Why wear a ribbon?

"I am dual-diagnosed and have empathy for those who are as well." (diedtolive)

MDJunction to me

"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv" (Macv)

more testimonials

Some Days are better than others.

I have been told that keeping a journal about my fibro will help me figure out the highs and lows to help with the pain.

It has been a long time

Sep 13 2010

I didn't realize how long it had been since i was on the site until today. I guess that I got busy and knew I needed to do something to help with all of this but couldnt remember what.

TheDoctor took me off of every medicine that i had been on because of the various side effects that i was experiencing. It is very fustrating some days when the pain is high. The warmer it is outside the worse the pain is. I wish i could find something that would help with all of this. The pain is bad but now it is starting to spread to my hands. They hurt a lot these days.

Previous diary posts by amy213:

it has been a rough time lately
I almost feel human
pain and not being able to sleep

Today is a bad day
My first entry

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