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3rd Annual Arthrogryposis Convention Columbus Ohio July 17-20 2008 www.amcsupport.org/ohio ohio@amcsupport.org Sponsored by Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) This event is FREE to all but everyone is responsible for their own travel, lodging and dining expenses. With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis Multiplex Congenita (AMC) must feel. Through the hard work of one mother's vision and an army of members, the AMC Support group has helped bridge the gap with the power of the internet. It is not only the group's mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information. But meeting on-line is not enough. It's hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conventions solidify that bridge and strengthen the bond of our AMC family. Once a year we come together, charge NO admission fee, bring professionals, doctors, physical therapists, occupational therapists, provide workshops and invite people throughout the world to learn, share, laugh, cry and grow. Convention Overview A Convention in Support of Families Affected by Arthrogryposis Multiplex Congentia. Target Audience: The target audience of this convention are parents and caregivers of children with AMC, adults with AMC, physicians, physical therapists, occupational therapists, early interventionists and any others interested in learning more about Arthrogryposis Multiplex Congenita. Purpose: The purpose of this convention is to increase awareness of AMC. Expand the knowledge of parents and professionals about this rare disorder. To provide families comfort, support and hope through other parent's journeys and through the encouraging life stories of Adults with Arthrogryposis. Objectives: To help children, teens and adults with Arthrogryposis reach their fullest potential through the education of parents, professionals and the public. Speakers/Workshops/Activities Dr. Harold Van Bosse- director for the Arthrogryposis Center at The Center for Children at The New York University Hospital for Bone and Joint Disease. Dr. Pappas and Ellen Moran- Genetics of New York University Rick Guidotti- Positive Exposure Photography- http://www.positiveexposure.org Tanya Fernandez - Adult with Arthrogryposis and disability advocate http://gcpd.ohio.gov/roster.asp#Fernandez Ward Foley- Adult with Arthrogryposis and published Author http://www.wardfoley.com/ Maureen Casey - IEP and Special Education-Parent of a child with AMC BBQ at Miracle League Field and Miracle Playground - Fully accessible baseball field and playground http://www.ohiomiracleleague.org/ Painting with Theresa- Hands on painting with Theresa Lucas-an artist with AMC http://www.hometown.aol.com/terry2745/index.html Canine Companions for Independence- assistance dogs for people with Disabilities http://cci.org/northcentral/index.html Steve Thompson- massage therapist who has treated his 7 year old son with AMC since birth Christina Battista- Cash and Counseling Heather Perrow- Adaptive Dance AMCSI BOD Public Meeting Columbus Mobility Specialist- http://www.columbusmobility.com/ MetDesk – Special Needs Trusts and Estate Planning http://www.metlife.com/Applications/Corporate/WPS/CDA/
PageGenerator/0,1674,P475, 00.html We are working on securing more speakers but we cannot release their names until they have confirmed their attendance and participation. Cost to Attend: This convention is free for anyone but registration is required! View pictures from our AMC Convention 2006 & 2007 http://www.amcsupport.org/convention2006.htm http://www.amcsupport.org/texas.htm Become a member of AMCSI http://www.amcsupport.org/member Join our message boards http://www.amcsupport.org/forum/ Chat with us http://www.amcsupport.org/chat First Thurs of every month 11am & 8pm EST |
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