http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/feed http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Sat, 25 May 2013 00:14:38 -0700 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10623992-lots-of-pain#10649111 Hi Rose64 I can't have the Humira shots as I have a low immune system anyway and the shots would give me a ZERO immune system. My regular pain meds no longer work for me not that they really ever took the pain away in the first place, my pain used to be exactly where yours is at the moment but after a steroid injection it seems to have calmed down a lot but my problem now is my spine,neck and shoulders I have a stoop now and the pain is like red hot pokers being jabbed into you and then a sort o... Mon, 29 Apr 2013 04:06:07 -0700 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/introductions-personal-stories/10266004-17-years-for-a-diagnosis-please-dont-give-up#10617654 Hi im new to this group and I am going in for a ct scan for 2 reasons and that is to see how my last spine surgery is healing because I am having severe pain, numbness and tingling down my left side again, and drop foot on the left side. the second reason is because I am trying to get them to finally diagnose me..not that I really want the diagnosis but if I have it I want to be treated properly..ya know.. and that's for anklosing spondylitis.. I was positive for the gene, my body fused my L5-S1... Sat, 13 Apr 2013 23:24:25 -0700 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10603489-muscle-spasms#10603489 Does anyone have chronic muscle spasms?... Sun, 07 Apr 2013 13:12:29 -0700 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10576228-nobody-seems-to-understand#10576228 I am 35 years old and have been suffering from AS for the past 5 years. I know there i something else wrong with me, but no diagnosis yet. I am marred and a mother of 4 and also work full time as an ER nurse and go to school full time,(trying to get out of er, my body cannot handle it anymore). Recently, I have been feeling so depessed. I have zero energy and my body always hurts, whether it is my hip or my back or my shoulder, etc. My husband tries, keyword tries to be supportive, but he h... Tue, 26 Mar 2013 05:02:16 -0700 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10476470-stomach-problems#10537758 I too have stomach problems. I too went on a gluten free diet a year ago which has helped but not completely. I have ibs. I was told I had as when I had a severe eye infection and my hba test was positive. I was told as is the result of inflammation in other parts of the body. I wish you the best. Mustard.... Sat, 09 Mar 2013 19:53:24 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/introductions-personal-stories/10535059-old-hand-at-as#10535059 I'm new to the group, but not to AS. I am 58 years old and first showed symptoms at the age of 10. I was finally diagnosed correctly over 10 years later. My rheumatologist has said that I have an especially aggressive form of the disease. I have the classic bamboo spine with the 3 lowest vertebrae fused naturally. I have also had 2 cervical vertebrae fused surgically. In addition I have had total joint replacements in both shoulders and both hips. My left knee is going to be replaced nex... Fri, 08 Mar 2013 15:27:22 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10396859-new-to-md-junction-want-my-life-back#10464160 I definitely, definitely can relate! The ankylosing spondylitis was a huge hurdle to diagnose and then treat. The good thing about ankylosing spondylitis, is it can be treated with a TNF blocker such as Humira, Enbrel etc. and you'll get some very effective pain relief that greatly will improve your quality of life. Where it gets complicated and tricky is when you have fibromyalgia mixed into the illness. I have both as well and it sure is a journey. My doctor told me I will never be pain f... Thu, 07 Feb 2013 07:06:50 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10442985-i-am-sick-from-methotrexate#10451528 Hi I have been on Methotrexate since last summer I also have AS I,m taking 8 pills a week now I too get an upset stomach for a couple days after. I just started my Humira a couple of weeks ago. You need to hang in there. I tell myself this is to help me. Did you tell your DR. this is how it makes you feel? Is your DR. planning on you starting another medication too?... Sat, 02 Feb 2013 09:37:48 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10405780-my-first-shot-today#10430017 Glad to hear your shots are starting to help you. Can't wait till mine start to help. I know what you mean when you say your neck and ribs are stiff I have a herniated disc in my neck I am in the process of getting epidural shots. Then I have to get them in my lower back for a disc problem to. Take care.... Fri, 25 Jan 2013 16:04:46 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10336710-ankyosing#10379655 Hi robmj, I new to this site I only found it because I was looking for answers to something else. I have just had a Gastric Bypass done to help take the pressure off my bones as I am overweight and my Doc's said if I didn't have it done I would be in a wheelchair within a year. So I didn't feel that I had any option but to have the surgery. I then wondered if there was anything on here for A.S sufferers and Bingo here it is. I am a just diagnosed lady of 47years I am a Retail Manager of a well ... Mon, 07 Jan 2013 02:31:58 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10375346-is-ankylosing-spondylitis-viral#10375346 Hello everyone many had told me that ankylosing spondylitis is gradually increases means it affects to other parts of the body also. Is it true, than whats the precaution for that.... Sat, 05 Jan 2013 01:52:21 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10139783-ankylosing-spondylitis#10347723 Hi Matt - I've had two injections of Humira - third is scheduled for this Friday, 12/28. How have you felt on them? I felt shaky and like I wanted to jump out of my skin the first day, and very exhausted for two days after that. Let me know, because maybe I'm not reacting normally. The most important thing I've been doing is taking an antioxidant capsule with my regular vitamins - it's basically A, C and E, also Calcium Citrate-D and flax oil. I also bought some of the face masks that keep all t... Mon, 24 Dec 2012 00:57:14 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10336764-pain#10347298 Hi there - Nope, it's not normal to feel pain like you do. AS is a young person's disease and your best bet is to see a rheumatologist for specific blood work, x-rays, other simple flexibility tests and background info that will help immensely with your diagnosis. I was in pain for 17 years before I was diagnosed (started when I was 30). Nine doctors, two surgeries, 55-plus back procedures later - I finally found a doc who said, Hey, have you had rheumatoid blood work done? I am on my second... Sun, 23 Dec 2012 16:08:25 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10331585-spndylitis#10331585 B) Hello, I have had this affliction since 1985 and I so know what it does to all of us. I was told back in 1985 that I would be in a wheel chair within 2 years, well, it is now 2012 and that has not happen. I contracted polio at the age of 9 months and have had back surgery done 3 times. I now have Osteoporosis in both hips and in my lumbar region. Some days are good days and some not so good. I hope to make some friends here to share thoughts and obtain new ideas.... Sun, 16 Dec 2012 12:15:38 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/3917836-recently-told-i-have-as-i-need-med-helpadvice#10313064 do you have hair loss or pain in front of the neck of AS?... Sat, 08 Dec 2012 13:09:07 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10267083-make-a-list-off-all-pains-in-your-body-from-as-from-head-to-toe-#10279626 do you have pain in the chest and feels like its hard to breathe?... Sat, 24 Nov 2012 12:34:03 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/introductions-personal-stories/10265996-17-years-for-a-diagnosis-please-dont-give-up#10265996 I started having pain in my left SI and down the back of my leg when I was pregnant with my third child (he's 17 now). I went through several doctors, 55-plus procedures (caudal epidurals, radio frequencies, injections, truFuse surgery...the last doctor I visited - I was just trying to get something for the horrible pain - tramadol - and received a lecture on how pain medications of any kind can kill you...I begged for some help and he sent me to a phsyiatrist - more of a mind-body doc - who ask... Sat, 17 Nov 2012 20:47:54 -0800 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/medicine-treatments/696775-undifferentiated-spondyloarthropathies#10208411 You never have to put on a fake smile for me. I love your truth. I need to hear your words as much as you need to say them. Having to research to find my own diagnosis sucks. I've taken a break from doctors and meds for a while, that sucks, too. It was worse wasting my time and energy to depend on someone who wasn't listening. I know they can be just as frustrated as us, not knowing the cause of our pain...still. My love is with you, my frustration is shared by you... -ChronicArt... Fri, 26 Oct 2012 14:18:09 -0700 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/3004844-hi-hopefully-l-will-be-getting-a-diagnosis/limitstart/10#10208314 You too hun, l just never go to doc bout THAT problem now suppose will just have to wait till damage is well and properly done! x... Fri, 26 Oct 2012 13:32:55 -0700 http://www.mdjunction.com/forums/ankylosing-spondylitis-discussions/general-support/10197922-ankolysing-spondolytis-and-pregnancy#10197922 Hi, I am suffering from SSA since 8 yrs and diagnosed only last year and taking SAAZ-DS 500 mg. My ESR and CRP are 62 and 13 respectively. I am 31 and a mom of a 4 yr old girl. I want to have another child. Is it possible to conceive with SSA? Pls advise! Thanks, Buzy mom... Tue, 23 Oct 2012 00:09:16 -0700