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avsgirl19"MDJunction has inspired me to pay forward all the support that is given to me." (avsgirl19)

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LupieToons

That's the way I roll!

I do not wear rose-colored glasses, nor would I consider myself the epitome of optimism. However, I am cautiously optimistic about living with chronic illnesses for which I am told there is no cure.
When I was diagnosed with Graves disease in 1996, I wasn't terribly upset. It was what it was and it was my responsibility to work with my endocrinologist by taking my meds and HRT as instructed and keep my appointments. Check.

In 1999 when I was officially diagnosed with myasthenia gravis, I'll admit that it was a small shock (doctors at the time suspected Multiple Sclerosis), but, again, wasn't falling apart at the seams. My neurologist appeared very knowledgeable (and, in fact, is knowledgeable) regarding MG, ordered the appropriate tests, and taught me much about MG aside from my own "research" on this disease. Again, it was my responsibility to work with my neurologist by taking my meds and keeping my appointments in addition to re-training myself on the daily activities with which I dealt.

In 2001, I was diagnosed with Lupus (SLE) after years of tests and appts with my present rheumatologist and with audio/visual spatial cog. dysfunction by me present neuropsychologist. Okay, this was all beginning to catch up with me. To make matters worse, I was diagnosed with depression.

Inspite of the above, I was determined to not give up hope. My faith had something to do with that, but my outlook on life in general had an equal share in that determination and hope.

To say that "every day is a treasure chest" may sound a bit Polly-Anna to others, but I am far from being a Polly-Anna. My outlook is that each morning I awake to a new day not knowing what positive things I might come across. But I always knew (and still know) that I will discover something that will benefit myself or will give me the opportunity to benefit someone else. I never know when I put my hand into this treasure chest, what small gift I will grasp. This is my gift to relish and/or glean some sort of understanding that I had not otherwise comprehended. This is my gift to give to someone else, should I wish to or know of someone that would benefit from such enlightenment, if you will. These gifts are not monumental in and of themselves, but by the very nature of each day's discovery I may be better able to help improve myself, or enrich someone else's day.

Something as small as a sincere smile...I'm talking a smile that comes right up from my toes and out my eyes...to someone who is having a lousy day or just needs an emotional boost to their self-esteem. Offering to give a cashier fifty-cents so the kid in front of me can enjoy the candybar he could not otherwise afford. Sending my family a brief text message in the morning, telling them I love them.

By enriching others by any means,no matter how seemingly insignificant, I enrich myself.

Whether it's your treasure chest or your oyster bed, remember what is truly important and never...ever...give up.

Peace out!
Lynne

My diagnoses are Myasthenia Gravis, SLE (lupus), Graves' Disease (post-ablative RAI-131 in 1997), other CNS issues, cord compression in cervical, thoracic and sacral spine areas; mod-severe OA; TIA in 2005. Other issues.

I'm here to offer support and share.

...Read More

Kissed by a Breeze

Aug 07 2010

I don't who or what God is with certainty.  All I know is what God is to me.  He is the Universal Law of Life; the karmic reaction to all action, whose mysteries shall be forever unknownto me but at times witnessed in even more mysterious ways that I cannot explain.  

I talk to God everyday; perhaps that is praying.  I am not eloquent in my prayer, but "speak&...

Living with neuromuscular disease and being a caregiver, too.

Apr 29 2010

In a way, I feel like I've been gone forever, yet I've thought of this MG family daily. 

I'm going to make this short because I am sleepy and need my rest.  Not a teeny-bopper anymore and the insomnia mixed with preference of the witching hours has awakened me to this fact.

Hubby has gotten worse and is now on a nebulizer 4 times a day.  He has acquired M...

Going on a slide on a hot day

Mar 13 2010

I've been in the slump-dump with depression...not severe enough to require hospitalization, however, but pretty challenging, nonethless. 

My hubby is dying.  My youngest daughteris still undergoing testing for a rare lymphoma.  I'm not feeling sorry for myself.  THis stuff is what I am here for...my purpose in life, I believe, is to offer all the support and l...

Shadows of 2009 and Anticipation of 2010

Jan 01 2010

Wow, I can't believe a year has passed already!  I am heading into 2010, running from shadows of last year (knowing full well that some shadows will be a source of contention yet to be dealthwith this year) and looking forward with an optimistic eye at the birth of a new year.

 There was so much going on in my life last year, and there is more to be had this year.  The...

I think I can nearly whistle "Dixie"

Oct 08 2009

;)  Finished my first bottle of Magnesium Citrate and have one more to go for today.  Tomorrow morning, I must be up and have finished another 10 oz. and take four Ducolax tabs BEFORE 7 A.M.  The colonoscopy is scheduled for 10:30 a.m.  I should be cleaner than a whistle!  In fact, I wonder if I can finish all the verses of "Dixie?"  hmmm, something to po...

The chest tube is OUT! :)

Sep 30 2009

My hubby might get released tomorrow.  Depends on how the pneumothorax heals.  I do not sleep well when he's not here.

His color looks much better.  The preliminary biopsyresults reveal "mycobacterium avian intracellulare."  MAI is in the air and soil...it's organic and not contagious, but must be treated with "lots" of meds for a couple of...

It's not CA, but...

Sep 29 2009

Yesterday, I called my hubby's pulmonologist, explaining his increased dyspnea, lousy color and mentioned I suspected a pneumothorax.  Doc wanted us at the hospital Monday (yesterday) a.m. for another CT scan.  His needle biopsy produced a teeny-weeny pneumothorax of 5% (Friday) and he was sent home.  By yesterday, Monday, his coloring looked worse; dyspnea noticeably worse--...

Trying to round a curve in a square maze

Sep 27 2009

For someone who doesn't work outside the home and am not able to do as much as I used to, I sure am busy and it feels like any extra activity must be penciled into an executive's desk planner!  When will it all end?  Not life as I know it, but the madness that's befallen my family during the last year (and continues).  I need to get this off my chest.  I express...

What am I doing here at 3:00 A.M.!?!

Aug 16 2009

As some of you may have learned by now, I'm an insomniac.  I take meds, but prefer not to if I can get away with it.  I get my 7 hours of sleep and sleep like a rock.

It's quietnow and I figured this was a pretty good time to read some posts and respond in kind.  I often wonder if I come across as a "know-it-all."  Believe you me, folks, nothing could...

I am back, but not up to snuff yet.

Jul 07 2009

It sucks to be sick on your wedding anniversary.  Hubby and I spent our 17th wedding anniversay quietly and that was fine with both of us.

My daughter's surgery was rescheduled for the17th, so I will be leaving St. Petersburg on the 16th and hubby will be home to tend to the cats and the guinea pigs.

 You know the one thing I miss about life before chronic illness?&nbs...

Sliding in to first base on a gravel ball diamond

Jul 01 2009

I know I've said it before, but I thought 2009 would be a quieter year--more settled, less stress.  Well, the joke's been on me because the opposite has been the case.

My youngestdaughter requires more surgery; this time to have a golf-ball size bunion removed from her right foot.  The procedure will involve breaking her big toe and resetting it with pins.  There ar...

Test results are in (saw PCP today)

May 16 2009

I have been to a lot of "family practice" physicians in my 50-some years, but never have I known a family practice doc like MY doc!  He was trained in Canada and is combining Westernmedicine, bioidenticals and homeopathic remedies for my illnesses. 

I don't have to take butalbital for the fibro now as I am taking Fibro Care by MedQuest.  I just got it Friday...

The lupus is in a slow progression.

May 14 2009

I saw my rheumatologist last Thursday for a follow-up appt.  A fellow M.D. who is continuing his education into rheumatology sat in with us.

I felt like a bug under a microscope, but wasamused that this "bug" was able to relay to the fellow what my rheumy wanted me to explain about the fatigue factor.  Fatigue IS a huge factor for me.  I have fibromyalgia componen...

There is a lot of death around me at this time...

Apr 23 2009

My sister's MIL died suddenly of a massive heart attack.  I met "Norma" and she was a kind woman.  Some friends or ours met us for dinner Sunday evening.  Monday, my friendcalled to say her husband's uncle died; her FIL has cancer which has spread to his liver.  An aquaintance I met years ago on another MG forum died two days ago of a heart attack.  On...

Sliding into 2009 and Already, I need a Nap!

Jan 03 2009

Whew, am I glad 2008 is over with!  There was so much going on, and some of it unpleasant, I didn't know from day-to-day where I was going.  That said, I have been thinking aboutthe present year.

For one, I plan on discovering how to post with visually obvious paragraphs!  ;)  Second, as I have been crafting jewelry for a couple of years, thoughts of...

God is great.

Nov 24 2008

Last Monday (11/18/08), Dr. V. ordered several common and specialized lab tests, re: blood disorder vs. CA. 

Her followup appointment today (11/25/08) at 10 a.m. and I have visuallywitnessed tense, heavy emotion lift from one's body, that of my daughter.  I know that the degree of emotions felt by one cannot be fully appreciated by another; however, today, I...

My daughter has cancer.

Nov 08 2008

Wow, what a day this has been.  I feel like an anvil fell from the sky and landed on my head.  How much can one person take?  Strength: an eight letter word that we all understand andstrive for.  How unfair that one moment it's visible on the horizon and the next moment, something casually snaps that strength right in two, leaving one filled with fear and dread.

&n...

Back home

Oct 25 2008

It has been a trying couple of weeks, for sure. I've been taking care of my youngest daughter and her children, post-op. Subsequently, it was discovered that she has an abnormality with her heartand is undergoing tests.


Her recovery from the surgery is coming along as nicely as one can hope for from a five-hour total hysterectomy. The doctors at Shands Hospital/High-Risk GYN tea...

October 8th is just around the corner.

Oct 04 2008

Well, after three visits...all with invasive procedures...and then a hysteroscopy and laparoscopy, my dtr is scheduled to have a total hysterectomy (the whole nine yards) on Oct. 8th.  She's been through so much and putting up with this mess since February of this year.  I hope next year is better for her.  She is raising 3 children on her own after ten years of marriage for...

Good news and better news!

Sep 22 2008

After caring for my daughter for ten days post-op, the MG took a ride on the wild and crazy rollercoaster!  My dose of Mestinon doubled every 4 hours.  I was busy, busy and busier!  My daughter has 3 very active little ones and the activity was beyond my capabilities.  But there for the grace of God go I.  It's been 3 weeks and I am now back down to my usual 15mg q4...

Getting back to home base

Apr 28 2008

It has been one week since returning from my daughter's home.  Today, I finally feel like I am at the first hole on the golf course.  Things are back to status quo healthwise.  However, my daughter and my granddaughter have been diagnosed with health issues that require surgery and the sooner the better.  More than likely, I will be helping her take care of her and her c...

Don't underestimate stressful situations

Apr 22 2008

I've spent the past weekend with my daughter and children.  Long story short: It was tense, intense and though there were a few smiles and a couple of laughs, the stress was tough.  Somuch happening; agencies involved, etc., etc.

I knew by Day 2 that I wasn't feeling my best.  By the time I got home, the MG wasn't doing well and hubby was shocked by my appearanc...


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