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"I suffer from Chronic Pain. My mom suffers from Alzheimers." (PainStinx)

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liamacker"The part of my recovery plan that I would say made up 80% is MDJ. I suffered a lot prior to finding MDJ, felt alone and had no one to talk to who really understood me. In the Bipolar Group I found like minded individuals who I could relate to and who offered support to me when I needed it. As I recovered, I could then offer support to them which gave me a good feeling about myself. I have met some great people here who I would class as good friends and know I would still be in the slump I was in without them. Now I am stable, I know that MDJ plays an important part in keeping me that way. Thank you MDJ for being there for us all and making us no longer feel alone." (liamacker)

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Arnold Chiari Malformation Support Group
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CMs ForumsGeneral & SupportI feel like I am in a bad dream
08/01/2011 09:35 PM
EveBearrow
EveBearrow
 
Posts: 11
New Member

I was diagnosed almost 3 wks ago with Chiari 1 Malformation.My neurologist had get 7 viles of blood drawn,an MRI of the brain and I had to wear 32 electrodes on my head for 72 hrs. After several wks of waiting she calls me into her office and says that she was so sure that I had MS with severe seizures. Then she shows me my MRI results and tells me that I have Chiari and that she was sending me to a Physical Therapist. I asked her if she thought that this condition was causing my symptoms of falling over alot,getting dizzy,seeing flashes of light,bowel and bladder urgency;to name a few.She then responds"No,those things are brought by stress". So,I return home thinking that I am okay and that this is no big deal.The next day I woke up unable to use my legs.I now I have an appt. this week to see a Neurosugeon. I hope that I can get some answers.

Post edited by: EveBearrow, at: 08/02/2011 10:00 AM

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08/02/2011 08:02 AM  Top
ToEKnee213
ToEKnee213
 
Posts: 6
New Member

I hope you are able to get some answers from the neurosurgeon. I absolutely believe the symptoms you have experienced have a correlation with the CM. I just got my recent MRI done on Friday, and will be seeing the decompression surgeon on the 17th (and thankfully the pain clinic on the 10th). Unfortunately, I am dealing with fighting C Diff right now and the headaches I have are compounded by it.

Best of luck to you - let us know how the surgeon appointment went.


Previous discussions I participated in:
Headache that gives off heat

08/04/2011 02:31 PM  Top
EveBearrow
EveBearrow
 
Posts: 11
New Member

Okay.Now I am even more confussed. The Neurosurgeon comes into the room and ask me" So,what is wrong with you? Why are you here?" In a very stern voice.By this time I am ready to turn around and walk out. He then says"what are your symptoms." I am thinking have you got time to listen to how many? He did some usual test.I failed some on the right side. He took a swab and tickled the back of my throat.When he went to left side I gagged so bad. He then went to the right(several times)nothing. He said that I have a mild Chiari and that my symptoms must be from something else. Now this Surgeon has done excellant work in his field. All of the other patients had brain aneurysms. I did not meet anyone that had Chiari. Who knows???

Post edited by: EveBearrow, at: 08/04/2011 02:41 PM


08/06/2011 04:56 AM  Top
razzle51
 
Posts: 74
Member

no 1 get a new NS . No2 do not go to a Phyiscal therapist.

10/18/2011 08:08 AM  Top
EveBearrow
EveBearrow
 
Posts: 11
New Member

Well,as if I didnt have enough to deal with. The Neurosurgeon sent me to a Neurologist who says that my spinal MRI shows that I have seven significant lesions on my spine. He diagnosed me with Multiple Sclerosis. He did all of the neccesary reflex test and blood test to rule out anything else. I can not have the spinal tap because it will pull the Chiari down further. He says that he is 95 percent sure. I have chosen to not start treatment. I am going at this with a holistic approach. So far it seems to be working. I have had a few bad days but,nothing permanent.

10/19/2011 08:49 AM  Top
razzle51
 
Posts: 74
Member

I am sorry I thought you were in wa . You need to see Dr.Richard Jackson in Dallas . top NS
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