Autism Support Group

Hi everyone. I know I haven't been around for awhile but I'm going through some really tough times emotionally. A few weeks ago I was diagnosed with having mild seizures and the doctor still hasn't given me a prescription for the medication he said he was putting me on. Secondly, my 4 year old autistic son has been having several episodes of quick staring or eye fluttering spells approx 40-50 times a day and is becoming increasingly more aggressive and destructive. He has a history of seizures since birth. He had a 24 hour EEG/Video done 10/29-10/30 and they just finally read the test 5 weeks later (Yes his nuerologist was furious). The results finally in showed that within a 20 hour period, he had 10 mini seizures. and they are trying to tell me that this would have no effect whatsover on his behavior that it has to be something else. He also has Chiari Type I malformation of the brain and they said that (even though I know some people and a friend of mine's son has gone through the same thing) the behavior would not be related to that either nor the increasing frequency and severitiy of his headaches and fits lasting 2-3 hours in length that sometimes, because they are so severe, send him into a seizure, and gets very aggressive following.

Currently I'm in a more severe dilemma. Because of my 4 year old's aggressivenes and destruction. CYF is involved. He constantly scratches (gouges) his 6 year old brother and bites him and leaves severe bruises and breaks the skin (this is even through a shirt or pants). He is also now starting to kick his one year old sister off of the bed or couch and tries to do CPR on her. On Sunday during the Steeler game Corey got extremly out of hand throwing things and breaking things, blowing a whistle in daddy's ear incessently then when he poked him in the eye with the whistle he went to bite daddy and daddy had his mouth open and ended up biting him. Now he is not allowed in the house if just me and the kids at home or we lose all 3 kids. He is allowed here when our Every Child rep is here. This is only supposed to be temporary, but for how long? But how do you tell your kids that their daddy won't be here for them for Christmas? Every day the 2 boys keep asking where's daddy, when's he coming home? Lexie, the baby keeps looking around saying daddy and looks at you like she's asking where he is. I am in such a state of shock right now and it's hard trying to hold it together and be strong for the kids. I'm lost and don't know where to go or what to do. I am so scared and lost right now. Help!!!

Hi hun

you have been having a hard time

seizures are controllable hun perhaps it should be looked at again and meds changed.

Aggression is a problem that needs addressing pecs are good when a child is in mid meltdown distraction also works.I know when i was small i used to love people crying the faces they pulled the sounds they made and above all the tar that fell i enjoyed an angry voice mostly because it tickled my ears.Hitting people gets that reaction no mattr if it is negative or not the rise is got.When he is aggressive either show a picture card or get to his level and say "no hurting" be nice,take him away from the scene each time it happens again short and sharp and take him away from the situation.

It seems to me that the boys cases need reviewing and diagnosis's changed.

shell xx

ps

glad to see you hun

Post edited by: spectrummum, at: 12/03/2008 06:40

Hello Tartrr, I am so sorry for what you are going through right now. Can you see if CYI can appoint one of the grandparents as a supervisor for visits on Christmas? If the children do not have grandparents that live close see if they will appoint someone else (family member of friend) that can serve as a supervisor for the holidays. I do agree with Shell, check with your doctor to see if there may be something else going on. Does he have a behavior therapist? If not check into seeing if he would quailify for one.

Post edited by: MawBear, at: 12/03/2008 09:06

I've asked about a behavior specialist for Corey, but like everything else, it's like the doctor's don't want to listen. I told them for months that the eye fluttering weren't ticks that they were seizures, but they kept saying no and look what the test results came back 10 mini seizures within a 20 hour period. I also told them that I feel this may be affecting his behavior but they keep saying that it wouldn't affect his behavior.

Just found out last night after I got home that my husband (I told him to find out what his diagnosis was because he couldn't remember what it was when he wsa told 2 weeks ago) hsa been diagnosed with Tourette's Disorder. That could explain a lot that's been happening. He just started taking meds 2 weeks ago. I'm wondering if Corey might have it also because he has a lot of the same mannerisms and behaviors that his father does (not including the autism) like the ticks, etc.

I was told by my CYF caseworker that he is not aloud in the house with the kids unless our rep Brian from Every Child Inc. is here under any circumstances or I will lose permanent custody of all 3 kids.

Just found out last night that my husband has been diagnosed with Tourette's Disorder. It could explain a lot. I'm not condoning what he's done, but there may be an underlying problem that may be causing this.

I'm wondering if Corey might have it also, with some of the signs and symptoms being masked by the autism because he has ticks and other mannerisms and behaviors just like his dad.

I would at least look into it hun

Differant interventions and meds will be needed.

shell