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MDJunction to me

MissNikkiAnn"When you have an illness with the name "Non-Familial Dysautonomia" (a name that most people, and even doctors, have never heard of), you need a network
of people who understand the name and the symptoms/issues that come with it.
MDJunction led me to that network of people during a very confusing and sickly time. For this I am thankful. And for this reason I try my best to give back to other members the same care and help that I received through MDJunction.
" (MissNikkiAnn)

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Alopecia Areata ForumsGeneral & SupportNew to this...
03/16/2012 10:07 PM
gooberoobu
Posts: 3
New Member

I am a 31 year old female. My hair is falling out in mass quantities. I am to the point that i will not be able to hide it much longer. I am considering a wig, and plan to do some shopping later today to see my options. A couple questions... Do / did you share this with your family and friends or do you hide it from them? So far i have only told two people that this is happening, and hesitate to tell others... What are your thoughts?

How do you feel about wigs? Was that a good move for you?

How do you deal with this? I cry constantly which gets very old, yet this is extremely tramatic for me.

Anyone / everyone willing to share, i would love to hear your thoughts...

Thanks!

Reply

03/20/2012 04:13 PM  Top
rkymtroxie
 
Posts: 28
New Member

Hi gooberoobu:

I started losing my hair in "96" and went back and forth with losing and it regrowing. Last April I lost all my hair in 8 weeks. Eyelashes, eyebrows, all body hair. I do not wear a wig and have easily learned to accept my bladness. It takes some time to look at yourself and see no hair, but to tell you the truth, I don't miss it at all.

Good luck with what ever decision you make, but be proud of what you look like and take the actions you feel comfortable with.

Roxann Horvath-Elliot

03/30/2012 12:43 AM  Top
NettyNurse
Posts: 2
New Member

Hi Gooberoobu!

I'm a 26 year female and I've had Alopecia since I was 4 years old. I understand the situation you are facing. It helps to share it with those whom you trust, ones you can count on to support and inspire you, it will aide in the coping process. I've worn wigs for half my life, as a kid it was harder because I had to put up with the bullying and getting older I've bumped into people that aren't very nice and that's the reality of it. Take it as an opportunity to educate people about our condition, sometimes people just don't know. Crying is natural, it's all a part of coping, healing, and acceptance. Even after all these years of having Alopecia, I still have days where I run into people that ask me about my hair, and I freeze up being caught off guard, and feel bad sometimes, but I've learned to shrug it off. Take it one day at a time. Don't hesitate to message me if I can help you with anything ! Smile


Previous discussions I participated in:
Living with Alopecia for 22 years and counting...

04/10/2012 08:10 AM  Top
mandib30
 
Posts: 1
New Member

I am also new to this, well since Jan. of this year & I am going to be 31 this year so we are close in age. I also have a husband & 3 children. I totally understand what your going thru. I am also trying to find the best way to deal with it myself. I have considered a ball cap for now and then getting a wigg. My hair is also falling out in mass quanities. I go out in public with this large exceeding hairline but act like i dont notice the looks...but i do. I have fallen into a depression...maybe we can help each other..

04/10/2012 02:48 PM  Top
gooberoobu
Posts: 3
New Member

Hi Mandib,

I totally get where you are. My dermatologist said that 80% of my hair is gone. Not something I wanted to hear, but I'm trying really hard to accept it.

Currently I am going for the hat/bandana look anytime I go out in public. The wig thing isn't me.... Maybe I will try it later, but right now.... not so much.

The depression is such a draining thing.... for several weeks my only thoughts revolved around hair.... drove me nuts. Things are a little better now because I have hats/bandanas to wear... Its sooo much easier than constantly trying to figure out a new creative way to comb the hair to cover the bald spots.

Let's keep in touch.


Previous discussions I participated in:
BALD IS BEAUTIFUL
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