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06/08/2008 07:39
DonnaN

I want to know how to help my son and daughter-in-law with the devastating diagnosis. Suggestions?
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06/08/2008 09:49
spectrummum
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Why do you think It is devastating,it is not a death sentance

I have four with autism and I also have Aspergers Syndrome (high functioning Autism)

what do you need to know and how can we help you.

I have a section for newly diagnosed on my group,you are welcome to go see for some ideas ,link is at the bottom of this message.

http://groups.msn.com/AutismAndAspergersInTheFamily/ justdiagnosed.msnw

shell

http://groups.msn.com/AutismAndAspergersInTheFamily
MY OWN((((AWARD))) winning PERSONEL SUPPORT GROUP FOR PARENTS AND CARERS OF CHILDREN WITH ASD OR RELATED DISORDER ALL WELCOME
My personel support group
My support forum for adults on the autistic spectrum
http://groups.msn.com/AspergersAdults

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06/08/2008 11:18
MotherofBoys
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Welcome to the group DonnaN.

The diagnosis of ASD is not devastating in any way shape or form. The diagnosis only means that your grandchild does not fit into the "cookie cutter" pattern of "normal".

Your grandson only sees the world in a different way. Feels the world in a different way and needs just as much love and attention as any other "normal" child would.

I have three sons and they are all on the spectrum. Yes, I was upset by the fact that the diagnosis meant that my children would not fit in my "coookie" shaped idea of what life would be like, for them.

However, nobody could pay me to replace them with an atypical child. I have learned so much from trying to see the world through their eyes and feel through their senses that I can appreciate life a whole lot more because I have them.

Please, can you be a little more specific in what you are needing?

Help us to help you.

Post edited by: MotherofBoys, at: 06/08/2008 11:23

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06/09/2008 04:02
spectrummum
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Mother of boys

xxxxxxxxxxxxxxxx

"cookie cutter" pattern of "normal".

http://groups.msn.com/AutismAndAspergersInTheFamily
MY OWN((((AWARD))) winning PERSONEL SUPPORT GROUP FOR PARENTS AND CARERS OF CHILDREN WITH ASD OR RELATED DISORDER ALL WELCOME
My personel support group
My support forum for adults on the autistic spectrum
http://groups.msn.com/AspergersAdults

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06/10/2008 21:35
jackandjennasmama
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Hi Donna,

Just be there for them!

It's hard. It's so hard.

Read about it. Search the internet.

Get involved with your grandson's therapies, school, groups, etc.

He needs you more than anything to just be there for him and be the best grammy you know how to be.

My mom had a really hard time believing that my son has Autism. She actually didn't know much about it, and I think that was the scariest part for her. She still doesn't fully understand.

Neither does my father who didn't understand why Jackson, my son, was getting occupational therapy at 3 when he can't even start working for 15 more years...HILARIOUS!

Just be there for your little man...My mom reads to him and will take him places just him and her. When he gets overwhelmed she'll put him on her lap and massage his hands and sing to him.

Remember, no matter what a child is diagnosed with, it does not change the love you feel for that child!


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06/11/2008 07:07
hbudnik
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I agree - the most important thing that you can do is to accept you grandchild and love him/her no matter what. Your grandchild is still the same child that you've always loved. Like the cookie-cutter analogy: Your grandchild's "cookie" may not look like everyone else's, but the dough is just as sweet!

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06/12/2008 04:22
jackandjennasmama
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hbudnik,

I've never heard that "cookie" saying before! That is sooo cute! I love it!




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