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"for my PA" (ktat0612)

MDJunction to me

jaguarandcubs"MDJ is an integral part of my everyday life. Since joining in 2010, I have met so many amazing people. It is truly incredible to be able to share good times and not so good times with others who face the same health challenges. And MDJ has support groups for every condition I have. I don't know of anywhere else that can offer that. I love that I can learn from others as well as offer my own experiences for others to learn from." (jaguarandcubs)

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Hgoff

Sister of a PAH patient

Hi I am new here so this might take me a while to figure out :) Last Month, My little sister was diagnosed with PAH. Her tests show that it is significant, but her symptoms don't. I guess that's why it was so hard to catch. At first, I thought this was a death sentance. My grandmother died of PAH when my Mom was only 15. So I was and still am scared. I don't yet understand everything, but I guess that will come in time. My sister still acts the same as she always has,so I'm not sure how she is really feeling emotionally. I'm scarred to ask.

We did get some good new after her tests last Thursday. She has no build up in her heart arteries. So that's good. She is on Viagra and Cumidin right now. Mom and Dad are working on getting Kchip and other assistance for my sister to get her other medications. I don't know much about that though.

I caame to this site to get some positive support from others who are going through what we are. I can't imagine what my parents are going through mentally. My sister just seems to take it in stride. I haven't seen her cry, or say much about it other than she hates wearing Oxygen all of the time. She is only 17 so she is still in high school.

We are still tring to take it all in though. I'm not sure about what her next steps are concerning college and career. But maybe that's too far ahead to think about.

If there is anyone reading this, please respond with whatever you feel that I need to hear. I will try my best to keep my diary up to date :)

God bless


New Years Resolution :)

Jan 06 2011

This resolution comes in two parts.

First and foremost I would love to strengthen my relationship with Christ and become a better individual for it. That is a very hard thing to do when you arearound so many young people who do not have faith. Including your own roomate. So please pray for me in that aspect!

Second (and what seems to be the most difficult) is getting back in shape! As a teenager I was a lean-mean volleyball playing machine! I have no idea where that all went but it's definatly gone. lol I'm about 25 lbs overweight and I intend to take it off! I downloaded an app that counts calories for me. My biggest problem is simply OVEREATING. And I am going to walk on the treadmillfor 30 minutes a day. When I get back on campus, I will go to the gym and do this.

soooooooo, comment with YOUR new years resolution :) We can all keep eachother motivated!

God Bless,

Haleigh



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