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Dystonia Support Group

A community of patients, family members and friends dedicated to dealing with Dystonia, together.

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Current Dystonia Discussions

See All Current Discussions *Be the First - Unanswered Posts

Baby with dystonia - anyone else out there??

"Hi , I am a former sufferer of dystonia and want to offer you ..."

by nonsufferer
in Dystonia General & Support - 2 days ago

Looking for advice on pain management for Dystonia

"I have focal dystonia of one leg that has been progressive for 3..."

by ANTIA
in Dystonia General & Support - 2 days ago

new to group, dystonia veteran

"Hi Was wondering how Andi is doing. My daughter had her dbs ..."

by irishgirl85

in Dystonia Introductions & Personal Stories - 2 days ago

Looking for help for son

"Hi, I am writing about my 7 year old son. We are having difficu..."

by dad2E
in Dystonia General & Support - 18 days ago

Botox injections are making me sick

"Hi Alyson, I'm Joanna I'm sorry to hear that Botox hasn't reall..."

by scuba07
in Dystonia General & Support - 29 days ago

Leg dystonia

"I have FOCAL (left lower limb) TASK SPECIFIC (walking) DYSTONIA...."

by ANTIA
in Dystonia Introductions & Personal Stories

Severe Dystonia

"my husband has dystonia and it has caused terrible weight loss a..."

by aaweparker

in Dystonia General & Support

Medications and Treatments

"im on clazpaim terol and dont no the other one"

by martina123
in Dystonia Medicine & Treatments

Anyone with oromandibular dystonia?

"It's my understanding the oromandibular dystonia is unique to ea..."

by NancyK
in Dystonia Introductions & Personal Stories

speech problems!!!!

"I don't have exactly the same problem, but I do have problems wi..."

by NancyK
in Dystonia General & Support

Latest Group Diary Posts

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Starting IV Rocephin
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A navigator to my hear...
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Blues mountain melody ...
"Blues mountain melody,blue birds singing love song..."

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Dystonia Group Activity

	Claire138 gave andy1fields a Hug
	grubmom joined the Dystonia group
	dechantal gave twistedDNA a Hug
	twistedDNA gave dechantal a Hug
	twistedDNA gave Mariann a Hug
	twistedDNA gave Tui a Hug
	2steveb gave tenged a Hug
	HiddenButterfly gave MBC25 a Hug

Dystonia Videos

Genetic Sequencing Helps Twins with Dystonia	Living with Muscle Dystonia	Alex's Incredible Transformation After Dystonia Surgery	Alex After Deep Brain Stimulation Surgery for Dystonia
Dystonia Videos

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
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