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09/07/2010 05:12 PM

alopecia areata? yes i do!

Duck4wave
Duck4wave  
Posts: 173
Member

Officially dx by a derm back in January of 2009 I have multiple spots of bald scalp and a wide bald swatch across the back of my head. I accept it and let what hair remains to stay and hang over the bare. I bid adieu to the derm and don't do meds. C'est la vie! Wink
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09/09/2010 12:12 AM
Leanna123
Leanna123  
Posts: 184
Member

Hi Duck! Nice to meet you!

09/09/2010 06:50 AM
Duck4wave
Duck4wave  
Posts: 173
Member

Smile Nice to meet you too Leanna!

Getting close to the weekend..hope you have a wee plan for some fun then...take care...will holler later!


09/09/2010 08:22 PM
tiffany123
Posts: 4
New Member

well how old r u?? im pretty young but i have a really bad case of it and vidiligo and i jsut ordered my locks of love wig!! [:

10/29/2010 09:44 PM
Duck4wave
Duck4wave  
Posts: 173
Member

sorry Tiffany it took so long for me to holler back...i've had a.a. for i think like 24 years but it didn't go bonkers until late 2008...now I have a big wide patch of bald from ear to ear but hair still growing on top of my head hangs over that area. I kinda expect/plan to go a.t. oneday and that will keep my mundane reaction to a normal level. So I hope!

Wink


11/03/2010 08:10 PM
Leanna123
Leanna123  
Posts: 184
Member

I had it on and off for 10 yrs...but then it went nuts in 07 and havent had hair since! I dont try meds because the only one that has worked for me is prednisone and I cant stay on that forever!

12/04/2010 09:57 PM
jazzeeB
Posts: 1
New Member

i was diagnosed with it when i was 13 now 15 nothing has worked . what doess prednisone do does it work? is it by mouth?

12/08/2010 12:44 PM
Leanna123
Leanna123  
Posts: 184
Member

Hi Jazz,

It depends on the person, and there are a lot of side effects to prednisone. You should not stay on it long term for alopecia. Its used for people with breathing problems like asthma, and I beleive it supresses the immune system. My Dr gave me a high dose once a month and it worked, but many doctors will not do that. Its just not worth the side effects. It is by mouth.


01/04/2011 09:44 PM
Duck4wave
Duck4wave  
Posts: 173
Member

Hi jazzeeB ~ I don't want to poke or mess my bod up with steroids or dccp so I just let alopecia do it's thing and use nothing...just comb hair over the bald. Guess when bald areas get really big and obnoxiously obvious will consider a buzz cut...have done that once before. Already have hats and bandannas ...I'm not one for wigs ~ but that's just me..to each her(his)own! Happy New 2011!

01/06/2013 07:45 AM
rickycarr1
Posts: 57
Member

this is very inspirational - welcome to mdjunction
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