http://www.mdjunction.com/forums/acromegaly-discussions/feed http://www.mdjunction.com/forums/acromegaly-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Wed, 19 Jun 2013 06:06:16 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/introductions-personal-stories/3936042-self-diagnosedmedical-diagnosis-next-week#10531008 How did your husband do with the surgery Tbeckner? (Sorry, haven't been on this for a very long time) How big was his tumour? What symptoms did he have? Did he have acromegaly? Had he been taking any medication before that? If so, how much and for how long? I heard those operations were extremely painful. Is he fine now (I hope)?... Wed, 06 Mar 2013 19:28:52 -0800 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/3516680-could-acromegaly-main-killer-disease-behind-most#10530624 Forgot to mention, high calcium levels also, for no reason. Don't take calcium pills and don't drink milk. Fear parathyroid problems but I doubt calcium levels will be followed up very often.... Wed, 06 Mar 2013 16:33:09 -0800 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10510726-need-help-with-glucose-tolerance-test#10510726 Hi all. New member here :). I took a glucose tolerance test to check my gh level and one hour after I drank the drink my gh level tested at .2, the second hour is what up to 7.2. Is this normal? I know it says on my research it should fall below 1 which it did for the first hour but not the second hour draw. Does this mean I have acromegaly?... Mon, 25 Feb 2013 17:08:21 -0800 http://www.mdjunction.com/forums/acromegaly-discussions/medicine-treatments/10463378-can-acromegaly-affect-this-way#10463378 So i suspect i might have acromegaly, but only on the right side of my body. As for my left side of my body its perfectly fine. The right side of my body seems to have the following typical acromegaly symptoms: large/wide skull on right side, protuding right jaw, right protuding eyebrow ridge, what looks to be skin tag on right side back of neck (not sure if its skin tags, could just be beauty marks buts its like 15 of them next to each other), large right side hand, large right side foot, and o... Wed, 06 Feb 2013 20:41:48 -0800 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10435385-anybody-out-there#10451043 Hey - PM me if you want to chat or have questions. I too had (have) acromegaly and am doing very well now. Feel free to ask me anything you want but personal message me because I don't check in here much at all and the PM will notify me by email.... Sat, 02 Feb 2013 05:00:51 -0800 http://www.mdjunction.com/forums/acromegaly-discussions/medicine-treatments/167160-what-medication-is-working-for-you#10378262 Somatuline depot works well for me. Been on it for 18 months. Self inject with little discomfort monthly. Slight cramping in abdomen now and then but overall very mild side effects.... Sun, 06 Jan 2013 10:46:24 -0800 http://www.mdjunction.com/forums/acromegaly-discussions/medicine-treatments/10297191-problems-with-different-nurses-giving-injections#10297191 My doctor's office does not let us make appointments with a particular nurse when we schedule our injection appointments. It's really a crap shoot which nurse I get. I started out with a nurse who was really good at giving the Sandostatin shots. Then, he moved on to other procedures and I never know which nurse I'm going to get. Some nurses are pretty good at giving the shots (although none compare to the first nurse). Others, well, the injection site hurts for days afterwards. I don't mi... Sat, 01 Dec 2012 22:15:41 -0800 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10293699-webinar-about-acromegaly-by-the-pna#10293699 Did anyone view the webinar about acromegaly by the PNA?... Fri, 30 Nov 2012 13:04:26 -0800 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10204360-i-have-elevated-igf1-worsening-symptoms-but-normal-gtt#10204360 Hi all, Ive been experiencing symptoms for a while now but only suddenly(in the last 6 months) did they intensify exhibit very characteristic facial features of acromegaly. So I begged my PCP for an igf-1 which was slightly elevated 342(range for age is 119-324) and was referred to an endocrinologist that did another igf-1 which was 577 only a few weeks after the initial one, this prompted a recheck(another igf-1) that was 487 then an oral glucose tolerance test that came out normal apparently... Thu, 25 Oct 2012 05:16:01 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10204358-i-have-elevated-igf1-worsening-symptoms-but-normal-gtt#10204358 Hi all, Ive been experiencing symptoms for a while now but only suddenly(in the last 6 months) did they intensify exhibit very characteristic facial features of acromegaly. So I begged my PCP for an igf-1 which was slightly elevated 342(range for age is 119-324) and was referred to an endocrinologist that did another igf-1 which was 577 only a few weeks after the initial one, this prompted a recheck(another igf-1) that was 487 then an oral glucose tolerance test that came out normal apparently... Thu, 25 Oct 2012 05:15:46 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10189986-how-does-treatment-affects-the-voice-#10189986 I have a rare situation of acromegaly combined with gender identity disorder. I started 1 year ago hormonal therapy as part of transition from male to female . I also started treatment in somatuline in order to reduce growth hormone. I hope it will help my voice , body and face to be less masculine... Sat, 20 Oct 2012 02:58:59 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10143096-unexplained-high-igf1#10143096 Hi just wondered if anyone can shed some light on what might be going on with me? I have a raised IGF1 and BP3 but the doctors dont seem to know what to do with me now as the other tests they have done seem to be ok. My IGF1 was 495ng/L (top of the range for my age is 280). My growth hormone suppresses with an OGTT and my growth hormone day curve was 'normal' although there was a peak level during it of 14ug/L but they have said this can happen. The other values were low with the highest bein... Wed, 03 Oct 2012 09:46:16 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10053193-acromegaly-and-ostioarthritis#10053193 I have had acromegely for over 30 years, and am now trying to get disability through my insurance company and will soon apply for social security. So far the insurance company is trying to deny benefits. Any thoughts or experience?... Fri, 31 Aug 2012 09:48:18 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/2101972-unsuccessful-pituary-surgery-for-acromegaly-help#10053176 I had this same issue after my second sugery. Radiation treatment was the option, but it takes years to fully kill the tumor. The end result from the radiation treatment is short term memory loss problems for the rest of your life....but you feel much better. I would discuss his with a your doctor.... Fri, 31 Aug 2012 09:44:14 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10021564-diagnosed#10044698 thank you... Tue, 28 Aug 2012 06:24:36 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/10010798-loss-of-job-servance-pay-warning#10010798 Hi, In Oct 2011 I lost my job of over 26 years due to down sizing at a hospital. Once I said the company names I could not get an appointment with a servance lawyer. It seems that some states do not want you to know this and you can not find this online. Watch how your servance is paid out, best to do a lump sum. Otherwise could loss your state disablity payments like I did. Here I worked in fiance and no one told me this knowing that I had disablity. I was diagonis with acromegaly on Dec 23, 2... Wed, 15 Aug 2012 19:21:33 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/3713937-tumor-and-lab-results-indicate-acromegaly#3953016 I hope you have figured out what to do since the post. My husband was diagnosed right about the same time you were and has already had surgery. Please let me know if I can help :)... Thu, 26 Jul 2012 09:31:37 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/3952467-skin-changes#3952467 Does anyone know what the changes are in the skin that causes the doughy feeling and how to treat it? Thank you!... Thu, 26 Jul 2012 06:39:55 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/3767459-colitiscrohns-and-acromegaly#3930350 you've got company. diagnosed with Left-sided UC in 2005. Diagnosed with acromegaly and pituitary macroadenoma in 2011. underwent transnasal surgery. A year later, looking at some similar suspicious acromegaly type symptoms. UC continues unabated.... Wed, 18 Jul 2012 23:24:23 -0700 http://www.mdjunction.com/forums/acromegaly-discussions/general-support/3826596-living-26-yrs-with-acromegaly-post-surgery-2-times#3826596 I was diagnosed with Acromegaly in 1984 6 weeks before my wedding. I was told I would never have children. In 1986 I had surgery after trying parlodel to remove the tumor. I never required replacement hormones and went on to have 2 children. In 2000 the tumor was back in a life threatening size so surgery again. Since that surgery I have been so unhealthy. I had female bleeding for 6 months straight with no help from the dr.s and never hungry, lost weight, hair and began to have fainting epis... Wed, 13 Jun 2012 08:47:13 -0700