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Autism ForumsGeneral & SupportAffection and Emotions - I'm Scared...
11/19/2007 06:40 PM
atsumal
atsumal
 
Posts: 40
Member

I am so disheartened at all I've read about autism and the lack of affection children are able to express. Does my child not feel my love? Will he learn to hug , give and receive love? I just want to learn how to comfort him because he pulls away when I try to hug him, touch his forehead, talk gently. I just don't want him to feel all alone. Any responses and insight you can share will be immensely appreciated. Jenny from Boston.
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11/19/2007 07:48 PM  Top
alipotts
 
Posts: 4
New Member

I have worked with MANY kids on the specturm and they are all able to show love and emotions in different ways. I have had many meaningful connections with kids and I have been able to use my relationships with them to teach them social skills. The affection and emotion that I have witnessed has been different and unique to the child and different and unqiue from what "typical" children display. I believe that children on the specturm can still feel affection and emotion from those close to them, they just don't respond the way you might expect. Because of this, I think that when professional speak to a lack of social skill, lack of emotional connection, etc., they are refering to what society expects and has defined as "appopriate." Please continue to show your child affection. He hears you/feels you in his own way.

11/19/2007 07:50 PM  Top
Ahsan
Posts: 66
Member

Hay Jenny.I really know how you feel.I dont know how old your child is but I can tell you my son did the same things our time togeather were i sat in one spot he sat in another and we watched dvd's togeather that was our time for a long time.we were aware of each other I believe i really didnt try to bother him i did in the house what i had to do let him be himself and that was home.of course i was always aware of him.you know i could pretty much read him (most of the timeSmile i know now he was aware of me and what i was doing.even if it looked to me that he was doing nothing.There was awhile he would walk around the house w/a box on his head and that was hard to watch i was glad at the time we no longer had company I'll be real honst w/you.He is 7years w/ diaper and a small box on his head.But I let him be.Until one day while i was doing housework I relized what he was doing with the box and now i have a contract w/ a company showing a product,( really from him )at the pre toy fair,Euro and Asian shows as well The Toy fair it's self aka The American International Toy Show NY,Feb17/20 08. so wish us well.To answer your guestion yes he knows you love him he may not feel your love right now but feeling safe and at home that itself is a feeling of love and later he will blossem and the relactionship between the two of you will be beautiful and fun.My boys name is Ahsan meaning(Beautiful)SmileWill you tell me some more of you and your child?As well it's almost time for me to get going as i am at work and at the end of my work day.Hope to see you tomorrowSmile 4ishSmile...

Post edited by: Ahsan, at: 11/19/2007 21:53


11/19/2007 10:57 PM  Top
spectrummum

Children with aSD do have love ,but they show it diffarantly.

our kids are not made of stone.

Yes it is hard and heartbreaking but we must never give in

I have 4 with autism and i also have aspergers syndrome

all of my children show affection and lve in ther eown way

shell


11/20/2007 07:59 AM  Top
atsumal
atsumal
 
Posts: 40
Member

Thank you so much to everyone for all your responses. I am beginning to not feel alone. I haven't had the time to make it to support groups yet, so I relish this interaction. Shell, thank you for responding to ALL my postings as I begin this journey. You are amazing, full of wisdom and I thank you! Ahsan, thank you for your kind words and interest in my adventure. Read more below. Thank you alipots for your kindness and your insight. I often feel physical pain when I hear, read about "lack of social awareness, lack of affection"... I feel like you openned a window for me by the way you explain societies expectations. I am completely fine (almost) with my child being different, quirky, weird. I just couldn't even grasp the idea of him having no internal feelings of love, warmth, safety. Thank you all for helping me realize I don't need to think about that.

In a nutshell, H. is 15 months old and I feel so fortunate to have received the diagnosis so I am in process of getting services going. Takes so much time and energy. But I know it will pay off. Since going casein free/gluten free my son's head shaking has almost disappeared as well as hand flapping. He still incessantly spins anything. His eye contact is better, but lost all language. He doesn't recognize his name. He loves songs and tickles and dogs and of course the telephone. Our biggest troubles now are eating (we are on formula because he rejects everything except yogurt and cheese - which I took away). Tantrums are hard routinely, and he still zones out pushing objects around the room. Luckily he loves tickles and musical stuffed animals and stacking rings. I am so grateful for all we have gotten back. Thank you all for the hope you have given me. I've never done this online stuff but now I thank God it is here. Bye for now from Boston - Jenny


Previous discussions I participated in:
spinning and stimming
ANY MEMEBRS OF MY GROUP HERE

11/27/2007 01:38 AM  Top
MommaT
MommaT
 
Posts: 18
Member

Oh, hun, your post here completely reached in and pummelled my heart. I so remember where you are right now!! Yes! Yes! Your child feels your love, and he loves you more than you can realize. Just as with any other child, you are the center of his universe, he just can't show you that in the way that a "typically developing child" can.

Before I gush forever on the subject, I wanted to ask if you've heard of the LADDERS Program ... it's out in the boston area, and some of the most respected doctors working in the field of Autism work there. They provide advice and therapies and all kinds of resources. There are also communication enhancement services at Bostcon Hospital, that were IMMENSELY helpful to my son and our family when he was younger.

Ok ... back to love. Every child with Autism is different. On some level I sometimes feel grateful that I didn't get my son's diagnoses until later in his toddlerhood (in many others I'm definitely not happy about that, but in this one I am) I rarely put my son down as an infant, I even took him to college with me strapped to my chest. I remember the heartbreaking feeling of him pulling away from being held when I'd rock him to sleep at the night. It was the only time he rejected touch from me. It was because he was working out the stimulation of the day at the time when he was trying to find relaxation and sleep. But I never released him because of his struggles, I cradled him and held him until he fell asleep in my arms every night.

Now, I'm not suggesting tolerance training intensionally. Obviously, I had no idea that my son was in distress during those times, but I think that my behavior with him directly contributed to the fact that he has never had closeness or touch issues as he's gotten older.

At the root of physical withdrawals are physical oversensitivities. No matter what your child knows you love him. One of the therapies we used with my son when he was a toddler to help reduce some of his tactile oversensitivity were brushing techniques. I don't feel qualified at this point to describe them to you ... it's been many years. But my cousin has a son who is autistic and I'll be doing the research on it for them very soon ... I've already acquired the brushes for them. I'll pass it along to you if you are interested once I've dug it out of the file cabinets.

The best way you can show your love for your child is to engage with him in ways that you see make him happy. If he loves tickle ... make up tickle games that get increasingly more complicated ... like you have to get to a certain point in a song before the tickles come ... that way he is paying attention to you (especially your speech/song) for cues as to when the tickles get to him. If he likes to swing, instead of putting him in a mechanical swing, cradle him in your arms, or have him sit on your hands for a swing. If he loves water or bathtime, instead of touching him directly, push water to flow over him with your hands as though you were caressing him. Find the things that he enjoys and make yourself an integral part of them.

It can be very hard to understand emotionally that when our children pull away from us they aren't rejecting us or our love, they are reacting to a stimulation that is painful or uncomfortable to them. Think of it like someone drawing their fingernails over a chalkboard. A lot of people are made extremely uncomfortable by that sound. If every time someone touched you it made you have the same feeling that people get when someone runs their fingernails down the chalkboard, you'd avoid it too. Some kids that can't handle gentle touching love more firm "deep pressure"

My son used to sit at my feet while I was working (I used to tutor college students in my home) and grab my knees with his hands and squeeze them against the sides of his head. It was the oddest little ritual, but it comforted him, and it included me. I was a part of his world that could give him that comfort and nothing else could. He didn't press anything else against his head in that way. That was part of how he showed me he loved me back. Weird, I know ... but you'll see it.

You'll find little things over the years that make you know that you are completely and totally loved by your child, even though they were things you never expected to associate with love.

I know that it's just as hard to not feel like you are able to show your child your own love in the way we all as nurturing parents expect to. Holding, caressing, whispering, cuddling ... touch is a very intimate and loving connection that we instinctively expect to share with our children. Believe me when I tell you that it isn't an impossibility ... we just often have to learn different ways to touch, and finding ways of reducing our children's oversensitivities go a long long way to making that easier for us all to do.

Please feel free, again, to PM me or e-mail me. I too am from Massachussets, although my experience in the boston area is all surrounding my adventures with my son's diagnosis. I hope that I can be helpful to you in connecting you with people that can make a difference in your child's life ... or, if all you need is a friend to talk to, I'd be happy to be that too.

MommaT


11/28/2007 08:24 AM  Top
atsumal
atsumal
 
Posts: 40
Member

Thank you mommaT for all your insight and thoughtful responses. I am luckily already hooked up with Ladders and I agree they are wonderful. I am still trying hard to get all services set up. I think I definitely know instinctively that my son loves me very much. I just definitley felt physical pain whenever I read in a book the term lack of affection. It is truly a misnomer. I just had my first visit this week with an OT who suggested just what you talked to about a brushing program. She'll be bringing me more information next week on it. I am blessed with wonderful therapists who give me hope. I am anxious to get ABA started. I am desperate to see him look up when I call his name since that has not come back yet, as well as any communication skills. His only way of communicating now is tantrums, but his eye contact is great at times and everyone assures me that is wonderful because he is easier to engage than a child who has very little eye contact. Thank you again for your thoughtfulness, caring and concern and I look forward to future conversations. Thank you I will definitely keep using this site as a forum to ask questions. People are so wonderful and generous with their time to post such thoughtful responses. I definitely plan on being a resource myself for other moms and dads who face this diagnosis. I have never been so devastated , am amazed I am getting through it, and am eternally grateful to the love and kindness of so many people. Have a great Holiday season and looking forward to hearing from you again. all the best, Jenny

Previous discussions I participated in:
spinning and stimming
ANY MEMEBRS OF MY GROUP HERE
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