECS. I haven't the background to speak on this point much further, however.

When the team that works with a child has decided that a picture exchange system would be an appropriate means of augmentative communication, it is important that the child have access to and be successful with that means of communication throughout his day. The child should have his pictures available to him at home, on the bus, at school, at friends' houses, out in the community, everywhere he might be. Of course, you may use a smaller, more limited picture book at grandma and grandpa's house than at school, but the child should still have access to those pictures which are applicable to each situation, so communication is not just an "at home" or "at school" thing.

The Phases of Picture Exchange

There are typically six phases through which one moves when teaching a child to use a picture exchange system. While these phases should be approached and taught sequentially, there may be times when a student is working on two or more phases simultaneously. For example, if the child is discriminating between a fairly large number of pictures pretty well (Phase III), you may well want begin work on Phase IV and begin teaching sentence structure with the symbols. You can do this while still working on Phase III, trying to increase the child's discrimination skill.

The first lesson we want to teach in the PECS program is to spontaneously request items or activities. To do this we first need to identify what exactly the individual wants, those things for which he would be willing to make a request. As soon as I can get it converted into a PDF file, I will include here a vocabulary selection worksheet to help guide a team through this initial stage of a PECS program.

This first phase usually requires two teachers or family members to work with the child. The first adult (the person with whom we want the child to address most of her first requests) entices the child with an object that she really likes. The role of the second adult is to stay behind the student and wait for her to reach for the item, and then to physically assist the child to pick up the picture of that item and hand it to the first adult. When the first adult receives the picture, he immediately gives the child the reward, along with an appropriate comment (e.g. "Oh, you want a raisin!"). As soon as possible, the physical assistance from the second adult should be faded out until the child is exchanging a picture for the item independently with the first adult.

Because the goal is for the child to initiate communication, for him to ask spontaneously and not simply respond to our requests, we as teachers and parents need to resist the urge to ask, "What do you want?" or to use other verbal prompts. We want the child, from the start, to seek us out.

Once the child can reliably exchange a single picture, independently making a request of a single adult for a very rewarding object, the move is made into the second phase of the process. The child now is encouraged to use greater spontaneity and persistence, and to generalize the skill he has acquired. The child continues to request very motivating items or activities, only now he is required to move a longer distance to get to a communication partner or to get to the picture. He also begins to make requests in settings different from that in which he was taught the initial phase (different rooms, at the park, at the store, etc.), and with a variety of different people (parents, grandparents, teachers, siblings, schoolmates).

The child also begins expanding his vocabulary of symbols, requesting different reinforcing objects or activities. He is still encountering only one symbol on a board at any one time, however.

In the third phase of the PECS system, we begin to ask the child to discriminate between a number of items on a board, making choices as to what items she may want, or activities she may want to try. The child begins by answering forms of the question, "What do you want?" but these are faded quickly so the child will make choices spontaneously as well as in response to a question. If discrimination is a new skill for the child, one should begin with a very small array, usually just two items. As the child becomes more comfortable with discriminations, a third item can be added, and so on, until the child is quickly and comfortably finding objects from a large array of pictures (maybe several pages with a dozen pictures on each page).

Once the child is easily discriminating between and making requests for a variety of items, to a variety of people, and in a variety of environments, the program begins to focus on sentence structure. The child is taught to use sentence strips to make longer requests. The child will start combining a picture for "I want" with a picture of the requested item or activity. The two pictures will be attached to a sentence strip and the entire strip would be exchanged with the communicative partner for the pictured item or activity.

The fifth and sixth phases occur at the same time, focusing on different extensions of the child's skill with picture exchange. The fifth phase extends the sentence structure begun in Phase IV. Adjectives and other words can be added to the child's repertoire to help her further refine her requests. For example, she could move from " I want candy," to "I want three green candies."

The sixth phase of a PECS system is a fundamental shift in the child's communication and the expected outcome from the teachers or peers. Through the use of pictures for "I see," "I hear," "I feel," "I smell," etc. the child will be taught to comment on elements of his environment

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