|
A community of patients, family members and friends dedicated to dealing with Dystonia, together.
|
| Group Home | Forums | Articles | Members (163) | Diaries | Videos | Leaders | Guidelines |
|
Dystonia Community› Dystonia Diaries
Latest Dystonia Diaries
 |
"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
 |
"A few updates on my sweet husband. He got his powerport placed on Tuesday, May 7. They gave him his first infusion while we were at the hospital. The next morning I could almost swear that he was..." |
 |
"Be my Mars my traveler from the stars. A navigator to my heart to all my passions,and run away stars. Be all I want and all I need. Keep my stars shining in my eyes,from the" |
|
|
"Blues mountain melody,blue birds singing love songs to me." |
|
|
"She’s agile and seeking comfort, over and over. Laying in her bedroom, weaving and sewing, seeking her lover. Black widow over and over, " |
|
|
"Last month, the LLMD refused to put Aaron on IV antibiotics because of his protein-S deficiency. Told us to get retested in a month. I started him on Nattokinase shortly after that, because the body s..." |
|
|
"Relevant Results: Lyme Western Blot (LabCorp)IgG p41: Present (abnormal)IgM p23: Present (abnormal) Bilirubin1.6 - HighHLA DRB1, 3, 4, 5, DQB1 (IR)DRB1*15DRB5*01DQB1*06Epstein-Barr Acute In..." |
 |
"In my last entry I talked about feeling really good for nearly a week. I take it back for now. Today is a new day and I feel good about it which means I will work very hard at keeping it g..." |
|
|
"I've been in a better mood since Monday, today is Thur. A little more energy, not sitting all day which really brings me down. Dr. changed me to Lexapro about 1 mo. ago after trying Cy..." |
|
|
"I should have been here on Monday. The day was so full of ups and downs. Lora agreed to come help me paint the basement. I feel the need to keep improving the house in order to get it sold..." |
|
|
"Who are the gatekeepers of my diagnosis? Who are gurus? Is there a list of the names, ages and symptoms of each and every person inflicted with a dystonia-like illness somewhere? Who's to say that..." |
|
|
"I'v been in three big relationships in my hole life that I thought would last but ended the same way, the guy was to much into himself and didn't care about me and my feelings. In" |
|
|
"Okay for the longest time I thought that it was strange medications didn't work and made things worst off for me. I resonantly have been going to a counselor who I asked if" |
|
|
"So, I had a gretat weekend. I was able to enjoy my daughter's play and time with my family for my birthday. What a great gift. 48 hours of manageable pain. SO thankful. So here" |
|
|
"I know I won't writ in this everyday but at least there is an outlet. I am not a pitying person. I keep moving..quoting the lyrics of my favorite song "May the past be the sound of your" |
|
|
"Woke up stiff. Pain was mostly bothersome but manageable. Dr. finally said "I'm sorry, Dena. I wish I could tell you somethng different but it is Cervical Dystonia."&nb..." |
|
|
"Okay here it is I'm doing so much better scene I was taken off my medications, I'm not twitching and curling up as much and I'm not as moody as I was on the medication" |
 |
"Lately i have been having several weird vertigo/hallicinations issues. It can be so bad it makes me sick and I throw up!!! The trees have this telescoping effect, the room spins and if i close my eyes" |
|
|
"My memory is flawed " |
|
|
"I'm trying not to lose my mind, my doctors say I need off my medication because my rare movement disorder is being affected. I have known for many years that I need to not be on so much medic..." |
|
|
"Hello friendsIt’s time for autumn updates.The first thing you probably noticed is that the left pane is on the left again!You guys voted & although it was close, the" |
 |
"Dear MJD friends, Thank you all so much for the hugs--I APOLOGIZE profusely for being so absent & not returning them (I was inside). A great part of the last months has" |
|
|
"Happy days on MDJ... The green logo you guys chose dictated the rest but we tried to keep as many elements the same or similar. I really hope you like it!!It looks to us as everything is working" |
|
|
"I went to the doctor last week and I was diagnosed with Prophyia a DNA test as proven it. I now my Grandmother and my father had it but I thought I would be different that " |
|
|
" I’d like to apologize to the many people whom I didn’t answer the past few days… as you can see I had a very good reason… ;-)" |
|
Results 1 - 10 of 141 << Start < Prev 1 2 3 4 5 6 7 8 9 10 Next > End >> |
|