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"My son was born with Congenital Cytomegalovivus CMV. We have been pretty lucky u..." (mamelmel3)

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scotty04901"MDJ to me is an added phase in my recovery as a 44 year survivor of a TBI. I hope that with what I have lived through in those years, will be able to help all those who are just now going through. It is important to understand that even after 44 yrs, I am continuing to recover and to evolve. I just hope I can help others." (scotty04901)

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Fibrodysplasia Ossificans Progressiva Support Group
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Fibrodysplasia Ossificans Progressiva Group Members (11)
jaces78 jaces78
Female, 35
spearfish, SD
Joined: 06/19/2012
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angnran2 angnran2
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AlisArmy
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Joined: 02/12/2012
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Fibroladi
 
Fibroladi
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helent helent
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Harrogate, England
Joined: 09/23/2009
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"I'm 30 years old and was diagnosed with FD at the age of three. I have had a number of operations to reduce my upper and lower jaw and I am currently undergoing investigations to find out if the FD i..."
 
poleflux poleflux
klamath falls, OR
Joined: 07/24/2009
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Nicole2009 Nicole2009
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fooledya421 fooledya421
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Spotsylvania, VA
Joined: 01/04/2009
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"I'm 23, i live in VA and live off of disability. I dont ever get out much but i have a few very good friends that help me with everything. I'd like to add more to the list."
 
peachgurlie peachgurlie
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atlanta, GA
Joined: 04/25/2008
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"i have fop"
 
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