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"For my friends daughter 16 years old " (garybobbs)

MDJunction to me

tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

more testimonials
Dgwinvre

Wow, still in shock. Journey to acceptance.

I am 43 yrs old and recently diagnosed with crohns disease and diverticulosis. I am trying to learn everything I can to make this as hopeful as possible. Having an incurable disease has thrown me for a loop. I am fairly young and freaking out because of the things I know can occur with this disease. I have a husband who is diabetic and disabled and two dogs and two cats. My children are grown, but have my husband's surprise daughter possibly coming to live with us and she is almost 16. Wow too much happening in a short period of time.


My mom is coming to visit

May 10 2012
My mother is finally coming up to Ohio to visit.  I think she will love the area I live in.  She wanted so badly for me to come back to FL and work for her again.  I told her now that Ihave been diagnosed with Crohns and have some other issues I can't. With her there is no insurance.  As some of you know Pentassa is almost 1200 a month, I pay 60 on my ins. plan from Lowes.  So I am stuck now.  It amazes me that last year I talked about letting the insurance lapse,  it was a waste of money,  I never visited Drs unless I felt like I was dying.  I thank God everyday now that I didn't do that.  All of the tests and medications would have truly taken me under.  I have felt a bit better for the last week when it comes to the Crohns.  The pain however in the heel and the elbow are getting very bad now.  I stopped the Predisone three weeks ago and the Etolac (anti-inflammatory) two weeks ago.  The limp is back and even when I am off my feet the heel is tender to the touch and pulses pain and throbbing.  This sucks, especially, when my hubby wants me to accompany him everywhere and take the dogs out twice a day even though we have a fenced in yard.  He thinks he is doing it with my best interest at heart.  But after being on my feet for eight hours on the concrete I kind of don't feel like it.  I am such a wimp.  Back to mom.  She will be in on Sunday night  , I hope she enjoys herself and I am hoping I stay healthy while she is here.  Going to go see Dark Shadows, love those Burton/Depp collaborations.

Previous diary posts by Dgwinvre:
Comments (2)Add Comment
written by libit, May 11, 2012
Enjoy the visit with your Mom. smilies/smiley.gif

Be sure and take as much time with her as you can us girls always need our Moms. smilies/smiley.gif
written by Dgwinvre, May 13, 2012
I will definitely enjoy my time with her. mothers day weekend was a perfect time for her to come up smilies/cheesy.gif

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