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Written by auggie
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04 May 2008 |
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Hello - this is what i have being sent out on Wednesday to Radio & TV program Directors. This will bE delvered via Fax and email.
Because this is to attract attention and prompt interest (and because we have no single CONTACT here ) we are focusing on ONE CALL to action. To GET interested - to at bare minmium mention it BUT if not to at least broadcast about -- SEE Sound Bites.
Attention -- Interest -- Desire -- Action.
NOTHINg will ever say it all - but hopefull this will NOT be galnced at. Teh request for Action is "get interested" please. Then the FACT sheet (ALSO PUBLISHED HERE) will be attahced with suggested "blurbs" (sound bites). NOT a "sniper" but a "tighter grenade" that i will sned to approx 2,000.
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Written by auggie
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04 May 2008 |
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LETTER STYLE: Personal and individualized. I have also added their "Fact Sheet" (which is what I am blasing out on Wednesday to Program Directors -- Radio & TV) -- luv Auggie
For those of you who want to write YOUR STORY -- to polticians, newspapers, etc. These are GOOG guidleines from National Fibromyalgia Association. Your story - your path - your experinece voiced is powerful - Keep up the great work! I am posting 2 other copies 1.) The PR awareness letter I created and 2.) A letter you may or may not desire to use.
National Fibromyalgia Association (NFA) is a non-profit [501 (c) (3)] organization. www.FMaware.org (714) 921-0150
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Written by PamelaG
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29 April 2008 |
May 12 is National Fibromyalgia Awareness Day. You may or may not know what Fibromyalgia is, or you may have caught brief glimpses of commercials on tv for medicines for Fibromyalgia. The purpose of National Fibromyalgia Awareness Day is, of course, to bring awareness to the general public. It was first discovered in the year 1815 and yet it is still not recognized by much of the World's population, and even a large percentage of the Doctors don't have knowledge on it. Diagnosis depends on how good and how knowledgeable your Doctors are. It can take anywhere from a year to 5 or 6 to fully diagnose it.
What is Fibromyalgia? Fibromyalgia (FM) is a chronic pain disorder characterized by widespread musculoskeletal aches, pain and stiffness, soft tissue tenderness, general fatigue, and sleep disturbances. The most common sites of pain include the neck, back, shoulders, pelvic girdle, and hands, but any body part can be affected. Fibromyalgia patients experience a range of symptoms of varying intensities. Pain is not centered just on the tender points and can move all over the body. Some times you might have pains in the leg, and an hour or day later have pain in the back, hips, etc. The intensity ranges from very uncomfortable to completely debilitating. Sometimes Fibromyalgia and Lupus are misdiagnosed as the other but Lupus can be correctly diagnosed with blood work, etc.
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Written by geekGirl
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24 April 2008 |
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Pain is typically defined by neuroscientists as an unpleasant sensory and emotional experience associated with actual or potential tissue damage (Sufka & Lynch, 2000). Pain is highly associated psychologically with distress as an undifferentiated protest against anything that is unpleasant or aversive (Kalat & Shiota, 2007). The function of pain is generally believed to be the escape and avoidance to prevent further trauma and/or promote the healing processes (Williams, 2002). Pain is experienced by everyone, but is expressed in different ways (Llewellyn, n.d.). These definitions suggest pain is an emotional experience. I will show how pain fits into all five criteria of a basic emotion, then I will compare pain to the emotions already classified as basic in the way they are related to mental illness in order to provide further evidence that pain is in fact a basic emotion.
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Written by seawench
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14 April 2008 |
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Fibromyalgia is the one thing in my 52 years of living that just literally stopped me dead in my tracks. I never saw it coming. But then, most life changes are like that, unexpected. This is an ongoing article.
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