MDJunction - People Helping People
 

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"For Granddad's Prostat cancer." (strozierj)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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Agoraphobia ForumsLounge - Off topic discussionsMy contact info, just in case..
06/18/2011 03:19 PM
iammental

I'm always online, since I'm always at home. Wink

Anywho, my contact info is as follows:

AIM - eatimitationcrab

YAHOO! messenger - wishup2thestars

Facebook - http://www.facebook.com/profile.php?id=100000182269646

Feel free to add me and chat anytime. I'm not a morning person, so don't expect to see me on much before noon.

I am on late at night usually.

Tongue

Reply

08/13/2011 07:36 AM  Top
KittenMittens
KittenMittens
 
Posts: 20631
VIP Member

Here is a member that had no response to the post...then left. Sad
I desire to inspire before I expire.

08/13/2011 09:25 AM  Top
DemonVonKitc
DemonVonKitcPosts: 219
Member

Sad! For some reason there are posts that seem to slip through the cracks. I'm not sure if it just happens to me but the new posts that are supposed to get flagged sometimes don't for a while and sometimes not at all. I'll just see them up towards the top and be like 'Hey, I never read that!' I think maybe a couple of my responses have disappeared too or not gone through but that could just be me pulling a 'goldfish brain' moment you know? Memory like a goldfish as they say.

08/16/2011 11:58 AM  Top
aimeep80
aimeep80
 
Posts: 1581
Senior Member
I'm an Advocate

Awww man. I will try to get in touch with them and let them know that nobody intentionally ignored their post.
Today is the tomorrow we worried about yesterday. ~Author Unknown

Troubles are a lot like people - they grow bigger if you nurse them. ~Author Unknown

*I'm not a Doctor, any information provided by me is merely a suggestion and not medical advice.

08/16/2011 05:55 PM  Top
aimeep80
aimeep80
 
Posts: 1581
Senior Member
I'm an Advocate

I contacted her on facebook. She said she has been away from here for a while. Me tried Sad I was hoping she would come back.
Today is the tomorrow we worried about yesterday. ~Author Unknown

Troubles are a lot like people - they grow bigger if you nurse them. ~Author Unknown

*I'm not a Doctor, any information provided by me is merely a suggestion and not medical advice.

08/17/2011 05:36 AM  Top
CanadianAngel
CanadianAngel
 
Posts: 993
Member

I am so mad at myself for missing this post. When we 1st post(me anyhow), it seems so tough waiting to see if anyone will write back and what they will say Sad
In three words I can sum up everything I've learned about life. It goes on.

08/17/2011 06:43 AM  Top
CrissyL
CrissyL
 
Posts: 2792
VIP Member

This is soo sad.....from all the replies now I don't think this will happen again, it's too bad it did though. I do remember the name though so I'm pretty sure I must've sent a hug or friend request or something Sad Sad Sad
What lies behind us and what lies before us are tiny matters compared to what lies within us. ~Ralph Waldo Emerson


There are two ways to live: you can live as if nothing is a miracle; you can live as if everything is a miracle.
~Albert Einstein

The more we share, the more we have.

08/17/2011 06:43 AM  Top
CrissyL
CrissyL
 
Posts: 2792
VIP Member

That was really great of you to do that Aimee!!! Smile You rock!!! Smile
What lies behind us and what lies before us are tiny matters compared to what lies within us. ~Ralph Waldo Emerson


There are two ways to live: you can live as if nothing is a miracle; you can live as if everything is a miracle.
~Albert Einstein

The more we share, the more we have.

08/17/2011 09:32 AM  Top
aimeep80
aimeep80
 
Posts: 1581
Senior Member
I'm an Advocate

Sometimes we just overlook posts. I have before, I sure wish she would come back. Thanks Crissy, I just wanted to let her know how sweet everyone here is. Maybe she will give us another shot. You rock! All of you do. <3
Today is the tomorrow we worried about yesterday. ~Author Unknown

Troubles are a lot like people - they grow bigger if you nurse them. ~Author Unknown

*I'm not a Doctor, any information provided by me is merely a suggestion and not medical advice.
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