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03/19/2010 02:32 AM

arthritis but blood work does not show anything

janquito
janquito  
Posts: 1085
Senior Member

Am wondering if anyone else gets neg. blood work even though they have arthitis? I've heard it doesn't always show up. It makes me wonder if some of the other tests I've had which showed neg. are actually positive? Let me know what you all think. Thanks!Wink
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03/19/2010 05:19 PM
valenaann68
valenaann68  
Posts: 1008
Senior Member

Yes, that does happen. Most of the time my blood work comes back normal. My rheumy said that one time I had some blood work that showed CRP (I think that's it) elevated and sed rate was elevated. But most of the time my blood work is normal. However, my rheumy says he is 100% sure that I have seronegative rheumatoid arthritis, which is where the labs come back normal but the person has the symptoms of rheumatoid arthritis. I have the symptoms: pain, swelling, and warmth in joints; stiffness in the morning; pain when getting up after sitting for long periods of time; pain is symmetric; hands frequently affected; pain is widespread (that may be the fibromyalgia).

I didn't mean to ramble on, but I had to jump in when I saw your question. I have RA and fibromyalgia. If you don't mind me asking, what type of arthritis do you have?


03/21/2010 09:25 PM
janquito
janquito  
Posts: 1085
Senior Member

No, I don't mind you asking. I have osteoarthritis. Degenerative. Also the facet arthrits in lower back. I've read through my medical records and have noticed that there have been times that my sed rate was slightly elevated but nothing had been said to me. guess doc didn't think it was worth mentioning. ? I've also had Sjogren's lip biopsy turn out neg. even though I have all the other symptoms. Makes me so mad. I guess the treatment would be the same as what is being done now so I guess it isn't that what I'm concerned with. I just want to know what else is going on. Ah well, I need to get to bed. Take care!

Janet


03/23/2010 06:12 PM
valenaann68
valenaann68  
Posts: 1008
Senior Member

I know how you feel, Janet. I hate having blood work done because most of the time I hear that it's normal and there's no inflammation showing and he doesn't know why I hurt so bad. It makes me feel like the doctor doesn't know what to do with me when my labs come back normal when I complain of having lots of pain.

I hope you're feeling better and I hope that whatever treatment you are taking is working. Smile


04/06/2010 03:08 PM
K14
 
Posts: 19
Member

My blood work comes back normal even my xray came back "normal" but when you look at my fingers and swollen knees you can see I have arthritis. What my rheumatologist should have done was take an MRI of my hands instead. MRI usually detects early signs of arthritis. The best time to be checked is usually during a flare up. I know one option involved a needle at the joint to test for some chemical but that sounded too painful for me.

07/20/2010 04:49 AM
Tunia
Posts: 1
New Member

I have been having wide spread pain for the past 4 years now. I have had blood work that showed my ANA levels were really elevated. My Mom and Grandmom both had rheumatoid arthritis and my mom had Multiple sclerosis. The rheumatologist I was seeing refused to continue seeing me due to me having to reschedule appointments. I went over a year without going to the dr. Now I am being seen by a family doctor who did some blood work, and it all came back normal, but I am still having the same problems. He put me on a couple of medicines to see how I do. He said he still thinks I have some type of connective tissue disease. I have to go back in a month to see how the meds have helped. He also mentioned maybe an MRI. I just want to find out what is going on so I can feel better. Sorry I rambled here.

Post edited by: Tunia, at: 07/20/2010 04:50 AM


07/20/2010 03:01 PM
peasha
peasha  
Posts: 1374
VIP Member

Thats what we are here for so ramble all that you wantWink Sounds like your having a hard time. Its not uncommon to have blood work come back as "normal" for people with RA or arthritis in general. The scale is a "range" that the doctors have determined as normal and not normal. My tests are always slightly elevated, but not enough to be treated fully for RA so I completely understand the frustrations with that. I too have some underlying tissues and vasculer disease that hasn't been a concrete diagnosis, but I still am on a course of treatment for it.

You should call your doctor after 2 weeks of your med treatment because you should notice something with the treatment after 2 weeks it may not be fully helpful, but there is always something that feels better whether or not its less swelling, less pain, or just less time to get your body moving in the morning. So if its not helping Im sure you ask for a different treatment after 2 weeks. With all the meds I have been on it has always been a 2 week trial and call the doctor to give them an update on how things are going. Hope your treatments are helping you some Smile

Alicia


08/22/2012 12:39 PM
terri9979
 
Posts: 4
New Member

Hi, I have been told by a few doctors over the years that I have arthritis. About 5 years ago it got really bad, back , spine... My segs were very high! Sent to arthritis specialist. I went organic, vit... my athritis is still progresing, getting worse but my tests come back ok. Doctor said there are some 13 garden varity that do not show up on your bloodwork. Been told I have two kinds of arthritis and severe scolliosis. I relate. Smile

08/23/2012 11:23 AM
helene219
helene219  
Posts: 13
New Member

Unsure Hi everyone;

am a new member and this is my first post. I am very discouraged at the moment. I was diagnosed with Fibromyalgia around 1995. I was treated with cortisone injections at a Pain Clinic, by a Pain Management doctor. I only saw her for a year before she closed her practice and left town.

In 2008,my Family Practice doc sent me to see a Rheumatologist, who I have seen every 4-6 weeks ever since. My initial markers were all positive for RA- high SED rate, Seropositive RAF, positive anti-CCP, and positive MRI showing erosion in the bones of my hands and wrists. It was evident I had been suffering from RA for quite some time without being diagnosed. I imagine this is a fairly regular occurrance. I have told them repeatedly, however, that I think it is my Fibro that bothers me more than the RA, because there is so much muscular involvement with my pain.At the Rheumy office, no one listened. My main Rheumatologist told me "I don't believe in Fibromyalgia". My FamPrac doc, however, put me on first on Lyrica (couldn't stand the side effects) and then Cymbalta for the RA pain. The Cymbalta made me sweat like a pig on my head (neck, face, under the hair, temples....it would just DRIP) and I only took it for a month. Now I've been off about 6 weeks and am still dealing with horrendous withdrawal symptoms...the worst of which are the "head zips". If you've ever had these, you'll know exactly what I mean. W00t

I am still on Methotrexate and Prednisone, as well as the MTX Support supplement to help with MTX effects. I have been on Plaquinil, Embrel, and Cimzia (for which I participated in a 14-week trial).

I am currently only on MTX and Prednisone for RA. When I saw my rheumy on Monday 8/20, I fully expected to be put on another biologic, since she had said that she will most likely put me on one of the infusables.

BUT....my most recent MRI (7/28) showed no progression of my RA, and my bloodwork had dropped from positive levels into the 'normal' range. So no new medications for RA, but I am still maintaining at 25mg of MTX, the highest dose. I asked "if I am showing remission of RA, why are my hands, wrists, elbows, ankles, and feet so sore that I can almost not use them?". The answer? "well, maybe it's your fibro that is more active at this point." Apparently NOW they believe in Fibromyalgia! So, now I have added Neurontin to attempt to treat my fibro.

OMG I am so sick of "let's try this, let's try that" because we really don't know what we are talking about. She also suggested that I go see a Psychologist. Hello? I'm not crazy, just IN PAIN!!

I guess we are just doomed to deal with uncertainty from doctors. If they could only come up with a definitive way to diagnose and treat us, the poor RA/Fibro/Osteo/who knows? patients!!

Geez....what a way to make an entrance into a new group, huh!? Sorry to unload so much but I am just BEYOND frustrated!!


08/23/2012 08:34 PM
maryandjimmie
maryandjimmie  
Posts: 1849
VIP Member
I'm an Advocate

Helene

I understand your frustration I went through the same thing with my Dr they kept giving me meds for my fibro and they were making me sick and not helping my osteoartheritas at all this coming from a Dr who didn't believe in fibro then told me to see a psychiatry Dr I was so mad I told him I'm not crazy its not in my head then he said well being in pain will make you depressed I got so mad I told him the only thing that makes me depressed is his treatment of me. I'm in a wheelchair due to all my medical problems and for a Dr to not be there for me is discouraged I'm in pain 24/7 and don't need more stress from him. He is actually now working with me trying to find meds that work. Its ashamed it took for me to yell for him to listen but well worth it. I know its hard to deal with the health issues and pain just know were here for you.

Mary

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