Why do we call them experts?
By Tom Grier
Whenever there is a new disease described in the medical literature; a small group of scientists, doctors and epidemiologists get very excited.
I am just old enough to remember the clamor and excitement about Lyme disease in 1975 because at that time when Alan Steere first described “Lyme Arthritis” in the medical literature.
I was a naïve microbiology graduate student taking classes at the Medical School in Duluth, and all the young minds and our mentors at the school were buzzing and hypothesizing about what could be causing this mystery illness in Old Lyme Connecticut.
When a new illness is discovered we want to be sure about certain things as soon as possible:
How is it spread?
Is it spread from person to person?
Where is it located?
Is it spreading or isolated and contained?
What are the symptoms?
Who does it affect?
What are the short and long-term consequences? Is there a test? Can it be treated?
Can it be cured?
Can we make a vaccine?
I can remember professors being very guarded and excited about this illness. It was almost like the challenge to find a cure for Polio; the medical community was being poked, and the soldiers of the medical-arts were ready for battle.
I remember with great clarity the absolute statements that were being told in 1977 to the medical students by the CDC and the country’s top medical experts.
Statements were continually issued about this new illness and nearly all of them had the undertone of:
Don’t worry. This isn’t a serious illness. And we are handling it.
In Clinical Science class, all of us were told that Lyme Arthritis was isolated to the NE USA and primarily in Connecticut.
We were told it was not contagious.
We were told it appeared to be only a rheumatoid disease and not life threatening.
We were told that the primary symptom was a rash.
We were told that it was self limiting and could resolve on its own.
In my old class room notes, I circled something I wore:
"Two weeks of tetracycline effective: has to be a bacteria or mycoplasma! Curable."
Like many others I assumed like most 20th century bacterial infections, that it was easily curable.
Mind you no one knew if it was actually caused by a virus, a parasite or a bacterium, but since tetracycline appeared to be effective, Lyme was treated exactly like a Strep throat with two weeks of a safe and inexpensive antibiotic.
Tetracycline was an antibiotic that was often used for to treat acne, and sometimes prescribed for years at a time.
(Funny how no acne cases have ever been cured by antibiotics. Acne must really be a serious illness!)
My point is: The experts got it wrong. They got it all wrong!
Almost everything that was important to know about this Borreliosis only found in Old Lyme CT, the experts got wrong.
The experts did not vacillate or equivocate; they made absolute statements to the public with absolute certainty, and were absolutely wrong.
And to my knowledge they have never collectively or individually apologized or recanted on their mistakes nor have we held them or their institutions accountable.
So why then do we still allow them to this day to be called Lyme-Disease experts when they have caused such international suffering and even deaths?
Yet we continue to allow them to dictate their opinions world-wide as absolute facts?
If you want to know the gist of my blogs:
It is simple: Let pathology and microbiology be our experts. If something is true, it can be put to the test.
I have a great deal of respect for the purity and sanctity of science, I never thought that in my lifetime I would see such corruption of science as I have seen by our own CDC and State Health Departments to turn their backs on Lyme patients and science.
Why they have chosen to be villains rather than heroes is speculation, but those that corrupt and purposely ignore the ever growing evidence of persistence of infection post-treatment are not our experts, but rather conspirators, and I will not accept their unconscionable acts as anything less than what they are:
Next Blog: “Who Will Our Heroes Be?”
Tom Grier asked me, BettyG, Iowa lyme activist/lyme group leader/llmd coordinator to post his blogs. He does not want to come onto the boards and reply.
Tom is super busy with all his lyme/co-infection research and making public talks of his findings.
[quote]hot water therapy for Lyme by TOM GRIER
[b]The man who really [u]researched hyperthermia treatment with Borrelia burgdorferi was Art Dukty[/u] and muchof his information was based on the success that[u] Dr Herman Bundeson (Chicago 1942) had with treating Syphilis with whole body steam cabinets. [/b][/u]
(Read "Life Among the Doctors" by Paul DeKruif)
The fact that Borrelia spirochetes and Treponeme spirochetes are susceptible to heat (heat labile) [b]has led to some success with treatment of relapsing Lyme. [/b]
In the early 1990s, [u]Dr. Willy Burgdorfer (Rocky Mt Labs, NIH)[/u] did a very preliminary study suggesting that Borrelia burgdorferi could not survive temperatures above 108 F for more than 20 minutes.
[b]But proper time and temperature studies either in the lab or in humans [u]has never been done,[/u] so we work on assumptions.[/b]
[b]We cannot get the whole body up to 108 F for long without risking death and brain damage,[/b] but we can get skin temperature to those temperatures and times and [b]we think dormant Borrelia can hide within skin cells (intracellular in fibroblasts). [/b]
The benefit of hyperthermia treatment is that killing any bacteria helps decrease the infection load, killing dormant bacteria lessens the potential for relapse, and the dead bacteria sometimes stimulated the immune system to once again produce antibodies, [b]which means Lyme tests have a better chance of being positive after several weeks of hyperthermia. [/b]
The advantage of [b]hyperthermia treatment while on antibiotics is even better.[/b]
Based on the work done by Dr Herman Bundeson MD; he found that penicillin got into the brains of tertiary Syphilis patients 3x better when getting the body's core temperature to 102F, [b]also the dilation of vessels means better drug penetration into joints during heat sessions. [/b]
The net result, Dr Bundeson reported was that he had almost no treatment failures with penicillin in tertiary Syphilis if he added his regimen of Heat treatments.
His heat treatments were severe:
[b]Three times a week for two weeks, a patient must remain in a Steam Cabinet for 8 hours at a stretch maintaining core body temperature of 102F.
(He used a [u]rectal thermometer [/u]that was read on a gauge on the outside of the steam cabinet).
So a patient had a [u]total of 24 hours of heat treatment in a week times two weeks. [/u]
Relapse rate for tertiary Syphilis was about [u]25 % with heat alone and about 12 % for Penicillin alone and about 4 % for combined. [/b] [/u]
Lyme may take longer than two weeks and higher temperatures and almost certainly should be combined with antibiotics.
[b]I did this for 3 months but had trouble finding hot tubs at high enough temps until I installed my own, and [u]found I had poor tolerance of heat. This is pretty typical of Lymeies.[/b] [/u]
[b][u]The combination of roxrithromyacin 300 mg BID with Bactrim DS and Hot tubbing,[/u] I think had the greatest impact on my recovery.
Later I did[u] metronidizole and heat for 6 weeks. [/b][/u] I hope this helps?
fyi, tom grier has asked me to post his comments for him. ;)
bettyg, leader, iowa activist, llmd coordinator [/quote]
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