Arnold Chiari Malformation Support Group

I would just like to quickly introduce myself and say Hi!! to everyone..I am 47 y.o. with several medical problems, but probably the most painful is the Chiari... I don't know if this is typical, but my doc didn't initially find my Chiaris, I had to ask for the specific testing to see if I had it...it was suggested to me by a colleague who's daughter had just been diagnosed... I have read some stuff about this, but as I have other disabling conditions along with this, I haven't had any treatment.. or a good neuro either... I look forward to getting to know others who have the same issues that I have, 'cuz I think that it is hard for others to really understand..Lisa

It is very hard to get treatment for Chiari depending on how much herniation you have going on- I for one, have had no help except from the people at the Chiari Institute in NY> it depends on how much it's disrupting your life- whether it's worth it to go there or not, for me, it was really worth it.

I hope you get the help you need soon.

hugs,

zoe