|Jan 01 2010|
Wow, I can't believe a year has passed already! I am heading into 2010, running from shadows of last year (knowing full well that some shadows will be a source of contention yet to be dealthwith this year) and looking forward with an optimistic eye at the birth of a new year.
There was so much going on in my life last year, and there is more to be had this year. The difference is that I'm not sitting down and taking "...well, could be this," "...or maybe I forgot it" anymore from medical healthcare professionals who profess that they know all and I know squat (little do they know).
This year, my daughter is dealing with the very real possibility of some type of lymphoma and is scheduled Monday for a consult with a surgeon for biopsy. I ask for divine intervention everyday, but His will is what it will be....period. Her appearance is frightening. I think her P.A. finally concedes that he's way over his head on this case and is referring her out to specialists. (About damn time!)
Other than that, things are pretty much status quo here, with the exception that the MG status is better than it's EVER been post-thymectomy. I'm going to run with that and pretend that the possibility for things to reverse themselves is plausible. How far that will get me I cannot say, but I'm going to take it as far as I can go. Though remission has eluded me thus far, I'm determined to meet up with it somewhere on the horizon. I know it's there, if only I have patience.
The lupus is holding its own. The Graves' disease, on the other hand, is being impetuous. I'm hyper again (tsh .096) and am scheduled to take a Iodine Spot Test after the 1st of the year as my doc feels my body is not metabolizing iodine adequately thus the fluctuations in TSH, T3 and T4 levels. I do have Wilson's T3 Syndrome, so compounds of Iodoral/Iodide Potassium and Thyrocare are added to my Armour regemine.
As fibro is often a subset symptom of lupus or other connective tissue diseases, also being compounded for me is oxytocin (thank heavens for no uterus!) prescribed by my PCP. And guess what? IT WORKS! Oxytocin is a normal hormone we all produce (in the hypothalmus gland), also referred to as "the cuddle hormone". But I was skeptical at first. However, my PCP is working very hard to combat the fatigue of the lupus and side effect of the pharmaceutical (and often more toxic) drugs. So far, I have to give him an A. (I'd give him an A+ but there's always room for improvement.
The depression was pretty bad during the Christmas holiday and slowly lifting. That's what stress gets ya, yesiree! Next year: gift cards!!
But for now, it's time to chill and improve upon things in myself and all around me to make this year less stressful and more enjoyable.
Though I am in denial of being another year older...! ;)
Here's to a less temperate 2010 and stepping out of shadows!
The chest tube is OUT! :)
It's not CA, but...
Trying to round a curve in a square maze
What am I doing here at 3:00 A.M.!?!
Sliding in to first base on a gravel ball diamond
Test results are in (saw PCP today)
The lupus is in a slow progression.
There is a lot of death around me at this time...
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Continue to feel oh so sick.