Addison Disease Support Group

Updating here. I'm 46 and was diagnosed with Secondary Addison's in June. I was hospitalized with severe flu symptoms for a week, went home and got extremely ill again so I was put back in the hospital for another week. Thank goodness my primary physician did test after test because he found my cortisol level was nearly non-existent. I also have fibromyalgia. I'm married and the mom to Sean, 7 (who has Type 1 Juvenile Diabetes) and Brady, 3 (who has autism but is doing really well). With Brady, my water broke at 22 weeks. The doctors told me there was no way he would make it but we were determined! For 5 more weeks, I was in the hospital thankful for one more day until he was born at 27 weeks (who knew one could continue to carry a baby once the membranes ruptured; I certainly didn't!). So our plates are full but we're lucky. This Addison's, however, is taking its toll right now because I'm so new to it. To not feel like yourself physically (not to mention mentally) is really hard - as you all know. My hugs and support to you all.

Diagnosed with primary Addisons at age 46 almost died before it was diagnosed. Then told by Mayo Doctors in 2011 that I have secondary. Take HC 30.0 a.m. and 10 mg at noon and 10 mg at 4 p.m. 100 mcg Synthroid. Stress dose with Hydrocortisone for emergencies and carry a Solu-Cortef injection for emergencies. Also take 50,000 Units Vitamin D 3x wk and potassium 15 ml once per day. On pain meds Fentanyl patch 50 mcg and Hycrodone APAP 15 mL every four hours. I love this site and am so grateful for all of you!

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