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Apr 15
2008
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Every HS person knows how hard it is to lose weight. Especially if your HS wounds are active with ooze etc. Currently Ibattle physically and emotionally on just trying to lose 5lbs. The reality is I need to lose more weight than that. But as an HSer, 5lbs might as well be 50lbs. I am sure others with other illnesses can relate. While ill, your immune system is low, your body can barely cope, so weight loss is desired but cannot be done.
With HS, everyone around me seems to believe if I lose the weight, the HS wont be a problem. This includes medical personnel who have no clue. Well all my life I was always involved in sports. My weight was always just right. Except for when HS would get a grip, then I would have unexplained weight gain, but I could still play all those sports and eat right.
Along time ago, I dropped 50lbs with no gimmicks. Went back to my sports, ate right, kept my stress levels low. Not easy as breaking my habit of emotional eating was not easy. Here is where you deal w/past/present demons that held you emotionally. No mysterious pea size bumps either.
Then one day those bumps came back and no matter what I did physically, the weight was piling on ..and fast. Nothing changed, I was still eating and being physically active. What was going on...? It was HS ramping up for the big one. The one that led me to the surgery.
Okay..back to where I was going with this ..lol. I have been making dietary changes. Within the last year there has been great success. To others on the outside, they would hardly notice. But to the HSer its big.
I have been able to calm the belly bloat. I am not that tall and to have my belly expand so much made me look like something that should float above a parade lol. Not to mention the fact that my clothes were not fitting. As a woman with monthly bloat, I have a few different sizes to accommodate. Even those sizes were not cutting it.
I have the bloat cut down, my weight is a little lower as I head into my monthly time and I will take it! With HS the weight would always go back up to a certain number. Losing one pound was difficult. Harsh reality with HS, but it is what it is. Now I am bouncing back to a number but it is 5lbs less than the other number..woohooo!
The only thing I have learned throughout my HS ordeal, is that its all baby steps. Am I cured? No. But the inflammation & weight is down, allowing me to feel good and have more mobility. Feeling good while ill is no easy task, no matter what illness you have.
So yes..I will take it. Celebrate every little thing I accomplish while having HS. I can see it...slowly my body is winning over HS.
I rather not have to measure my healing process in years, I would rather months or even minutes ..lol. The reality is ..its not going to happen. But as long as there is healing and small celebrations, that will only mould me into a better person. I now stop and smell the roses and enjoy all things big and small.

written by SKing25, April 16, 2008
keep up the good work...













