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Alzheimer's ForumsGeneral & SupportCan alzheimer's patients understand what pain is?
03/29/2012 03:52 PM
annjenkins1
 
Posts: 49
Member

It just occurred to me that maybe people with dementia/alzheimer's don't fully understand what pain is.. Reason why I came across it, is that my mom had fallen and she didn't even cry in pain. She was just bruised, but you'd think that she would have reacted differently.

I remember years ago we had a neighbour that we had happened to drop in on and found her motioning toward her hip -but she wasn't crying or even screaming in pain. Turned out that she had broken her hip.

Has anyone else noticed this?

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03/29/2012 05:39 PM  Top
alznotwell
Posts: 1033
Group Leader

What I've noticed with my mom is that she is so shocked at finding herself in the floor or on the ground that she becomes frantic to get up and get away. She actually becomes frenzied and combative. I think this masks the pain, because the next day she is sore all over from wrenched muscles and tendons, and especially uncomfortable at the injury site. She almost always has head and neck pain, sometimes lasting for weeks or months, and she suffers until the injuries heal up. So I'm wondering if it is shock that makes them ignore the pain at the time of injury. ANW
Nothing I discuss on this forum should be taken as a replacement for medical advice by a licensed physician, because I am not a doctor. Please check all drug and other medical matters with your personal physician.

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03/29/2012 06:24 PM  Top
annjenkins1
 
Posts: 49
Member

ANW That's very interesting... You have a good point. I guess in a sense it's a godsend that they can't identity the pain.

03/30/2012 11:08 PM  Top
yellowroze
yellowroze
 
Posts: 569
Senior Member

gramma has really bad arthritis pain from a car accident back in the 1940's. the pain is in her neck and right shoulder mostly. she also has neuropathy pain in her legs. she definitely understands pain. tho, if she's sitting down, she'll forget about the pain if she is watching tv, until she goes to move. she often does that...
Blessed Be, Roze

i am not a dr nor an expert. however i am just a person like yourself just trying to offer support and get support in return.

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03/31/2012 05:33 PM  Top
annjenkins1
 
Posts: 49
Member

Maybe my mother not reacting is attributed to shock. Since it's the first time she's fallen, maybe she really didn't know how to react. It's really hard to say what their mind is going through.

04/04/2012 04:08 PM  Top
claredoll77
claredoll77
 
Posts: 472
Member

Hi I'm a caregiver in a home for Alzheimer's patients. My experience is that they absolutely do understand pain, but usually not it's source or how to react in a way we understand, or even in a way that let's us help them in the best way possible. In the early to mid stages, I hear the patients say things that refer to specific types of pain in a specific location, but they don't understand its cause or ways they can help to alleviate it. For example, I have one resident somewhere in the middle stages who constantly complains that his bottom burns (specific location and type of pain). However, I cannot get across to him that he must stop scratching and clawing at what was at the beginning just a small diaper rash, treatable with Desitin cream. He will not let me apply barrier cream or do timely changes so that he can reduce the irritation and pain. Later stages, I notice that they definitely express pain and even do things to to try to deal with it, but their understanding of how to express it is very impaired. One man in 6th stage has a gout inflamed big toe. He knows to take his shoe off to give it some relief, but he does not know to stop putting pressure on it or to ask for meds or help from the nurses or caregivers for it. A woman in the 7th stage knows it hurts her to be moved even slightly on the bed for cleaning and changing her diapers and bed linen, but all she can do is moan. I don't know if it's her hips (I suspect it is), her feet, or just general pain and fear. Long and short of it, they definitely perceive pain at all stages they are conscious, but their ability to express it's source and location and deal with it's cause decreases greatly as the disease progresses. In the early stages they can definitely tell you what hurts, the kind of pain and sometimes even make sense of ways to help it.

Post edited by: claredoll77, at: 04/04/2012 06:50 PM


04/04/2012 05:15 PM  Top
annjenkins1
 
Posts: 49
Member

Thanks Claredoll for educating me.

04/07/2012 09:30 AM  Top
broken
broken
 
Posts: 9268
VIP Member

I can say it know better then what claredoll just did

but I want to also add because of the reasons she gave it is so very important for you to look for odd behaviors because of not being able to communicate the problem there might be one..we had a patient who walked around on a broke hip for a week,broke my heart..sometime she had fell with out anyone knowing,she seemed fine one day then began fighting when getting up,not eating and pushing around a bed side table..if it wasnt for the bed side table her care givers might not have noticed there was a problem..so be very vigilant

we all have alot to give if one gets the help then some of this suffering is worth it..

remeber I am not a doctor I just say what I think

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