I'm at the stage of this disease, (which my husband was diagnosed with,) that is described in the Speak Up column in the back of the September/October 09 issue of Neurology Now.
The google searches. Lyme disease, antioxidants, heavy metal poisoning, alternative, off-label therapies, chelation, diets, stem cell transplant in foreign countries.
I don't tell my friends. I don't want to speak it's name. This is a far as I'm ready to go right now and I don't see how I'd be any good to anybody else with this struggle.
We're still calling it Statin Myopathy.