http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/feed http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Sun, 19 May 2013 23:07:57 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/10391882-im-new-here-and-i-have-amc#10391882 Greetings everyone I'm R.J. and I have AMC, I'm 25. I was told a long time ago that I had a very rare type of AMC but honestly I wouldn't know. All four of my limbs were affected as well as my spine. This is my very first time on a site or group like this. I've always dealt with my own troubles, but lately I've become so damn weary.... Fri, 11 Jan 2013 21:19:31 -0800 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/10113796-hello-im-new-to-this#10113796 Hello my name is Alexandra I'm 24 and just had my first baby she was diagnosed with Arthrogyposis I'm doing physical therapy and casting with her does anyone have any resources or advice for me I'm scared out of my mind and just want to give her the best life possible... Sat, 22 Sep 2012 07:21:09 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/3925198-3-months-baby-with-amc#3925198 im a mom of a 3 months old baby with amc. My baby is affected onthe hip bone and the knees. She presented a left clubfoot, which has the seventh cast on. Her thumbs are on the palms. Im so worried about her. Operations are eminent but not programmed yet. Plezse can someone advise me on this problem?... Tue, 17 Jul 2012 14:06:37 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/introductions-personal-stories/1415045-new-member#3701928 I have a 12 year old son!! when he was smaller they would do therpy and work on different ways that he can write with...so right now he uses a computer. as for operation, they wanted to try a procedure where they had to remove some muscle from his leg and put it to his arms, where he AMC is affected. He is a twin so doctors think that he mightve not had enoigh room in my uterus. if you need more info please email me!...thanks!... Thu, 03 May 2012 08:14:32 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/3701897-new-member#3701897 Hi everyone!! I have a 12 year old son with AMC only affecting his upper limbs!! He does everything by feet, eating, school working but my husband and i are still showering him. I would just like to know how other have been managing. my son is the only one with this condition where i have. I have only seen one boy like him. I hope to hear what others have been doning to help their child.... Thu, 03 May 2012 08:08:56 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/2505856-arthrogryposis-multiplex-congenital-videos-on-mdjunction#2518148 Hi - it's me again... I got many PMs from members asking to upload their own videos. At this point we can't add to the library . but hope we will be able to soon, we understand the importance of that! and another (not related) topic...Two weeks ago we added to the (now available on chrome too) the Groupon application that shows you the hottest daily deals in your town, every day. We received great feedback from the people using the toolbar so I suggest trying it out!!! CU roy... Wed, 09 Mar 2011 03:25:43 -0800 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/1720240-ribbon#1720240 What color is the AMC ribbon?... Tue, 20 Jul 2010 20:21:10 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/introductions-personal-stories/1589846-new-to-group#1589846 Hello, I'm a mother to a 9 month old who has amc in all four limbs. I do have some questions but i would also like to talk to some people about different thing that have help them personaly. Thanks:)... Sun, 13 Jun 2010 22:24:18 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/1453849-introduction-of-myself-and-question#1453849 Hi all, I am a new member, and I would like to introduce myself! I am Ciska Hutton, and I am from Southern Africa! I am 24 years old, and I was born with Arthrogryposis Multiplex Congenita! I was born with two dislocated hips! But my right hip miraculously recovered by itself since I was born, until I was 6 months old! When I was 6 months old, they had to operate my left leg! I got pretty much swelling in my legs, can you please tell me more about the cause of swelling of legs and feet i... Fri, 30 Apr 2010 16:29:52 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/58400-welcome-to-the-arthrogryposis-multiplex-congenital-support-group#1257445 hi . i was wondering what the diffrance between Arthrogryposis Multiplex congenita and Arthrogryposis Multiplex Congenital is ??? can you help me best wishes Sophie Pearson - sophie-pearson@hotmail.co.uk :-)) :side:... Fri, 19 Feb 2010 17:41:28 -0800 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/1257437-arthrogryposis-multiplex-congenita#1257437 hi i am 14 years old and i have Arthrogryposis Multiplex congenita it isnt very bad and i am very thankful for that but i am having and operation on my right hand on the 23 of feb. but i think i might have high/low blood pressure because i get dizzy from standing up ect. i was wondering if low/high blood pressure could be coursed by Arthrogryposis Multiplex congenita???? if you can help me it would be great m any thanks sophie pearson x:)... Fri, 19 Feb 2010 17:37:20 -0800 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/58399-making-the-most-of-the-arthrogryposis-multiplex-congenital-support-group-experience#58399 The Arthrogryposis Multiplex Congenital Support Group is full of ways to interact and share your knowledge and experience. It's your chance to be around people who are dealing with the same issues as you do and understand you best. The Arthrogryposis Multiplex Congenital Support Group has 3 main discussion topics. You can explore them by clicking the link on the left. As this group just started we'll need people to jump start it and make it as productive as other groups on this site are. To g... Mon, 10 Mar 2008 01:32:36 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/general-support/58398-how-to-join-the-arthrogryposis-multiplex-congenital-support-group#58398 OK. The No. 1 of all No.1 questions ;-) "I can't seem to be able to respond to a post", "why can't I start a new discussion?". At the top right of any page in the support group you'll see a button for "join this group". Once you press it, you're automatically a group member and able to join the discussions. Try it ;-) now! Waiting for No.2, Any more questions? Best, Alon... Mon, 10 Mar 2008 01:32:35 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/introductions-personal-stories/58397-technical-stuff-related-to-the-amc-support-group#58397 Hi , I'm Alon, nice to meet you all ;-) I'm in charge of all the technical stuff around the site and the support group. If you have any problem, want to ask a technical question or would like to suggest a new addition to the AMC group – please contact me (via PM). I hope to CU here a lot. Sincerely, Alon... Mon, 10 Mar 2008 01:32:34 -0700 http://www.mdjunction.com/forums/arthrogryposis-multiplex-congenital-discussions/introductions-personal-stories/58396-hello-arthrogryposis-multiplex-congenital-support-group-im-roy#58396 Hello, My name is Roy. Alon and I run MDJunction. We hope that the Arthrogryposis Multiplex Congenital Support Group will grow into a real meaningful place for all of you, as other groups in MDJunction are (you can see the as an example). We are here to help in any way we can. Enjoy, roy... Mon, 10 Mar 2008 01:32:33 -0700