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Ehlers-Danlos Syndrome Support Group

A community of patients, family members and friends dedicated to dealing with Ehlers-Danlos Syndrome, together.

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Current Ehlers-Danlos Syndrome Discussions

See All Current Discussions *Be the First - Unanswered Posts

EDS - support, help, no one "gets it"?!?

"Don't ever feel sorry....that's what this forum is for. You sim..."

by cgibbs
in EDS General & Support - 1 day ago

Does this sound like EDS?

"Well they can no longer deny you coverage for a genic issue. I ..."

by cgibbs
in EDS General & Support - 1 day ago

How to explain, how to tell others & family about EDS

"I'm a 23 year old lady that got diagnosed recently, but I believ..."

by pinkypants
in EDS General & Support - 3 days ago

diagnosed 3 days ago, whats the prognosis?

"Interesting. I've read some of her stuff but missed that one I g..."

by hatbox121

in EDS General & Support - 10 days ago

Teenager with eds

"@sslmd yes I am currently using braces for my karate and other p..."

by graphicgeek
in EDS Introductions & Personal Stories - 16 days ago

Think I have it.

"The geneticists we seen were with Baylor College of Medicine......."

by cgibbs
in EDS General & Support - 17 days ago

young kids with EDS

"Hi there. I have EDS and both of my kids have it. They are 9 and..."

by hatbox121

in EDS Introductions & Personal Stories - 18 days ago

Orthostasis frustration

"I'm on florinef for POTS but I believe it's used in other OIs as..."

by hatbox121

in EDS General & Support - 18 days ago

May is EDS awareness month

"May is EDS awareness month so if you can please spread info arou..."

by hatbox121

in EDS General & Support - 18 days ago

EDNF conference 2013

"The Ehlers Danlos National Foundation is having their annual con..."

by oXoAliceoXo
in EDS General & Support - 20 days ago

Latest Group Diary Posts

TOS surgery-rib remova...
"This is my second draft, first one got deleted bef..."

diagnosis
"Extensive nerve damage to brachial plexus resultin..."

writing for two
"Hello I am writing for two. Me and my 18 year old ..."

effects of EDS
"I was genetically tested and diagnosed with EDS in..."

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EDS Group Activity

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Ehlers-Danlos Syndrome Videos

National Institutes of Health on Health Issues	HIV-Vaccine Trial Shut Down When It Doesn't Work	Watch the Sammies Winners: The Science and Environment Medal Goes To...	Watch The Sammies Winners: Federal Employee Of The Year Goes To...
EDS Videos

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