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My Son's Weight Gain



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04/16/2008 05:41
RJ2003
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Thank you very much for all that information on the meds. It makes me scared though, should I try to ween him off them? Of course by his doctor,I feel so lost right now I could cry.
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04/16/2008 08:38
spectrummum
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Nobody can make that choice for you my friend ,you have to way up the pros and cons and see which comes out. I only have my opinion and cannot speak for you.

But has an autistic child myself I could not dream of putting my children on any meds unless there life was in danger without them,there are other ways of dealing with our kids and doctors should not be so quick in prescribibing them.after all there is no drug for behaviour in autism the meds given are for behaviours with other disorders luckilly sometimes they work for autism.

meds do work for some but others it does not i can not tell you to stop the meds that ultimatly has to be between you and your family.

you could do a trial period off them and see how it goes if it is no better look at alternative therapies when we vross that bridge I can help with programmes.

shell

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04/16/2008 08:44
RJ2003
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Thanks Shell for the advise, like I said I will be talking to his Doctor tomorrow and decide what we are going to do. I will be sure to tell you what she said.

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04/16/2008 08:49
spectrummum
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good luck hun
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04/17/2008 08:20
kari
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Hi I am new to the site, I have a daughter with autism who is 5 and I have been through a lot with her. She at one time was very aggressive and would become violent. I have been to several universities in chicago to now getting into the U of M. Medication was recommended at one point for her distress. I was told why put her through that. I was against medicine cause I have seen first hand the effects even though I did consider what she said. I thought, I really didn't want to do that. I told myself I will give it time and try any other way or method or therapy first. As time went by her aggression, like hitting etc... got better. I found behavior therapy wasn't good for her but that sensory based therapy worked a lot better. pictures work well and as they grow their communication gets better too which I think helps. I changed her diet and environment and just tried different approaches. It worked, weather she passed that stage or what, but it got better. She no longer hits or pulls my hair or hits herself etc... she still has some overwhelming episodes but nothing like before. I think its part of them not being able to communicate and not approaching what works for them. For example: I have a niece who was diagnosed with adhd and was put on all kinds of different medicine. One would make her bounce off the walls while the other would make her like a zombie etc.. They finally got fed up and quit all the meds and took her to stress management and you wouldn't even know she ever had it till this day and she is grown now. Its a long hard road and no one really helps, especially doctors. Its all left on you, I know first hand. It seems like stages with kids in general, you get through one and then a new one approaches. Its just finding what works through each one. Here is another thing that always got to me. My daughter had used a pacifier for a very long time but only needed it to comfort her at stressful times. Now they were very against that saying it was bad for her teeth and its just not right. Now instead they would rather give her a pill that has a lot worse side affects then a pacifier. I have seen kids who had pacifiers for a long time and their teeth were just fine and others who didn't ever take one and their teeth were really bad so I question some of it. But either way look at people, what do they do when they are overwhelmed, have a cig, have a drink, take a pill? I guess thats the answer but the pacifier is bad. I think we all should have a pacifier LOL on hand lol. anyway the pacifier worked for her, maybe for another child sucking his thumb or a blanket, or toy etc... My daughter also finds comfort in my pony tale which I now and have been for years wear 24 hrs a day and 7 days a weeks lol but it too works. I hope you find what works for yours. Mine is a pacifier, pony tale, sensory based therapy, pictures and food and environment and different approaches. Also because of her sensory, jumping is an extreme need so I have a big therapy ball and a trampoline (special low design) in my house for her. well I don't know if any of this helps but I just thought I would share my experience.
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04/17/2008 08:57
spectrummum
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Firstly welcome,I am shell mum of 6 our with autism I also have Aspergers syndrome.

second we are open to any ideas bot giving and taking .

shell

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04/17/2008 11:48
RJ2003
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Kari,

Thank you very much for all of that information! It was a lot of information that we have tried and we will continue to try. I went to his doctor today and we both decided that this medication is not going to work either. she said all he is going to do is keep gaining the weight. When it comes to his diet he has a lot of anxiety about food so it's very hard to introduce new foods to him. He just started a new school, I tried the public schools and he just needed more structure in a private school just for children with Autism. So maybe this will be a good time to ween him off the Abilify, seeing he is in a new school and enviroment. I eager to find out how things will be hopefully he wont' get worse.



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04/17/2008 11:51
RJ2003
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Hello Shell,

Well I went to the doctor's today and we decided to ween him off the Abilify and see how he does. She said it obviouly is not working and he is just going to continue to gain weight. I was happy that she agreed to how I felt. Hopefully it will be a smooth transition. I will keep you post!

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04/17/2008 13:10
spectrummum
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Hi hun

I am so glad you feel better,and I am glad you decided to ween him off for now.

It is all trial and error my friend noone knows how something will work until they try.

Im here whatever the problem at whatever time I am an aspie after all (no sleep lol),we can sort out anything once we think.

shell

http://groups.msn.com/AutismAndAspergersInTheFamily
MY OWN PERSONEL SUPPORT GROUP FOR PARENTS AND CARERS OF CHILDREN WITH ASD OR RELATED DISORDER ALL WELCOME
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04/17/2008 15:51
RJ2003
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Thank you Shell,

It's always nice to know there is someone I can go to for advice. This spectrum is so large that it's always nice to get an new prospective from someone else. Everyone has had different outcomes from using different techniques hopefully I will find one for my son.

Janet

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