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A community of patients, family members and friends dedicated to dealing with Duchenne muscular dystrophy, together.
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Duchenne Community› Duchenne Diaries
Latest Duchenne Muscular Dystrophy Diaries
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"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
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"well i am trying to cope with all of this what i dont understand is why bad things happen to good people. i hope one day that god can explain why my brother has been dealt such a horrible hand. i do n..." |
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"Cameron started a journey book. He takes pictures of everything and puts them in his book. He has me write a caption next to the picture. It's crazy how much he understands. He said so that when" |
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"Hello friendsIt’s time for autumn updates.The first thing you probably noticed is that the left pane is on the left again!You guys voted & although it was close, the" |
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"Happy days on MDJ... The green logo you guys chose dictated the rest but we tried to keep as many elements the same or similar. I really hope you like it!!It looks to us as everything is working" |
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"Barely a week old, we have learned that Bennett's CPK results were very high. Normal levels are between 0-315. His was 4,222. I'm not fully aware of what this means but have" |
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" I’d like to apologize to the many people whom I didn’t answer the past few days… as you can see I had a very good reason… ;-)" |
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" 77% of the votes!!...not a big surprise to anyone who read some of" |
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" Hello Fellow members! I’ll keep this short and Sweet… It’s time to give MDJ a little face lift & we want" |
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" Hi Everyone, I hope this finds YOU in good health & spirit! Today we launched a few upgrades that, as always, were requested by your fellow members and are all improvements of your " |
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"I wish I could wear the puzzle and silver ribbon, but I cannot because the limit for ribbons is ten! Also I wish there was a dyslexia ribbon so I can support my uncle and my friend who lives " |
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"My Dear MDJ Family ;-) Once again it looks like i'm falling behind on my diary updates. almost 3 months since the last one.... :? BUT at least I bring good news... starting now" |
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" Hello my friends ;-) I hope" |
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" UPDATE: as of August 2012 we no longer support the MDJ toolbar and we recommend uninstalling it. Exciting day !I am very happy to announce the launch of the MDJunction Communi..." |
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"Hi everyone ;-)It’s been a long long time since I last updated my diary. Too long, I guess I’m nearly failing :?In about 10 days we will have some very exciting" |
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"Hello MDJunction family!So many things I want to talk to you all about… ;-)I'll start with a BIG thank you to all our advocates" |
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" Good day my friends ;-) Unbelievable! It’s mid November 2009. I just can’t believe it’s been almost 10 years since Y2K and believing" |
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" Hello my friends ;-)I love summer. That big yellow thing in the sky just makes me automatically" |
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" Hello friends, It's been three months since my last diary post. I'm really not living up to my promises here... As you guys probably notice MDJunction is getting bigger" |
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"Happy Holiday Season My Friends! I hope you all got used to the new look by now and enjoy the better navigation between pages, more navigation improvements are in the oven. The " |
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" Hello Hello Hello, Weeeeeeeeeee Weeeeeeeeeee Weeeeeeeeeee ;-) As you can probably see…… we&#" |
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"Hello Hello!A couple of weeks ago I spoke with some of you about spreading the word on MDJunction. I was shocked when I realized so many are already doing great things and WOOOW the ideas I " |
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"Hi Everyone,A few quick notes.First I'd like to tell you, that as you probably noticed the community continues to grow very fast. We have more than 300,000 monthly visitors" |
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"A lot of people ask me if/how they can help MDJunction grow and help more people.Well… we do need your help! Bellow is a small list of things I thought" |
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" Its been a long long time since I last posted here. I guess Alon keeps you guys updated and I have nothing really smart to say ;-) " |
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