What is this? LUPUS!!!!!

It's late it's about 12:15am and I am on my way to bed, but wanted to write in my diary. I woke up at 7:30 am with this headache but I realized in about 20 minutes it wasn't a headache but rather a migraine only to get worse and worse thru out the day. So I was on a blackout till 4:00 pm. Waste of a day.  It was so bad 2day that I was sicker (nausea) then a dog.

I did hav

Woke up today and shocked me awake, I jumped out of bed to go to the door and OMG I literally feel (I was in that 7 second call).  I'm ok.  But I didn't realize I really can'tjust jump up and get out of bed like that.  I usually start trying to get up about 1 to 1 1/2 hour before actually getting up.  On an average it takes that long. Like I said I didn't hur

It's been several weeks since I have written but this "thing" keeps on attacking. I am in no mood or have any motivation to do anything.

Last I left I was told I needed some further{read previous entry}cardiac testing.  Apparently the chest X-ray done prior to my hospitalization earlier last month not only showed fluid in lungs (pneumonia) but showed enlarged heart. So

You know I wonder how much more if any I can take, I am not a religious person really but 1 Corthians 10:13 states "God wouldn't give you more than you can handle and if so will give you away to stand up under it"  I'm done, I'm done, I'm done. Overall, I have been healthy until the last 8- 10  months.  I am trying to get SSID but illness keep coming.&nb

I haven't been on at all for almost 2 weeks, I was in the hospital. I don't know what's happening, I have all these fibro symptoms then WHAM I'm hit with a severe asthma attack to landme in the hospital. During that time my fibro symptoms were set aside becuz of the asthma and it's effect it had on me. Has anyone every had asthma problems with the fibro. I developed mild ast

I have gone to the Doctors every day this week.  G.I., Dermatologist, Hematologist and Sleep Disorder Center 2morrow, and next Wednesday the PCP.  I am so frustrated right now I could justkill (figurtivily)  someone. Each Dr is passing the buck "well let's see what the other doctors say" or Well I see that the PCP said it was such and such and each dr will concer un

I am a very private person at least when it comes to my space (my bubble).  I don't have to much company because I want my home to be my home and my domain, so I'll go to others alot morethan they come here.  I don't have people stay overnite except for my best friends (couple), they stay anywhere from one week to 3 weeks. I put up with it becuz I'm glad they are here

It's been about a week since I have written in my diary.  I had a CT scan done of my abdomen and lower rt quarant and went to a hemotologist.  So the CT scan shows that my liver is enlargedand a mild spot on liver but the dr said he would watch it that it doesn't seem like anything to worry about.  Hemotologist states that I might have a rare blood disorder called porphyr

At least I was heard and I feel that some progression is being made. Everything has a roadblock.  CT called to schedule appt, when they found out I didn't have insurance they said it wouldcost $807.00, she said that they need at least 20% (95.00) after about an hr of trying to get this done without monies. I called my mother and she is going to reimburse me the $95.00 when and this com

So I went to see another Dr today (PCP) only one who would see me. It was a 30 minute appt that lasted just over 3 hours. Tried to explain what was happening, she kind of narrow into a few things and was going to leave and I stood up and said NO YOU MUST LISTEN TO ME. She sat back down.  I spoke up completely (10 mins max). So, at this point she wanted to do a complete physical RIGHT NOW (

Woke up at a decent hour but had a really hard time going, truth be told, I couldn't even muster up enuf energy to get dressed.  My poor dog is out of dog food. 2morrow I go to a workers compensationdoctor(in addition to everything else I have a open w/c case). I am trying to work on collecting information for Social Security.  Trying to remember who I saw for what and when (Medic

I have been up since before 8:00am and it's just 9:00 am now, I am feeling good (this is weird), haven't felt like this moment in almost 2 years.  What's up with that? Don't misunderstandI'm NOT complaining, just weird.

Had a good day.  Saw daughter and grandkids for a while, did a little grocery shopping, felt good enough to walk a couple of blocks.  Ov

Hello, I have been awake since 8:30am, slept ok. Actually, feeling optimistic. I have begun scratching again like I was before the meds.  Called Dr's office. HYDROXYZ not working, the predizoneis just making me a bitch and crazy. But I putting one foot in front of the other.  My headache is there lingering, but I took some zoloft (taken daily for last 3  years) and 2 500 mg o

I am so down, all this itchiness and sores all over, yuk.  I have this migraine headache that feels like I'm stuck.  My neck had this major pain and I literally couldn't move for about 3 minutes.  The one thing that happened 2day and hasn't happened in years is I was able to pop my neck.  It felt so good.  But the thing is why now?  I've been trying

Well it's another day it is 11:39 am been up since 8:30.  It's taken over 3 hours to get moving.  Showers and getting dressed whew didn't think I would every get done.  Withstiffiness, the severe itch from the inside out (I look like I have leprosy), the fog that I seem to be living in lately.  My concentration level is deteriorated so badly.  Not quite sure

I am not feeling well at all 2day.  I woke up at noon and have just felt like crap. I ache am nausea and stiff and my depression seems to get worst as each day passes to find out what my problem(s) are.  I can't stop itching, my body is full of sores because I can't stop itching.  Dr has given me several different meds to help with the itching but nothing is working, she