Hello All,
I realize that most people who come to a support group are coming because they are in need but even from a place of need - we may have something to offer one another as far as small improvements, helpful therapies and good, trustworthy caregivers.
Please feel welcome, encouraged even
to share*
I for one, found the Chiari Institute to be invaluable in getting diagnosed, which for some people- is a challenge. The Chiari Institute specializes not only in Chiari but also the accompanying conditions that often go hand in hand with it- ie: Occult Tethered Cord, Ehlers Danlos Syndrome, Cranial Settling and Instability.
I would strongly recommend the videos on the TCI site- it's a good place to begin to inform yourself and a starting place for making the difficult decisions ahead.
http://www.chiariinstitute.com/
A more personal place is Chiari Connection International. They have lots of information, including a map of the US with recommended NS on it, tips for daily living, articles by Neurosurgeons and an email list/digest that you can join whose membership is quite large.
http://www.chiariconnectioninternational.com/
One of my personal favorites is a place for Chiari and related disorders- a small Christian community of very supportive members is called, Healing Friends.
http://www.runboard.com/bhealingfriends
These are a couple of other main sites for Chiari, ones I've spent less time at.
American Syringomylia and Chiari Alliance Project
http://www.asap.org/
and The World Arnold Chairi Malformation Association
http://www.wacma.com/
All God's Best to you!
prism 
