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Autism Online Support Group
A community of family members and friends dedicated to dealing with Autism, together.
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07/17/2008 01:52
Dinnysmum
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Hi, I have never joinded a group like this before, I don't know where to start! I would like to connect with some other people out there that deal with

ASD and the effects that has on the family. What kind of things do people generally talk about?


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07/17/2008 08:46
MotherofBoys
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Welcome Dinnysmum!!!!!!!!

I am a mother of 3 1/2 year old fraternal twin boys and a 1 1/2 year old boy. All of them are on the spectrum.

I think you will find the conversations quite diversified. Anything from different diets, to Autism Service Dogs, to medication, to school systems, Doctors, Therapy...........

Come on in and join any conversation you might find interesting. Or, start a thread of your own.

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ASD, Autism, Hearing Loss, Parenting Multiples, Post Partum Depression and Tinnitus Support Groups.

"I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living, it's a way of looking at life through the wrong end of a telescope and that enables you to laugh at life's realities."

--Dr Seuss


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07/17/2008 12:37
herding123
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Hi and welcome Dinnysmum!!! I think you will find this place to be very helpful and very open as well, so you shouldn't have to worry about subjects that you sometimes might be worried about asking about or embarrased as the people here I know are very accepting and very helpful!

You can also read through the threads that have already been started to find some answers as well on subjects even maybe you haven't thought of and to see what kind of answers to expect, etc.

I'm moderate-high functioning Autistic myself (although you can't tell through the typing) and I have an Autism Service Dog.

Ask away!!!!

Luv,

Kris

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07/17/2008 14:15
Dinnysmum
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Hi Kris,

My main reason for looking for some help to start with is that I think my hubby is also high functioning autistic. He hasn't been diagnosed but he has a lot of the traits of my son, things like lack of empathy and not being able to consentrate on two things at once and being stimulated unreasonably by noise and light. I know he won't go for help because he doesn't think there is anything wrong with him. The biggest problem is that although he is happy to give Dinny his medication he refuses to accept the problems that he has and won't treat him the way he needs to to get a positive result. Hubby believes it is not fair to the other three kids if he gets 'special' treatment! It is so frustrating because I make all this progress and in one foul swoop he undoes it. I really don't think anybody can help me but if anybody has been through a similar situation I would appreciate any suggestions

Jennie


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07/17/2008 15:45
herding123
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Hey Jennie,

Ohhh, I understand what you are seeking help with aside from your son. Well, it's interesting that a lot of kid's with Autism, sometimes when one parent has resemblances of Autism tendencies its usually statistically the father's. I would say that right now, I wouldn't push that point with dad that he might have it because if he is high functioning he is very high in many ways & wants to be seen as tough and all that stuff. HOWEVER, about the part about saying that it's not fair that your Autistic son gets 'special' treatment, I hear that quite a lot, but a lot of times more from school districts like teachers, etc. My suggestion is this: (ways to help look at it and maybe it will help him see it a diff. way)

1. A person with diabetes needs 'special' treatment so that their bodies can be normalized *can use diff. word for that normal thing, 'cuase whats really normal anyway?'*... A person would not say, "You can't have that snack right now 'cause all the other kids are not allowed to have their snack before dinner', because it is a medical condition. AUTISM IS A MEDICAL CONDITION... it includes the way that blood flows through the brain, the way the nerves are underneath the skin, the way the gut reacts to foods and how the system responds when it needs to use the bathroom, the way the balance control is in the brain and even the way the bones are positioned in some people with autism (especially boys) hence the odd gait. Therefore, he needs this treatment to be 'normalized'... It's not really special treatment, but treatment that NEEDS to be utilized to keep the person balanced like the other 3 kids already have. Your Autistic child then should have the same treatment - being able to be more 'normal' in all ways. If he isn't, then he is treating the other 3 kids with special treatment and your Autistic son is the one who isn't receiving the same amount, which he is just looking at from the opposite way. I HOPE THIS IS KINDA MAKING SENSE???? I'm Autistic so hard for me to write sometimes my thoughts and get them out right and say what I mean correctly. Maybe you could like read over that what I wrote and talk with him when he's in a good mood and sort of repeat what I said.

Don't hesitate to ask any questions.

Hugs and luv,

Kris

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07/17/2008 17:22
Dinnysmum
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Thanks Kris, Believe it or not I actually understood all that!! I think it is because I have learned to speak Autistic lol. I like how you said about reversing the 'special treatment' attitude I will give it a go and let you know if it works.

Jennie


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07/17/2008 18:48
herding123
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Hi Jennie!

Yeahy!!!!, LOL, yes maybe you learned to speak Autistic Even I was confused when writing it but understood what I was writing... lol. Yeah, the reversing the special treatment is what might really do the trick. Just remember rehearse it out first and also do when he's in good mood! Def. let me know.

Hugs and luv,

Kris

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07/17/2008 22:37
spectrummum
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welcome

I am shell(group leader) mum of 6 4 with autism,I also have Aspergers syndrome.

LOL we talk about all sorts.though autismof course is the main topic of converstaion.We have an off topic board if it not autism based.

welcome again

shell

MY SUPPORT FORUM FOR PARENTS AND CARERS OF CHILDREN WITH ASD
DIAGNOSED/UNDIAGNOSED
http://autismandaspergersinthefamily.freeforums.org/ index.php
MY ADULT AUTISM GROUP
http://aspergersadults.freeforums.org/index.php
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07/18/2008 00:18
Dinnysmum
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Thanks Shell,

I think it is going to be a bit tricky because I am in Australia and the timing is a bit off, but I don't mind waiting for a return post if you all don't!

Jennie


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07/19/2008 19:46
herding123
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Australia is pretty! And, has lots of amazing wildlife in parts of it... It def. is a time difference though. Who cares about the waiting as long as we can help each other

Hugs and luv,

Kris

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