Why wear a ribbon?

"My mother has Cerebral Palsy and Bipolar I Disorder. My grandmother had Bipolar..." (dumbrunette713)

MDJunction to me

"As someone with Bipolar II, it is not easy finding people who understand. Here at MD Junction, EVERYONE understands. What an incredible feeling it is knowing that I don't have to deal with this disorder alone. MD Junction is the best resource I have found on the internet as support for just about any mental or physical condition." (Colleenj)
We comply with the HONcode standard for trustworthy health information:
verify here.
Alzheimer's Disease Support Group
A community of patients, family members and friends dedicated to dealing with Alzheimer's Disease, together.
Join This Group
Related Discussions:
09/03/2008 17:40
felisperdita
Purple Ribbon
Posts: 9
New Member

Send a PM
Give a Hug
Hi everyone, just thought I would introduce myself. My name is Brittney and my grandma Joy has Alzheimer's. We first noticed her forgetfulness years ago. I remember being 12 and having to explain things a lot to her - I'm now 24 and she no longer recognizes any of us.

She was once a kind, loving woman who never got angry about anything. She was gentle and sweet. Now she's frustrated and confused all the time and it breaks my heart. I don't see her as often as I would like (my parents moved her to an assisted living home closer to them, about two hours away), and when I do it just.. makes me so sad. I feel so guilty for not being able to do more for her. She still has brief moments of clarity, but they are few and far between.

I know you all can probably relate. Alzheimer's is awful, and my mother, sister, and I are terrified it will be our fate as well.

I am flawed if I'm not free.
Reply  


09/03/2008 18:49
singingangel
Purple Ribbon
Posts: 2185
Group Leader

Send a PM
Give a Hug
It is hard to see how much alzheimers takes away from the ones we love. I believe we start to grieve their loses with them. It does make us miss the way they used to be.

Even if she doesnt know you , you should try to visit. I know it will be hard for you. She will enjoy the visit . My mom often didnt recognize me but enjoyed me reading to her and showing her old photos. It will help you feel better when she passes. You will know you helped her not be as lonely.

As far as being scared to get it goes; there are things to do to help prevent it. Doing puzzles, walking, eating healthy, reading, etc. will help prevent it. I think there is a vitamin that is supposed to help also.

Welcome to this site. Know you are alone with your feelings.

Lori (the group leader)

I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
Reply  


09/05/2008 11:50
JoJoNurse
Purple Ribbon
Posts: 33
Member

Send a PM
Give a Hug
Felisperdita,

Welcome to the group! I too worry about Alzheimer's in my future. My aunt died from it and my father has had it for ~6 years or more. My dad has not recognized me in quite a while but occasionally will be lucid and say my name. He cannot relate my name to my face but there is something in his brain that brings my name or my sister's name to the surface. It makes me smile...makes me cry... and makes me wish he was his old charming self. I am just happy that he is blissfully happy in his own world! Welcome and I hope to talk with you!

Reply  






09/05/2008 11:57
felisperdita
Purple Ribbon
Posts: 9
New Member

Send a PM
Give a Hug
Hi JoJo. What concerns me is that my grandma ("Nanny") doesn't seem happy at all. She cries and is confused all the time. I don't think she ever feels blissful anymore, and it breaks my heart.
I am flawed if I'm not free.
Reply  


09/05/2008 12:16
singingangel
Purple Ribbon
Posts: 2185
Group Leader

Send a PM
Give a Hug
My mom used to be like that. I think she didnt want to think she really had a problem. When she would realize she was living in the facility she would cry. All I can say is that eventually the crying will stop. I think it is really hard seeing them cry. Hang in there. Know we are here for you. hugs
I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
Reply  


09/05/2008 14:52
JoJoNurse
Purple Ribbon
Posts: 33
Member

Send a PM
Give a Hug
My father used to get very upset, sometimes mad and sometimes downright hostile. Now that he is beyond that phase he simply exists. He doesn't really have emotions anymore which is heartbreaking to me. We used to cry watching TV commercials, listening to a special song, or talking about old memories. Now he just has this blank look in his eyes and a strange smile on his face. The crying will stop and even though it is sad to watch her cry sometimes it is harder when they have no affect at all. Keep strong!
Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved