sylvie
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Hi, thanks for sharing.My son is 13 and never sleeps. We tried meds (and I am not even that into the meds thing, too over protective, heard to many stories) but I did not want him to suffer and to eliviate that, yeah, we tried meds, they did not work. I have tried rubbing his back softly to bed, soft classical music, prayer, reading to him, ETC .,,,,all these things worked but only a limited time. I am so concerned about my child when he tells me night after night he stood up and saw the sun rise.I can't even sleep knowing he did not sleep.What causes this in our kids? is it the anxiety? because my son has alot of anxiety. I cry because I have anxiety too but he is a baby and it must be horrible to have to face that not knowing what's going on in your body. He is so handsome and so smart but always puts himself down when he cant sleep saying "What's wrong with me?"....I just say nothing, your awesome! your just brighter than most people (which is true for our kids with AS) and hug him alot.What causes this insominia? if anyone knows, please share. What else helps your kids? I am starting to think it is a mere wall of their constant "Worry".... I can say--It use to be back 2 years ago at our old house when my son was at his old school district, teachers and staff there were so mean to him and they treated him so unfair in his AS. They did not understand he could not medically control alot of the things medically and they wanted to punish him for medical stuff. Ofcourse I went foward and took that whole district to the state and my son won his case. They got in alot of trouble with the state and then we finally moved (Thank God). When we got to our new school and district they were soooo different! they were kind, fair and ethical. The staff and teachers welcomed him and the teacher tried to get to know him and work with his challenges individually & medically rather than try to punish him for them. My son started sleeping better faster I noticed. He used to hate school and feared it and it was awful because it was all just because of that old school and now with his new-better school, he loves school!!!! and his grades jumped to top notch A's too showing it. He is never late -nor ever absent, has perfect attendence. Even when he does not sleep still some nights currently, he pushes himself to wake up on time for school because he loves it more now & knows he is now in an enviroment he can respect and vise versa. He's never late-I dont know how he does it on 2 hrs a sleep. I say this because I am a parent that takes no crap from the school district when it comes to advocating my sons rights. I am mommy tiger all the way, we all have to be. I am always respectful, always a lady, always calm and peceful but always a mother tiger too when I feel they have stepped on his toes. We have to be as AS moms....no one else will if we dont. The problem I see lmost is every AS parent I have ever met in my life has had trouble with the school! it is extremely common and it does not have to be. I beleive everything is possible with clear comunication and the schools need that bad!!!. I have had the school & district tell me to my face that they freely admit that they don't understand kids with AS and my advise to them is that they better learn quick because AS is sadly on the rise. I am sickened that the state does not mandate the education system to fully educate all employees working in the school system and district, inc teachers and principals, fully about AS and all the common health challenges concerning our kids.It should be part of our taxes already for all we pay and it should not be our problem...we already have enough on our plate helping our kids as it is, it's tough and if they can do this to help our kids then why haven't they?. Also, They have their clan of administration, its about time we parents of kids with AS have ours! we need to ban together in unity and have congress pass more bills for our kids and we need to educate our educators!. We also need more support allies of more legal teams to assist us in legal ways in our IEP's than we have now.I learned it is a matter of "How much you know" about your child's rights. For months the school got away with it until I did my homework and learned, after that, they use to stand up firm and straight when I walked in the room. All parents and all children deserve full respect and it should never have to come down to a IEP or fued to get it. I am high on peace, I conduct all my business peacefully and professionally and always ethically but we as parents need to educate our educators. There's too many parents out there struggling with schools trying to make them feel bad for things they or they're kids "can't" control and it's got to stop now. Anyway, I just thought I'd throw that in since we are talking about what causes insomnia, I think it's stress....worry, our kids worry. They already have alot ot worry about with the bullys at school and the kids who are "MIS-UNDERSTANDING" them, the peer presure ---they dont need to feel this way by teachers & principals too. School should be a safe haven, teachers are not doctors, no, but they are certainly mentors!!!!!!!!! and should always conduct themselves as so -as well as all the school staff, inc principals, superintendents and teachers. I can say my son's insomnia is getting better since we changed school districts but not all gone. I will except even getting better though.... I just want him to sleep and be happy always, we all want that for our kids. Our kids are the most beautiful things in our lives...it is always great when us parents can join together in unity to try to eleviate their stress and find wys to help them cope. they are "all" so very, very "beautiful" and deserve nothing less than the best and sheer excellence~ Post edited by: sylvie, at: 07/10/2008 11:33 Post edited by: sylvie, at: 07/10/2008 11:34 Post edited by: sylvie, at: 07/10/2008 11:48 |
