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Arnold Chiari Malformation Support Group
A community of patients, family members and friends dedicated to dealing with Arnold Chiari Malformation, together.
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02/11/2009 12:24 PM
laura1985
laura1985Posts: 1
New Member

Hi all,

I have a little girl who's 5 with ACM and bilateral lambdoid craniostenosis,I'm looking for friends to talk to about it as there is nobody in the UK with both condition's,

Just getting to know somebody who has or who's child has the ACM side of things would be a help too, as the doctor's don't tell you much and the internet site's you can read up on are text book. Personal expierence is better to go by.

Laura Smile

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