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Hypocortisolism ForumsGeneral & SupportNews about Cynthia - She's in hospital
03/16/2010 11:16 PM
gwebb
gwebbPosts: 400
Member

Cynthia PM'd me and asked if I would give everyone a quick update on her behalf.

Cynthia's endo has decided to admit her, at least overnight for observation, due to the heart rate issues.

So that's all I know for now and I have my fingers crossed that she's ok and getting the answers.

Can't wait for you to be back on here Cynthia, but only if you're better.... well, feeling better anyway

Gail

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03/17/2010 01:32 AM  Top
ITeach91
ITeach91
 
Posts: 1872
VIP Member

I'll be thinking of her but won't be able to check in until Monday. Sending some healing thoughts and prayers her way,

Deb

I'm glad to share my experience, but I am not a doctor and you should always consult your own physician.

I'm hypopituitary (SAI and hypothyroid) caused by a pituitary cyst. Taking 7.5 mg prednisone and 75 mcg synthroid daily.

Previous discussions I participated in:
Hello
anyone else crave sugar all the time?
Newbie

03/17/2010 06:10 AM  Top
teri72193
teri72193
 
Posts: 1264
Senior Member

Wow, let us know how she is doing please. Our thoughts are with her!
Diagnosed with primary Addisons at age 46 almost died before it was diagnosed. Then told by Mayo Doctors in 2011 that I have secondary. Take HC 30.0 a.m. and 10 mg at noon and 10 mg at 4 p.m. 100 mcg Synthroid. Stress dose with Hydrocortisone for emergencies and carry a Solu-Cortef injection for emergencies. Also take 50,000 Units Vitamin D 3x wk and potassium 15 ml once per day. On pain meds Fentanyl patch 50 mcg and Hycrodone APAP 15 mL every four hours. I love this site and am so grateful for all of you!

03/17/2010 01:29 PM  Top
cathd
cathdPosts: 60
Member

Sometimes it's just good to have someone watching.... hang in there Cynthia!! (and thanks Gail)

03/17/2010 04:56 PM  Top
LittleMissMerrySunshine
LittleMissMerrySunshine
 
Posts: 1446
Group Leader

Okay, I'm alive.

So the chorus has spoken. The Internal Medicine doc, once she got with the program (long story for later), the endo and the cardio have finally reached a consensus. I am going to give the short and vague version for now, which is also pretty brain-fogged.

IM decided that the switch to HC caused this. It is not common, but it happens (although everyone said no, she said yes). They have basically treated it as crisis-symptoms, although they cannot say for sure if it was actually crisis starting (but probably). For whatever reason, HC just wasn't really working right. I was given the rest of my 35mg HC dose yesterday, then at 2am (love docs who don't know the rules about giving steroids at bedtime) gave me a "load dose" of 90 - yes ninety - mg of Prednisone. Today/tonight I am receiving another 40mg, and I will be weaned down from there. And yes, I did verify this with the endo, and I also talked to a couple of nurses, and everyone assured me this was not crazy. I was a little freaked. Not surprisingly, I got about 2 hours total of sleep last night, but I got some sleepy drugs for tonight, so WOOHOO!

Since the load dose at 2am, my heart has stabalized somewhat. It is still close to 100 resting, but that is considered acceptable to the medical establishment. It no longer jumps to 120 when I just sit up. In fact, they had a physical therapist visit with me, and even during walking up and down the hall I did not spike my heart rate more than they felt was okay.

I am on strict bedrest - must have someone around to even go pee - but I hope as I continue feeling better, they will start getting me up and around. I want to feel comfortable getting around, at least some, before I leave.

The cardiologist has stepped out. I had a mega-episode Monday night, and nothing showed up on the heart monitor. I've been monitored 24/7 since I got here, and that hasn't shown anything, either. And with all the med changes, he said it wasn't really beneficial at this point to do a tilt-table or anything. He is going to check on me in the morning, though.

We are guessing I will go home late tomorrow or Friday. I would think they would want to know better how stable I am and have me moving around better - without a freaking alarm on my bed and a "severe fall risk" sign on the door - before I go home.

The P.T. told me I'm not too bad; she showed me some exercises to do while sitting to help me out, then she will be back tomorrow. But she was limited as to what she could recommend before knowing whether this was something to push through until fatigued, past fatigued, or stop before fatigued.

That's all I can think of. Trey is headed home to spend some time with Audrey, and I will try to get on later and post more. My little bro is here so I will commandeer his computer later, because I get what I want. Wink

Thank you for the thoughts and prayers. I've thought of updating you more than my parents (well, there's a lot there, but still...) Frankly, you now know ten times more than they do, because that's been their interest level. Oh well. Family, what can you do?

Hopefully more for later,

Cynthia

Diagnosed PAI & SAI - 12/2009
PCOS - 7/2010 Hysterectomy - 6/2011
Propylene Glycol Allergy - 8/2012
20 mg/day HC
5mg/day prednisone

I always have an opinion or ten, but please consult a medical professional about your own situation. Advice on this board should never be a substitute for seeing a doctor!

03/17/2010 11:54 PM  Top
gwebb
gwebbPosts: 400
Member

Glad to hear from you again Cynthia. Hope you get some good rest and I'm hoping that the changes in your meds helps heaps.

And I have to ask, did you tell the Cardio where to stick the heart monitor????? Or did you plead with him to keep it on just so you could download more and more epidsodes to them. Hehehe. Just thinking about that makes me laugh.

Hey, glad to hear things may be on the mend for ya.... as much as they can be anyway.

Gail (HUGS)

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