http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/feed http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Sat, 18 May 2013 13:21:33 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10659825-help-met-a-jra-girl-on-no-treatment#10687951 I can not believe there has been no reply to this post. Everyone comes on here for help, yet when it comes time to offer some, they don'twant to bother? That's rich... than a lot, lexi thanks you too... Fri, 17 May 2013 02:20:18 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10604139-i-effing-hate-jra#10659849 Hello to you both. I am 39 years old and have old been diagnose with RA since October of 2012, so for a little over 7 mths. And it went from two joints to every joint RA can go to in that short period of time. So while I CAN understand where you are coming from, I can not imagine having going through it at such a young age and for so long. To me, my life span has just shortened by 30 years. My hands have already begun to cripple, but I am much older than you as well. There are so, so many thin... Sat, 04 May 2013 02:41:50 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/medicine-treatments/200216-reenbrel/limitstart/10#10659845 Momofalittlediva I see that this was posted in 2010 and I do hope that all of your children that hve been mentioned in this posting are doing well. I came in here looking for answers for a friends child that has JRA which is on NO treatment whatsoever and I have RA myself and I told her that just couldn't be right, so I am doing some research for her; but I saw this and just needed to comment. I hope it gets out to you all. I am on Enbrel and I am 39 years old; yes it is scary, yes the commerc... Sat, 04 May 2013 02:13:17 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10652828-new-medication#10652828 My son Cole is 4 yrs old he was diagnosed with jra when he was 2. We just found out its affecting his eyes he's on two different eye drops plus they want me to start him on humira injections every week, but when I was reading the info on the medication it said it can cause cancer in children and make their risk for infection more likely to happen. I don't know if I should start the medicine? Is anyone else's child on humira? I'm so torn please help me thank you deanna... Tue, 30 Apr 2013 19:52:00 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10652826-new-medication#10652826 My son Cole is 4 yrs old he was diagnosed with jra when he was 2. We just found out its affecting his eyes he's on two different eye drops plus they want me to start him on humira injections every week, but when I was reading the info on the medication it said it can cause cancer in children and make their risk for infection more likely to happen. I don't know if I should start the medicine? Is anyone else's child on humira? I'm so torn please help me thank you deanna... Tue, 30 Apr 2013 19:51:39 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/medicine-treatments/10621928-ilarisflu-shot#10621928 I am a 22 year old female with systemic onset JRA. I was diagnosed at 10 years old and have been treated in New York, Philadelphia and at Dartmouth. I began taking Ilaris in July 2012 (prior to Ilaris I had taken most medications out there--humira, methotrexate, kineret, thatlidomide, cyclosporin...) I had my flu shot in January 2013 and began experiencing muscle related problems soon after. I generally get my flu shot every year and have never experienced anything like this. Has anybody experi... Mon, 15 Apr 2013 23:21:58 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10605101-polyarticular-rf-positive-jia#10605101 My 12 year old daughter went from playing hockey on December 29th to not being able to stand, walk, sit up, or even chew in 3 weeks! She has inflammation in every joint in her little body. She is getting better now that she has been diagnosed and treated but we haven't been able to get her off the steroids yet. She is taking1 no of methotrexate a week, 50 mg enbral (switching to humira) per week, 30 mg prednisone a day and will be starting rituximab this week. We live in a small town so must tra... Mon, 08 Apr 2013 10:18:48 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10604086-prednisone-15mg-daily-not-working#10604086 Does prednisone always work? If it doesn't, does that mean its not JIA?... Sun, 07 Apr 2013 19:24:19 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10387024-i-dont-want-to-be-like-thisi-need-some-support#10579368 Sounds horrible. I wish they would have more insight on what these autoimmune reactions are. I've been dealing with a lot of pain since I was a child and recently I had hip surgery. The worst part is that people are not always smart enough to understand that even if you are not having fluids flowing or body parts falling off you might be sick and in pain. Most of the time you get the feeling that they think it cannot be as bad as you say it is. I guess this is one of the main problems you ar... Wed, 27 Mar 2013 09:48:59 -0700 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10535772-what-type-of-specialist-to-see#10535772 Hello, my name is Amber. My 11 year old daughter Emily, was recently diagnosed by her pediatric nurse practitioner as having arthritis. We originally went to check on my daughters knee pain she was experiencing. Emily at the time was a very active dancer. She had classes 4 nights a week, so I just attributed k.nee pain to a dance injury. So after treating with Advil, ice, wrapping the knee lots of resting the swelling had not gone down, still in extreme pain along with a warm kee unable... Sat, 09 Mar 2013 02:52:46 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10531834-estimate-of-how-long-morning-stiffness-lasts-ie-5-mins-30-mins#10531834 One of our twins (18months) Might have JRA, not diagnosed yet. How long did your kids stiffness last? She wakes up with stiffness and a limp but it only lasts for maybe 5 mins then goes away. The knee is always swollen though. This has be going on 4.5 weeks we see specialist tomorrow. Hoping its not JRA but maybe fluid in knee or injury. Thanks!... Thu, 07 Mar 2013 07:42:52 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10528622-i-might-have-jra#10528622 Hi everybody! I'm 14 and my doctor recently referred me to a rheumatologist. My infectious disease doctor isn't sure what's wrong and I won't be able to see the arthritis doc for a month. I'm worried and want to know what's wrong. I thought maybe some of you would have some insight and could tell me if this sounds like arthritis or not. So, I had lyme disease for a few months this fall. I took six weeks of antibiotics and my ID doctor said that should have done the trick.I don't play sports... Tue, 05 Mar 2013 19:01:44 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10512767-help-son-sick-and-pointing-to-jra-could-it-be#10512767 Hi My 8 year old son got the flu over Christmas break. He got better for a week and ever since has had fevers on and off for 7 weeks. We saw an infectious disease doctor and spent saturday in the hospital b/c his fevers are persisting. His RF Factor is 3.15 (high). His CRP is elevated and his Sed Rate is 75. The infectious disease dr has pointed us to see a pediatric rheumatoloigst because he thinks he has JRA. His only symptoms are Fever, (acne on his face - looks like pimples but I guess i... Tue, 26 Feb 2013 14:52:06 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10475282-veteran-of-40-years-with-jra-seeking-other-veterans-to-chat-with#10506305 Me! I was diagnosed in 1982, and i will be 35 in May. So nice (and unussual) to meet another veteran!... Sat, 23 Feb 2013 16:12:09 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10488612-new-meds#10488612 I've had arthritis for quite a while now and I've been on tons of mess I was on 7 but I just went to the doctor and some of them weren't working so they just took me off of them so now I'm only takin 4 thank god! Im starting therapy to help the pain and continuing physical therapy and getting an MRI on my back Just to catch you up ;-)... Sat, 16 Feb 2013 12:45:47 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10391250-diagnosed-at-age-5#10473473 Wow reading about your story, it seemed like I was reading my own. I am about to have my 2nd hip surgery, as well as a double knee replacement soon. Have you tried infusions?... Sun, 10 Feb 2013 14:02:03 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/3397079-17-years-old-need-someone-to-talk-to#10473463 Hello All, I am 25 yrs old, and I was diagnosed with JRA when I was 3 yrs old. I am in the same situation as you. I know of absolutely no one else who has JRA.If you ever want to swap war stories or just talk just let me know.... Sun, 10 Feb 2013 13:56:52 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10448330-can-james-symptoms-come-and-go#10448330 My 3 and a half year old has had strange symptoms for a couple of years now. Waking up screaming in agony saying his knees hurt, or sometimes ankles. So bad that he collapses and can't walk, but by morning it is all over. He can get those type of episodes every few nights for a few weeks, and then nothing for months. In November he got ill with a high fever, abdominal pain ( no vomiting or bad poos) and a large and extremely painful lymph node. It lasted 11 days, he saw a few doctors and no one... Fri, 01 Feb 2013 02:10:41 -0800 http://www.mdjunction.com/forums/arthritis-juvenile-rheumatoid-discussions/general-support/10444586-8-year-old-daughter-with-symptoms-of-jra-and-positive-ana-test#10444594 also I wanted to add.. I call the ER a week after we went to check on culture and they said she didn't have an infection after all.. nothing grew.... Wed, 30 Jan 2013 17:40:48 -0800