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tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

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tishylu

Tishylu's fight against the dreaded RA

An overview of my treatment, and hopefully long term success in beating this thing.


Another year, still doing great

Oct 20 2011
Now have completed five years of having RA. For the past year I have been alternating months between Vibramycin and a generic Minocycline. I only take one 100 mg capsule each Mon-Wed-Fri. This summer, when I went to get a new prescription of Minocycline, the pharmacy had changed brands. (Had used global, now was Teva). So I said OK and got the Teva brand. After about 2 weeks into using it, I felt my shoulder get achey. Hmmm...did I strain that shoulder? Maybe...  The next day, the pain had gone. OK. The following morning, my wrist ached. Uh-oh. Decided to up the dose to one per day. The next day, all ok.  The following day, one knee just about buckled under me when I got out of bed. The pain was excruciating. OKAY....I knew that the meds were simply non functional. So immediately switched to the Vibramycin (Brand, not generic). Took one a day for the next month, it took about 4 days to stop flares. Then the following month, gradually dropped back to weekdays only. Then back to 3 per week. But for some reason, I find that when taking the Vibramycin for an extended period of time like that, I was getting very very tired. Almost clinically depressed, in fact. So I went to a different pharmacy with a new prescription and got a different brand of Minocycline. Watson.  A little leery, because it was the generic Watson Doxycycline that had changed its formula and caused a major setback a few years ago. However, the Watson seems to work just fine. So again, I am doing the minocycline and alternating with the Vibramycin. Since I have a few more months worth of Vibramycin to use up, I will just take that for two weeks, then do six weeks of the Minocycline.Overall, feeling great. All fingers are fully functioning, and can curl up tight. I can unscrew the toughest screw top from a bottle with my bare hands, no problem. Funny how it is those little things that you really appreciate after being so crippled that your hands are like lobster claws.  I hope that others can use my information to find an easier route to staying in remission than using the horrible chemo drugs and horrid biologic drugs that are out there.  I hope and pray that this continues to work for me. Five years and counting.

Previous diary posts by tishylu:
Comments (1)Add Comment
written by JACKIEH, October 21, 2011
I am happy that you found something that works for you, and i hope it continues to do so, i will look into this after all hope is the last thing to die smilies/grin.gif

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